Patient advocacy Archives | Page 2 of 4 | Rheumatoid Arthritis Warrior

The Powerful Health Care Role No One Really Wants: Being a Patient

June 30, 2012May 14, 2018 Kelly Young 17 Comments e-patient, Patient advocacy, Rheumatoid Arthritis awareness

The valuable knowledge of patients with diseases like RA Today, Katie Beth and I flew home from San Francisco where I spoke three times this week: There was a presentation about the value of patient input with chronic conditions like rheumatoid disease, a panel discussion about e-patients and e-docs at Digital Pharma West, and an informal address...Continue reading 17 Comments » Read more

Leaving It All on the Field: Not the Safest Choice But Maybe Best

May 14, 2012May 14, 2018 Kelly Young 12 Comments Living with chronic illness like RA, Patient advocacy, Professional patient

Sightseeing, small steps, and sleep I’ve spent most of the last 3 weeks lying down with ice on my neck, or taking extra meds for the back spasms. The night before the FDA tofacitinib hearing, my back got so bad that I was about 90% certain that I would not be able to attend. My little...Continue reading 12 Comments » Read more

Dear Warriors and Friends

April 9, 2012May 15, 2018 Kelly Young 10 Comments Comprehensive RA Care, Humor with RA, Patient advocacy

The past three years are positively beyond anything I could have imagined. Do you have a moment? When I started blogging, I had dreams of this website. But it could take forever to learn enough about “code” to manage it… We’ll save the rest for another day, but do you realize rawarrior.com has at least 630 pages?...Continue reading 10 Comments » Read more

Kelly Young Wins WebMD Health Hero Award

November 13, 2011May 15, 2018 Kelly Young 49 Comments e-patient, Patient advocacy, Rheum Disease in the Media, Rheumatoid Patient Foundation

WebMD magazine chooses Kelly as 1 of 4 “Champions of Care”! Look what I found on my dresser when we got home from Chicago last night! The new WebMD magazine with yours truly in it! You can click on the images to enlarge and read the text or read the story on the WebMD Health Hero honorees...Continue reading 49 Comments » Read more

Mayo Clinic Video Interview: Patients at ACR Scientific Meeting

November 6, 2011May 15, 2018 Kelly Young 11 Comments American College of Rheumatology, Patient advocacy, Video or podcast

Some of you may be puzzled about what I’m doing in Chicago. So here’s a brief summary and a video interview with Mayo Clinic News Blog telling why patients are interested in a scientific meeting like the ACR Scientific Meeting. What happens at the American College of Rheumatology Scientific Meeting? “The ACR/ARHP Annual Scientific Meeting will be...Continue reading 11 Comments » Read more

Video: Rheumatoid Patient Foundation Gives RA Patients a Voice

November 4, 2011May 15, 2018 Kelly Young 1 Comment Patient advocacy, Rheumatoid Patient Foundation, Video or podcast

This week, the Rheumatoid Patient Foundation (RPF) conducts our first exhibit at the American College of Rheumatology (ACR) Annual Scientific Meeting. Beginning tomorrow, we’ll present our video The Faces of Rheumatoid Disease to doctors, researchers, and industry attending the ACR meeting. We’ve also prepared other materials that we’ll be sharing with you in the coming...Continue reading 1 Comment » Read more

Behind the Scenes Video: Patient at a Social Media Conference

October 24, 2011May 15, 2018 Kelly Young 4 Comments Doing Projects with RA, Pain Tolerance / RA Stoicism, Patient advocacy, Video or podcast

Telling it like it is. On camera. It’s uncomfortable. It's very hard to talk about harsh pain. Why does pain seem so embarrassing? I even gave birth in quiet agony a few times because of that. 3 aspects of RA that are difficult to discuss It’s hard to talk about pain, so most of us are pretty private...Continue reading 4 Comments » Read more

The Path of Mercy in Medicine: A Tale of Two Doctors

September 28, 2011May 15, 2018 Kelly Young 12 Comments e-patient, Patient advocacy, Talking to doctors

Physicians enjoy a unique position in our society with unique opportunities to make a difference in others’ lives. With that powerful role, they can choose between a path of mercy and a path of nonchalance. They can be a tool in the hands of God or they can just be a tool. There was the woman...Continue reading 12 Comments » Read more

Living with (RA) Rheum Disease Is Already Multitasking

September 26, 2011May 15, 2018 Kelly Young 18 Comments Communicating about RA, Living with chronic illness like RA, Patient advocacy

Where have you been girl? As this post goes up, I’m in a chair with an IV getting my second Rituxan IV infusion. It’s hard to write about myself, but I really need to keep you informed about what’s going on. Couldn’t someone else report about it for me? None of my kids were willing to...Continue reading 18 Comments » Read more

News Flare! 1st Rituxan Infusion! WebMD Award! and More!

September 15, 2011May 15, 2018 Kelly Young 35 Comments e-patient, Patient advocacy, Professional patient, Rituxan for Rheumatoid Arthritis

First Rituxan infusion Monday, I spent 8 hours with an IV for my first Rituxan infusion. It took a longer time for various reasons, but it seems I did fine. So far my only noticeable side effect has been a fierce headache. Still. It’s difficult to describe how grateful I am for those who sat with me...Continue reading 35 Comments » Read more

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Thanks for visiting this unique site full of information and encouragement to fight Rheumatoid Disease. You'll find hope, humor, and a helpful online community. I'm Kelly & I'll be glad to show you around if you'll click right here.

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