Seronegative Rheumatoid Arthritis Is Hazy

What does seronegative rheumatoid arthritis mean? Seronegative rheumatoid arthritis (RA) is a topic that brings a lot of confusion for the public, people living with rheumatoid disease, and sometimes even medical professionals. Put simply, seronegative is a term used to when there is an absence of an antibody that is usually found with a certain disease.1 The...Continue reading      14 Comments » Read more

We Must Celebrate! Your Voice Was Heard, Despite My Limitations

Months – actually years – of my life went into the last couple of weeks. It’s a peculiar feeling when it all comes together in a moment. While there are important points to dig into from the annual ACR meeting, we should pause for a moment to reflect on where we are. (A recent Spear...Continue reading      26 Comments » Read more

Sleepless in San Diego

Each fall, Katie Beth and I travel to wherever the American College of Rheumatology (ACR) holds its annual scientific meeting. Last night, we arrived in San Diego. 1) This is huge. The Rheumatoid Patient Foundation (RPF) is presenting an exhibit in the Exhibit Hall. 2) I’m speaking with two other RPF volunteers in a session on Tuesday...Continue reading      12 Comments » Read more

Gatecrashing: The Story of Rheumatoid Patients at the ACR Meeting

It’s bedtime here. How about a bedtime story? Once upon a time in Philadelphia- ACR 2009 After being diagnosed with Rheumatoid Arthritis in 2006, I read some articles from reliable hospitals like Johns Hopkins. Sometimes I looked up symptoms online or read patient comments on large websites like Health Central or WebMD. Eventually I entered discussions with...Continue reading      24 Comments » Read more

Where the Rubber Meets the Road or What If Only the Cancer in Dave’s Kidneys Was Treated?

Measuring disease activity: where rubber meets the road Recently a rheumatologist friend told me of needing to prove ACR20 (a measure of 20 percent improvement) in order for a patient to continue receiving a biologic treatment. I don’t know whether it was private or government insurance, but something bothered me about it. Of course, 20 percent improvement...Continue reading      21 Comments » Read more

Ultrasound for Seeing Invisible Inflammation in Rheumatoid Patients

I was a bit surprised at the tremendous response to my last post on trying to take the gloves off to talk about some typical things experienced with Rheumatoid disease. Several important conversations arose on the comments page. I always say the comments on this site are another whole blog. I’m blessed with such compassionate...Continue reading      21 Comments » Read more

Helping the Healthcare World Understand Rheumatoid Disease

The “don’t-miss-the-plane” rush is on. My suitcase is half packed. I have a fever and I’m not washing my hair today because my wrist can’t muster it. Yet, I’m going to get on that plane to D.C.! Why all this bother? I’ve received messages from thousands of precious people telling their stories and how this website...Continue reading      23 Comments » Read more

Significant Numbers of RA Patients Don’t Receive Recommended Care

Understanding the reality of the disease is only half the battle We are making progress. Although there’s still a long way to go, patients are playing a part of advancements toward more complete understanding of Rheumatoid Arthritis as a disease. We might suppose that once RA is more widely understood to be a systemic disease, it...Continue reading      24 Comments » Read more

Digging in to the 2011 American College of Rheumatology Scientific Meeting

As I returned from the 2010 American College of Rheumatology Scientific Meeting last year, I painted a picture for you of its significance and the impact it made on me. Those words are still a proper backdrop as we review the events of the 2011 meeting: Context, Care, & Complicated and I hope you’ll read...Continue reading      2 Comments » Read more

Update from Chicago!

It’s our last day in Chicago!  Katie Beth and I are going to be tourists for a half-day and then pack for an early flight. All day tomorrow we’ll be in transit. Here’s a quick update until I’m able to write more. The last couple of months have been spent in almost constant preparation for the...Continue reading      4 Comments » Read more

Mayo Clinic Video Interview: Patients at ACR Scientific Meeting

Some of you may be puzzled about what I’m doing in Chicago. So here’s a brief summary and a video interview with Mayo Clinic News Blog telling why patients are interested in a scientific meeting like the ACR Scientific Meeting. What happens at the American College of Rheumatology Scientific Meeting? “The ACR/ARHP Annual Scientific Meeting will be...Continue reading      11 Comments » Read more

Response to An Identity Crisis for RA by Dr. R. Franklin Adams

Recently, I read an article in The Rheumatologist (preceding a new PR campaign by the American College of Rheumatology), “An Identity Crisis for RA: A few suggestions to bring rheumatic disease the recognition and respect it deserves.” I strongly recommend that you read the article since I cannot quote it entirely here. It was written...Continue reading      55 Comments » Read more
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