Would Relying on Patient Generated Data Make a Difference?

April 16, 2010May 15, 2018 Kelly Young 10 Comments Patient reported outcome measure, Physician-patient discordance / disagreement, Talking to doctors

Discrepancy between patient generated data and clinician reported data Recently on the blog, I mentioned an oft-quoted study which suggests that the disease course for Rheumatoid Arthritis is becoming milder. Something puzzled me at the end of the report. The researchers noticed that Rheumatoid Arthritis patients’ ratings of their disease activity were opposite to that of...Continue reading 10 Comments » Read more

How Much Does Patient Testimony Matter?

April 15, 2010May 15, 2018 Kelly Young 19 Comments Parvovirus and Rheumatoid arthritis, Patient reported outcome measure, Talking to doctors

A story about patient testimony In this blog, I’m going do something I don’t often do: use personal patient testimony to illustrate a point. Today, I took my teenage son to a new ear, nose, and throat (ENT) doctor. My son’s ENT history was interesting to the doctor. Reliving the story today was poignant. As an infant, my...Continue reading 19 Comments » Read more

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