Unrelenting RA - Persistent disease Archives | Page 2 of 3 | Rheumatoid Arthritis Warrior

Your Rheumatoid Arthritis Onset Stories, page 27

Click here to view a complete listing of Rheumatoid Arthritis stories on this site with disclaimer. Linda's Rheumatoid Arthritis story Nancy T's Rheumatoid Arthritis story Chessiegirl's Rheumatoid Arthritis story This is Linda’s onset of Rheumatoid Arthritis story, in her own words. My onset story began in the middle of October, 2010, when I had just realized a goal that I...Continue reading 1 Comment » Read more

Rituxan Decision: Serving Humanity or Taking Care of the Patient (Me)

February 27, 2012May 15, 2018 Kelly Young 116 Comments Professional patient, Rheumatoid Arthritis Clinical Trials, Rituxan for Rheumatoid Arthritis, Unrelenting RA - Persistent disease

This is one of those rare posts about my personal medical journey, a Professional patient post. That’s kind of a warning in case I use the word “I” too many times to be polite. It’s crunch time. No one can decide but me. About a year ago I hit the end of the line with my rheumatology...Continue reading 116 Comments » Read more

Rheumatoid Arthritis Exercise, Round 5

October 25, 2011May 15, 2018 Kelly Young 53 Comments Cost of activity - usage principle, Exercise with RA, Frying Pan Posts, Unrelenting RA - Persistent disease

This is the third post in the Frying Pan series to honor of the blog’s 3rd year, considering some significant issues from the last couple years. Sometimes the ...Continue reading 53 Comments » Read more

New Way to Report Response in RA Clinical Trials?

August 23, 2011May 15, 2018 Kelly Young 15 Comments American College of Rheumatology, Rheumatoid Arthritis Clinical Trials, Unrelenting RA - Persistent disease, XELJANZ-tofacitinib-JAK

Untangling a possible replacement for the “familiar” ACR 20 describing treatment response in clinical trials for Rheumatoid Arthritis Special thanks to Jay Sprinkel for assistance with this post. Although he may be more known for the humor he provides to our Facebook group, Jay is a retired marine biologist who specializes in statistics. He is also...Continue reading 15 Comments » Read more

I Want My Life Back

June 17, 2011May 15, 2018 Kelly Young 65 Comments Inspiration for living with RA, Rheumatoid arthritis disability, Unrelenting RA - Persistent disease

RA can hurt so bad that even tough guys cry. Lately, I’ve cried for a different reason. I want my life back so much. I want to run on the beach, but I stumble running to the bathroom. I want to hold a tennis racquet, but most days can’t hold a TV remote properly. Want to...Continue reading 65 Comments » Read more

Life of a Professional Patient, Blog #5; Little Victories

October 5, 2010May 15, 2018 Kelly Young 32 Comments Patient advocacy, Professional patient, Unrelenting RA - Persistent disease

Lately I wish each day were 3 days long. After a morning of correspondence, blog replies, Algebra, English, and Greek lessons, I went in for my latest back injections. The kids were frustrated because I wouldn’t eat lunch. My stomach was too nervous to eat. Last week, I wrote about the spine procedure I was having done...Continue reading 32 Comments » Read more

My First Actemra Treatment

August 10, 2010May 15, 2018 Kelly Young 50 Comments Actemra, Biologics for RA, Professional patient, Unrelenting RA - Persistent disease

Actemra is my fourth Biologic treatment My first Actemra treatment was two weeks ago. I never dreamed I’d be going for my fourth different kind of Biologic treatment. When my first rheum doc said I’d feel much better soon with Humira, I believed it. When the Rheumatoid Arthritis continued to progress, the doc seemed as disappointed...Continue reading 50 Comments » Read more

20 Essential Facts About My Own Rheumatoid Arthritis No Doctor Ever Asked Me

August 5, 2010May 15, 2018 Kelly Young 31 Comments Rheumatoid Arthritis symptoms, Talking to doctors, Tips for living with Rheumatoid Arthritis, Unrelenting RA - Persistent disease

Essential Rheumatoid Arthritis facts only you could know Last month, we talked about 10 Essential Facts About Rheumatoid Arthritis No Doctor Ever Told Me. We were talking about some essential RA facts of life that many RA patients have to figure out on our own. Let’s look at another angle: What about some truly essential facts...Continue reading 31 Comments » Read more

Rheumatoid Arthritis Symptoms Not Alleviated by Disease Treatment

June 25, 2010May 15, 2018 Kelly Young 70 Comments Rheumatoid arthritis remission, Rheumatoid Arthritis symptoms, Talking to doctors, Unrelenting RA - Persistent disease

Rheumatoid Arthritis patients still have symptoms of pain & disability In a press release posted this week from Rome, the European League against Rheumatism (EULAR) says women with Rheumatoid Arthritis experience Rheumatoid Arthritis symptoms despite treatment. (Link to view non-pdf version of EULAR press release.) The survey of 2,000 Rheumatoid Arthritis patients found a majority experienced...Continue reading 70 Comments » Read more

Severe Rheumatoid Arthritis Versus Mild Rheumatoid Arthritis

May 13, 2010May 15, 2018 Kelly Young 97 Comments Living with chronic illness like RA, Measuring rheumatoid disease activity, Unrelenting RA - Persistent disease

Next week, the blog will be one year old. During this week, I’m sharing some personal thoughts. Comparing severe Rheumatoid Arthritis & mild Rheumatoid Arthritis I’ve experienced both sides of this comparison: I’ve been told I have Rheumatoid Arthritis too mild to understand the struggles of others: “How else could you blog every day?” Other times, I...Continue reading 97 Comments » Read more

Courses of Rheumatoid Arthritis

March 30, 2010May 15, 2018 Kelly Young 44 Comments Rheumatoid arthritis remission, Rheumatoid Arthritis symptoms, Unrelenting RA - Persistent disease

Are there distinct courses of Rheumatoid Arthritis for RA patients? We talk so often of what we have in common. Let’s think about our differences for a moment. One of my very first blog posts was about the four courses of Rheumatoid Arthritis. It’s like a fact of life with RA: we are not all the...Continue reading 44 Comments » Read more

What Is it Like to Live with Rheumatoid Arthritis? Part 3: Communication Failure

February 8, 2010May 16, 2018 Kelly Young 54 Comments Communicating about RA, Pain Tolerance / RA Stoicism, Transparency & living with RA, Unrelenting RA - Persistent disease

I’ve failed. I’ve been writing about Rheumatoid Arthritis for a year and I have not been able to explain exactly what it is like to live with Rheumatoid Arthritis (RA). Sometimes, I think that I need to say it louder or use bolder print or stronger adjectives. One problem is that I try to be nice....Continue reading 54 Comments » Read more

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