Living with chronic illness like RA Archives | Page 5 of 8 | Rheumatoid Arthritis Warrior

Living with chronic illness like RA

Good News for Us and a Reader’s Take on the Newspaper

Kelly Young 8 Comments ,
We’re so fortunate to have readers who make such amazing contributions. That’s what makes us more of a community than just a website. Isn’t it great the amount of information and encouragement readers provide each other – and me – even by commenting?! This week we reached an extraordinary milestone on our Facebook page. Our membership...Continue reading      8 Comments » Read more

Do you have a Rheumatology Care Team?

Kelly Young 40 Comments , ,
What’s a rheumatology care team? When I wrote the About pages for this site, I discussed the team of doctors and medical professionals that a person fighting Rheumatoid Arthritis might gather around him. Like Diabetes, I realized that people with RA could need plenty of monitoring and advice. The other day, I read an article in The...Continue reading      40 Comments » Read more

More Rheum Adventures on the Road

Kelly Young 10 Comments ,
Happy Saturday, y’all! Yesterday, I drove back from my mom’s ranch up on the Florida Panhandle. It was my first road trip since RA with me as the sole driver. My survival tools were cruise control, healthy snacks, music, and lots of rest stops. For the first half, we stopped for 10-15 minutes after every hour of driving. That...Continue reading      10 Comments » Read more

Santa, Bring Her a Rheumatologist Please

Kelly Young 57 Comments ,
Wanted: good rheumatologists Sonya’s tweet brought me a smile. So much truth in so few words. Those of us with rheum diseases like RA need a good doctor the way most people need a reliable car mechanic. We might crash and burn without it. This is short for two reasons: 1) I don’t have a long list of...Continue reading      57 Comments » Read more

Without e-Patient Input, an ER Experience Can Be Empty

Kelly Young 52 Comments , ,
Things that patients know about their health and the wealth of information they find online make input from patients valuable and meaningful. These patients are called e-patients. An e-patient acronym: Expand Participation by Allowing The Input of Evidence Not in Textbooks Hopefully, you didn’t miss the exciting news for rheumatology e-patients acknowledging that by “pooling our knowledge and...Continue reading      52 Comments » Read more

Not a Real RA Patient

Kelly Young 36 Comments , ,
I always had a silly super-hero complex. I thought that I could do anything if I tried hard enough or stayed up late enough. Add to that endless optimism and a belief that God will always make everything turn out right. There’s this tendency to see life as a maze with many options. Never give up;...Continue reading      36 Comments » Read more

Men and Rheumatoid Arthritis: Video PSA

Kelly Young 46 Comments , ,
Why a video about men and Rheumatoid Arthritis? This video PSA (public service announcement) is something that I have wanted to finish for months because the story about men and Rheumatoid Arthritis has not been told. I also believe that telling the story of men and RA will help everyone who lives with RA by creating...Continue reading      46 Comments » Read more

The Hypochondria of RA Pain: Do I Smell an Elephant?

Kelly Young 31 Comments , , ,
Hypochondria is an elephant in the room with RA pain The elephant house was always my favorite place at the zoo. We always knew when we were near it …by the smell. So, how can an elephant creep into a room? They don’t exactly tip-toe. Maybe what happens is that nice people don’t discuss certain things, so no...Continue reading      31 Comments » Read more

10 Commandments of Chronic Illness

Kelly Young 76 Comments , ,
I hate cute little tips for chronic illness It bugs me when I’m frequently asked in interviews what quick tips I’d give to those who are newly diagnosed with an illness like RA. I feel like saying, “Sorry, there aren’t any tips that would make it easy to live with RA because RA is hard.” On...Continue reading      76 Comments » Read more

Should Chronic Pain Patients Be Treated in the ER?

Kelly Young 31 Comments , , ,
What happens when a chronic pain patient goes to the ER? In the video below, A Chronic Pain Patient in the ER, a chronic pain patient is presented as either untruthful or mentally unstable. I’m not even sure which. However, the point of the video and many of the comments is that chronic pain patients are...Continue reading      31 Comments » Read more

How Rheumatoid Arthritis Pain Affects Women’s Lives

Kelly Young 73 Comments , ,
There were some wonderful surprises at the American College of Rheumatology Scientific Session last month aka the ACR meeting. One of them was a poster presented by Dr. Vibeke Strand of Stanford. It’s not the topic that is wonderful, but the fact that rheumatologists are studying it. The study was called “The Impact of Rheumatoid...Continue reading      73 Comments » Read more
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