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Patient advocacy

Video: Thoughts from American College of Rheumatology (ACR) 2010

Kelly Young 36 Comments , , ,
Patient with a Press Pass! Wow! What an incredible week it was! After I post this greeting, I'll be packing up to get to the airport. I promise I'll tell you lots more as quickly as I can type it out. I don't know how I'll decide what to write about first! Right now, I'm still marveling at...Continue reading      36 Comments » Read more

RA Is Not “arthritis”: a PSA on Rheumatoid Arthritis

Kelly Young 83 Comments , ,
Not syrupy sweet, but a Public Service Announcement on Rheumatoid Arthritis This video was not created to encourage patients, so it’s not all warm and fuzzy. Rather, this video is a short public service announcement with a distinct purpose: To tell the public that Rheumatoid Arthritis is a disease that is distinct from “arthritis” (what’s now...Continue reading      83 Comments » Read more

Traveling to a WEGO Health Panel for Health Activists

Kelly Young 26 Comments , ,
A month of firsts It has been a month of firsts for me. There were fun things like our first Rheumatoid Arthritis Meme and my first prescription reading glasses - how great it is to see again! There were less fun hard things like medial branch nerve blocks in my back and neck and my first...Continue reading      26 Comments » Read more

Twitter & a #rheum for the Rheumatoid Online Community

Kelly Young 10 Comments , ,
You are the best part! The best thing about this blog is the readers. I know – I if I didn’t write a blog, then there wouldn’t be one. But the readers help make this blog a community, especially through the comments pages. We also have a thriving RA Warrior Facebook community where people are making...Continue reading      10 Comments » Read more

Life of a Professional Patient, Blog #5; Little Victories

Kelly Young 32 Comments , ,
Lately I wish each day were 3 days long. After a morning of correspondence, blog replies, Algebra, English, and Greek lessons, I went in for my latest back injections. The kids were frustrated because I wouldn’t eat lunch. My stomach was too nervous to eat. Last week, I wrote about the spine procedure I was having done...Continue reading      32 Comments » Read more

RAWarrior News Flare: Invisible Illness Week & ACR 2010

Kelly Young 9 Comments ,
“News flare” just always seems more appropriate than news flash. There’s some big news for the blog this week. News for the blog is news for all of us since the Rheumatoid Arthritis Warrior blog represents the viewpoint of the patient living with the invisible illness of RA and the similar autoimmune rheumatoid diseases. It’s Invisible...Continue reading      9 Comments » Read more

Woman’s Day Rheumatoid Arthritis Article: A Video Appeal

Kelly Young 79 Comments , , , ,
Rheumatoid Arthritis Warrior & the Woman’s Day article Welcome to my first video blog! I’ve been working on responding to the Woman’s Day Rheumatoid Arthritis article for almost a year. It was my first encounter with the PR (public relations) problem with Rheumatoid Arthritis in the media. Please read my first blog on the Woman’s Day...Continue reading      79 Comments » Read more

About Rheumatoid Arthritis Warrior: News Flare, Part 2

Kelly Young 7 Comments ,
Because News Flare is more appropriate than News Flash Here’s a little peek from my side of the blog… Lately, it’s getting more difficult for me find a particular post when I use the Archives gadget down in the sidebar. It works just fine – it’s just that there are so many posts! I clicked on...Continue reading      7 Comments » Read more

About Rheumatoid Arthritis Warrior: News Flare

Kelly Young 13 Comments
I thought News Flare was more appropriate than News Flash. Some important RA Warrior updates First, I’m happy to show you that yesterday, an RA news article by yours truly was published on HCP (Health Care Professionals) Live. The topic is one that will be close to our hearts. I wrote that unless there can be early Rheumatoid...Continue reading      13 Comments » Read more
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