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Rheumatoid arthritis public service announcement video

RA Public Service Announcement Video

Kelly Young 1 Comment ,
Announcing a new RA public service announcement Please watch my second-ever RA public service announcement, below! My mom always said to “make it short and sweet”—well this is short and serious. But hopefully you’ll feel the passion of my heart: 1) For people to recognize rheumatoid disease is more than arthritis—it’s a serious disease. 2) For people to recognize early testing...Continue reading      1 Comment » Read more

An Absolutely Vile Disease, the “a” Word, & New RA Animated Video

Kelly Young 17 Comments , ,
RA Veterans animated video Last year, I got a call from a woman named Courtney floating a trial balloon on creating an animated video for RA patients. After some discussion, I agreed it could be interesting, but with a few “ifs” like if it’s positive, honest and realistic, and if its not insulting to patients. Courtney’s...Continue reading      17 Comments » Read more

An Event Especially for Gathering Encouragement

Kelly Young 15 Comments , ,
You’re not alone If I’ve said it once, I’ve said it a thousand times, “You’re not alone” with this disease. So many of us share experiences. And yet, we hear frequently about the loneliness that Rheumatoid disease creates. Community is a tremendous remedy and it’s what brings many warriors here time after time. Hearing “you’re not...Continue reading      15 Comments » Read more

What Drives Patients to Get Engaged in Healthcare?

Kelly Young 15 Comments , ,
Did you ever forget what you were about to say? Last year when I testified at an FDA advisory hearing, I couldn’t even remember my name. I swear I could feel my heart leaping six inches in front of me. It was unexpected because I’d recited my five-minute speech dozens of times from memory. How...Continue reading      15 Comments » Read more

Invisible Illness Awareness Video

Kelly Young 6 Comments , , ,
Positively Real: Keeping the Discussion Real without Sugar Coating Everyone with an “invisible illness” owes such a debt to Lisa Copen, founder of Invisible Illness Awareness Week. She has done so much to provide support to people with “invisible illnesses” like Rheumatoid disease. I don’t know if she coined that term, but she certainly popularized it. This...Continue reading      6 Comments » Read more

Johnson & Johnson RA Warrior YouTube Video

Kelly Young 35 Comments ,
Inside story of a new YouTube video about RA Warrior A few weeks ago, a Johnson & Johnson video team visited our house. See my sons spoofing with the big video camera? The things that captivate teenagers, right? Anyway, it was hard to explain to the Johnson & Johnson folks why it was difficult to have visitors...Continue reading      35 Comments » Read more
7 Atypical Rheumatoid Arthritis

7 Atypical Rheumatoid Arthritis Effects Are Actually Typical

Kelly Young 78 Comments , ,
What can we say about atypical Rheumatoid Arthritis? (UPDATED) Our similarities & differences with Rheumatoid Arthritis are fascinating! I sure wished I had a dollar for every time a patient told me his / her doctor said he / she has atypical Rheumatoid Arthritis! And some actually have quite common symptoms! Here are 7 things that are often said...Continue reading      78 Comments » Read more

You’re Cordially Invited to Make SWEET MEMORIES with Other Warriors & Friends! [video]

Kelly Young 13 Comments , ,
Our friends at Arthritis Introspective (AI) do so much practical work to help people living with diseases like RA (and adult JRA) to connect for in-person support. Many of the groups listed on our own Local Rheumatoid Arthritis Support page are affiliated with AI, who assists local support groups in various ways. It has been...Continue reading      13 Comments » Read more

Mayo Clinic Video Interview: Patients at ACR Scientific Meeting

Kelly Young 11 Comments , ,
Some of you may be puzzled about what I’m doing in Chicago. So here’s a brief summary and a video interview with Mayo Clinic News Blog telling why patients are interested in a scientific meeting like the ACR Scientific Meeting. What happens at the American College of Rheumatology Scientific Meeting? “The ACR/ARHP Annual Scientific Meeting will be...Continue reading      11 Comments » Read more

Video: Rheumatoid Patient Foundation Gives RA Patients a Voice

Kelly Young 1 Comment , ,
This week, the Rheumatoid Patient Foundation (RPF) conducts our first exhibit at the American College of Rheumatology (ACR) Annual Scientific Meeting. Beginning tomorrow, we’ll present our video The Faces of Rheumatoid Disease to doctors, researchers, and industry attending the ACR meeting. We’ve also prepared other materials that we’ll be sharing with you in the coming...Continue reading      1 Comment » Read more

Video Blog: Two Essentials with a Rheumatoid Arthritis Diagnosis

Kelly Young 24 Comments , ,
What do you say to someone diagnosed with Rheumatoid Arthritis? If I could meet to every person diagnosed with Rheumatoid Arthritis, I’d encourage them to Expect the best from treatments; Read all of their medical records; Keep up on research. I’d also wish for them that they find doctors who listen well! What else is indispensible with a Rheumatoid Arthritis diagnosis? Watch...Continue reading      24 Comments » Read more

Behind the Scenes Video: Patient at a Social Media Conference

Kelly Young 4 Comments , , ,
Telling it like it is. On camera. It’s uncomfortable. It's very hard to talk about harsh pain. Why does pain seem so embarrassing? I even gave birth in quiet agony a few times because of that. 3 aspects of RA that are difficult to discuss It’s hard to talk about pain, so most of us are pretty private...Continue reading      4 Comments » Read more
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