e-patient Archives | Page 4 of 4 | Rheumatoid Arthritis Warrior

e-patient

The Fake Patient (fPatient) & Patient Engagement on Drug Companies’ Sites

Kelly Young 30 Comments ,
Patient engagement: ePatients, meet fPatients I wrote about ePatients on the blog a couple of months ago. The e-patient is supposed to be a patient who is engaged in electronic media (the internet) to learn about his/her medical condition. Perhaps she is doing research or reading about the experiences of other patients. Many of you might...Continue reading      30 Comments » Read more

What if Rheumatoid Arthritis Patients Wrote a Dear Doctor Letter?

Kelly Young 32 Comments , ,
Silly Fantasy for Rheumatoid Arthritis Patients What if we could say whatever we think to a doctor? Sometimes, I imagine what it would be like to write the doctor a letter. Here is my imaginary letter. Some Rheumatoid Arthritis Patient Secrets Dear Doctor, Well, I’ve been looking forward to our appointment next week. It’s been several months. I hope...Continue reading      32 Comments » Read more

Rheumatoid Arthritis Therapy: Is That What Blogs Do?

Kelly Young 57 Comments ,
Is an RA blog just cute stories? Okay some folks have been asking me about how Orencia is helping me. So, I’ll give an update today on my Orencia Rheumatoid Arthritis therapy. Uh-oh, were they just being polite? Can I say something else first? I’m really uncomfortable blogging about my own RA, so it’s not front and...Continue reading      57 Comments » Read more

E-patients’ Role in Healthcare Social Media: Do Doctors Hate Blogs?

Kelly Young 38 Comments , ,
Pew finds 61% of patients are e-patients, not content with the back of the bus Over the last few years, the internet has changed the way that healthcare consumers (patients) interact with providers and manage their own medical care. A Pew survey showed that 61% of patients look online for healthcare information. Sixty percent of them access...Continue reading      38 Comments » Read more

Rheumatoid Arthritis Message Boards

Kelly Young 47 Comments , ,
The subject of RA message boards has come up recently in a couple of conversations. I want to ask what you think. From what I’ve heard, message boards and forums are popular sources of RA information. Some are fully moderated so that posts are kept positive and kind. Others are less so. However, none are moderated...Continue reading      47 Comments » Read more

My Impressions About the FDA Hearings on Social Media #FDASM

Kelly Young Make a Comment ,
“Promotion of Food and Drug Administration-Regulated Medical Products Using the Internet and Social Media” That was the $10 name of the meetings held last week by the Food and Drug Administration in Washington, D.C. However, the hearings themselves were actually much more captivating than the name. Would it help if I tell you they were talking...Continue reading      Make a Comment » Read more
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