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Rheumatoid Patient Foundation

Hoping Really Hard: 2 Battles I Fight to Win

Kelly Young 20 Comments ,
Two things I’ve been hoping for with all my heart, so I’m doing all I can If you’ve been reading my blog long, you know I talk about hope as a verb – something you do. Hope is not something that some lucky people just have. When you’re actively hoping, you’re probably doing as much as...Continue reading      20 Comments » Read more

Digging in to the 2011 American College of Rheumatology Scientific Meeting

Kelly Young 2 Comments , ,
As I returned from the 2010 American College of Rheumatology Scientific Meeting last year, I painted a picture for you of its significance and the impact it made on me. Those words are still a proper backdrop as we review the events of the 2011 meeting: Context, Care, & Complicated and I hope you’ll read...Continue reading      2 Comments » Read more

Kelly Young Wins WebMD Health Hero Award

Kelly Young 49 Comments , , ,
WebMD magazine chooses Kelly as 1 of 4 “Champions of Care”! Look what I found on my dresser when we got home from Chicago last night! The new WebMD magazine with yours truly in it! You can click on the images to enlarge and read the text or read the story on the WebMD Health Hero honorees...Continue reading      49 Comments » Read more

Update from Chicago!

Kelly Young 4 Comments , ,
It’s our last day in Chicago!  Katie Beth and I are going to be tourists for a half-day and then pack for an early flight. All day tomorrow we’ll be in transit. Here’s a quick update until I’m able to write more. The last couple of months have been spent in almost constant preparation for the...Continue reading      4 Comments » Read more

Video: Rheumatoid Patient Foundation Gives RA Patients a Voice

Kelly Young 1 Comment , ,
This week, the Rheumatoid Patient Foundation (RPF) conducts our first exhibit at the American College of Rheumatology (ACR) Annual Scientific Meeting. Beginning tomorrow, we’ll present our video The Faces of Rheumatoid Disease to doctors, researchers, and industry attending the ACR meeting. We’ve also prepared other materials that we’ll be sharing with you in the coming...Continue reading      1 Comment » Read more

Happy Birthday #Rheum for World Arthritis Day

Kelly Young 6 Comments ,
Last October 12, I was in New Jersey in on a WEGO Health panel of health activists. But before I got on the plane, I wrote a blog post to share my concept of a #Rheum community online for people interested in Rheumatoid disease and rheumatology topics, beginning with a Twitter hashtag and chat. Over the...Continue reading      6 Comments » Read more

Rheumatoid Patient Foundation Needs Your Help

Kelly Young 31 Comments
I was glad when it started raining today – it’s proper to rain when you cry.   The Digital Patients’ Bill of Rights Things are happening fast. The E-Patient Connections conference was fantastic. The day before, I participated in the Digital Patients’ Bill of Rights meeting. I haven’t written about it yet, but you can read about...Continue reading      31 Comments » Read more

Response to An Identity Crisis for RA by Dr. R. Franklin Adams

Kelly Young 55 Comments , ,
Recently, I read an article in The Rheumatologist (preceding a new PR campaign by the American College of Rheumatology), “An Identity Crisis for RA: A few suggestions to bring rheumatic disease the recognition and respect it deserves.” I strongly recommend that you read the article since I cannot quote it entirely here. It was written...Continue reading      55 Comments » Read more

More Rheum Adventures on the Road

Kelly Young 10 Comments ,
Happy Saturday, y’all! Yesterday, I drove back from my mom’s ranch up on the Florida Panhandle. It was my first road trip since RA with me as the sole driver. My survival tools were cruise control, healthy snacks, music, and lots of rest stops. For the first half, we stopped for 10-15 minutes after every hour of driving. That...Continue reading      10 Comments » Read more

Be Heard via the RPF’s Rheumatoid Arthritis Patient Survey

Kelly Young 26 Comments ,
Rheumatoid Patient Foundation brings you its 1st Rheumatoid Arthritis Patient Survey The Rheumatoid Patient Foundation (RPF) exists to serve people with RA. Although there have been numerous organizations existing over the years for other rheumatological conditions (such as Sjogren’s syndrome or Fibromyalgia syndrome) and other autoimmune arthritis-type diseases (such as Lupus or Ankylosing Spondylitis), the Rheumatoid...Continue reading      26 Comments » Read more
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