Rheumatoid Patient Foundation Archives | Rheumatoid Arthritis Warrior

Rheumatoid Disease Awareness Expands

February 2, 2018May 13, 2018 Kelly Young 20 Comments Rheumatoid Arthritis awareness, Rheumatoid Patient Foundation

Years ago, texts with my daughter MK prompted me to dream of billboards for rheumatoid disease awareness. Wouldn't it be incredible to lay out the truth for people to see as they just drove by? I have a huge surprise for you if you have just a moment for rheumatoid disease awareness memory lane. It’s #RheumDay—a...Continue reading 20 Comments » Read more

Rheumatoid Arthritis Petition

February 2, 2017May 13, 2018 Kelly Young 4 Comments Rheumatoid Arthritis awareness, Rheumatoid Patient Foundation

How we got to a rheumatoid arthritis petition When I was diagnosed with rheumatoid arthritis (RA) in 2006, I didn’t know anyone who had the disease. In a moment, my whole life changed. I had no idea what was going on or what was in store for me. I did not know what I should do...Continue reading 4 Comments » Read more

Rheumatoid Awareness Day 2016

February 2, 2016May 14, 2018 Kelly Young 9 Comments Rheumatoid Arthritis awareness, Rheumatoid Patient Foundation

February 2, 2016 is the fourth annual Rheumatoid Awareness Day. Happy Rheumatoid Awareness Day 2016 The theme for Rheumatoid Awareness Day 2016 is the real rheumatoid disease, abbreviated with the hashtag #TheRealRD. Seven facts illuminate the stark differences between the media version of rheumatoid arthritis and the rheumatoid disease that’s experienced by so many. Sharing these 7...Continue reading 9 Comments » Read more

Together, We’re Neither Alone Nor Powerless

December 3, 2013May 14, 2018 Kelly Young 5 Comments Rheumatoid Patient Foundation

Friendship is born at that moment when one person says to another: "What? You too? I thought I was the only one." ~CS Lewis Most of the time, it seems we’re pretty powerless to change things. As long as we’re alone, it might stay that way. But when we find others like us, the whole...Continue reading 5 Comments » Read more

We Must Celebrate! Your Voice Was Heard, Despite My Limitations

November 4, 2013May 14, 2018 Kelly Young 26 Comments American College of Rheumatology, Communicating about RA, Patient advocacy, Rheumatoid Patient Foundation

Months – actually years – of my life went into the last couple of weeks. It’s a peculiar feeling when it all comes together in a moment. While there are important points to dig into from the annual ACR meeting, we should pause for a moment to reflect on where we are. (A recent Spear...Continue reading 26 Comments » Read more

Ashton Kutcher on Opportunity, Being Sexy, & Steve Jobs’ Advice on Life

August 14, 2013May 14, 2018 Kelly Young 5 Comments Inspiration for living with RA, Rheumatoid Patient Foundation

Surprise speech on life at Teen Choice awards This week at the Teen Choice Awards, popular actor and tech investor Ashton Kutcher (Christopher Ashton Kutcher) described “3 amazing things I learned when I was Chris.” Kutcher plays Steve Jobs in the upcoming film Jobs (opening this week). I watched the video of Ashton Kutcher’s short speech last...Continue reading 5 Comments » Read more

Facts & information on the Rheumatoid Patient Foundation

<< Back to main media page MISSION OF Rheumatoid Patient Foundation (RPF) The Rheumatoid Patient Foundation works to improve the lives of people living with Rheumatoid Diseases, including those diagnosed with Rheumatoid Arthritis (RA) or Juvenile Rheumatoid Arthritis (JRA) / Juvenile Arthritis. Learn more about the Rheumatoid Patient Foundation (RPF) at rheum4us.org. RPF is dedicated to improving...Continue reading Make a Comment » Read more

RPF White Paper Indicates Patient Experiences Differ from Typical Perceptions of Rheumatoid Arthritis

April 30, 2013May 14, 2018 Kelly Young 18 Comments Patient reported outcome measure, Research on Rheumatoid Arthritis, Rheumatoid Patient Foundation

Patient Experience and Rheumatoid Disease This site has always been dedicated to “presenting the patient story in a way that may increase understanding of the disease by doctors and researchers” as one of its three goals. The Onset Story project has been an important part of that, both for patients and for healthcare professionals searching to...Continue reading 18 Comments » Read more

This is our 10K

January 30, 2013May 14, 2018 Kelly Young 4 Comments Rheumatoid Patient Foundation

Have you read the posts on the Facebook event for Rheumatoid Awareness Day February 2nd? The stories, like thousands of comments on this site, describe the range of experiences and emotions people face with this disease. I’ve said your comments are like another whole blog– and that’s true. Together, we tell the full story of...Continue reading 4 Comments » Read more

Awareness Ribbon for Rheumatoid Arthritis, Finally

January 26, 2013May 14, 2018 Kelly Young 30 Comments Rheumatoid Arthritis awareness, Rheumatoid Patient Foundation

The unique awareness ribbon for Rheumatoid Arthritis Patients distinguish themselves from arthritis or other diseases with an awareness ribbon for Rheumatoid Arthritis / Rheumatoid Disease Does color really matter? Think about the Yellow Brick Road. Would it be the same if it were the black brick road? Or the blue brick road? Of course not. But, we know...Continue reading 30 Comments » Read more

FIRST AWARENESS DAY FOR RHEUMATOID ARTHRITIS ESTABLISHED BY RHEUMATOID PATIENT FOUNDATION

January 23, 2013May 14, 2018 Kelly Young 14 Comments Rheumatoid Arthritis awareness, Rheumatoid Patient Foundation

Here's a copy of the press release that went out over the wires yesterday. We're being contacted from media across the country. Please feel free to forward it to any journalists you have contact with. Patients Increase Public Awareness of Underestimated Disease January 22, 2013 – Rheumatoid Patient Foundation (RPF) announces the establishment of Rheumatoid Awareness Day...Continue reading 14 Comments » Read more

1st Rheumatoid Disease Awareness Day – Groundhog Day 2013

January 22, 2013May 14, 2018 Kelly Young 21 Comments Rheumatoid Arthritis awareness, Rheumatoid Patient Foundation

Rheumatoid Disease Awareness Day - FEBRUARY 2 A DAY FOR RHEUMATOID ARTHRITIS AWARENESS: February 2nd is the annual Rheumatoid Disease Awareness Day – CLICK TO READ PRESS RELEASE. Details about how you can get involved in the day of recognition for people living with Rheumatoid Disease, previously “Rheumatoid Arthritis,” can be found here. February is heart disease month, which is...Continue reading 21 Comments » Read more

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