Posts Tagged ‘American College of Rheumatology’

  • We Must Celebrate! Your Voice Was Heard, Despite My Limitations

    Months – actually years – of my life went into the last couple of weeks. It’s a peculiar feeling when it all comes together in a moment. While there are important points to dig into from the annual ACR meeting, we should pause for a moment to reflect on where we are. (A recent Spear […]

  • Sleepless in San Diego

    Each fall, Katie Beth and I travel to wherever the American College of Rheumatology (ACR) holds its annual scientific meeting. Last night, we arrived in San Diego. 1) This is huge. The Rheumatoid Patient Foundation (RPF) is presenting an exhibit in the Exhibit Hall. 2) I’m speaking with two other RPF volunteers in a session […]

  • Gatecrashing: The Story of Rheumatoid Patients at the ACR Meeting

    It’s bedtime here. How about a bedtime story? Once upon a time in Philadelphia- ACR 2009 After being diagnosed with Rheumatoid Arthritis in 2006, I read some articles from reliable hospitals like Johns Hopkins. Sometimes I looked up symptoms online or read patient comments on large websites like Health Central or WebMD. Eventually I entered […]

  • Where the Rubber Meets the Road or What If Only the Cancer in Dave’s Kidneys Was Treated?

    Measuring disease activity: where rubber meets the road Recently a rheumatologist friend told me of needing to prove ACR20 (a measure of 20 percent improvement) in order for a patient to continue receiving a biologic treatment. I don’t know whether it was private or government insurance, but something bothered me about it. Of course, 20 […]

  • Ultrasound for Seeing Invisible Inflammation in Rheumatoid Patients

    I was a bit surprised at the tremendous response to my last post on trying to take the gloves off to talk about some typical things experienced with Rheumatoid disease. Several important conversations arose on the comments page. I always say the comments on this site are another whole blog. I’m blessed with such compassionate […]

  • Helping the Healthcare World Understand Rheumatoid Disease

    The “don’t-miss-the-plane” rush is on. My suitcase is half packed. I have a fever and I’m not washing my hair today because my wrist can’t muster it. Yet, I’m going to get on that plane to D.C.! Why all this bother? I’ve received messages from thousands of precious people telling their stories and how this […]

  • Significant Numbers of RA Patients Don’t Receive Recommended Care

    Understanding the reality of the disease is only half the battle We are making progress. Although there’s still a long way to go, patients are playing a part of advancements toward more complete understanding of Rheumatoid Arthritis as a disease. We might suppose that once RA is more widely understood to be a systemic disease, […]

  • Digging in to the 2011 American College of Rheumatology Scientific Meeting

    As I returned from the 2010 American College of Rheumatology Scientific Meeting last year, I painted a picture for you of its significance and the impact it made on me. Those words are still a proper backdrop as we review the events of the 2011 meeting: Context, Care, & Complicated and I hope you’ll read […]

  • Update from Chicago!

    It’s our last day in Chicago!  Katie Beth and I are going to be tourists for a half-day and then pack for an early flight. All day tomorrow we’ll be in transit. Here’s a quick update until I’m able to write more. The last couple of months have been spent in almost constant preparation for […]

  • Mayo Clinic Video Interview: Patients at ACR Scientific Meeting

    Some of you may be puzzled about what I’m doing in Chicago. So here’s a brief summary and a video interview with Mayo Clinic News Blog telling why patients are interested in a scientific meeting like the ACR Scientific Meeting. What happens at the American College of Rheumatology Scientific Meeting? “The ACR/ARHP Annual Scientific Meeting […]

  • Response to An Identity Crisis for RA by Dr. R. Franklin Adams

    Recently, I read an article in The Rheumatologist (preceding a new PR campaign by the American College of Rheumatology), “An Identity Crisis for RA: A few suggestions to bring rheumatic disease the recognition and respect it deserves.” I strongly recommend that you read the article since I cannot quote it entirely here. It was written […]

  • New Way to Report Response in RA Clinical Trials?

    Untangling a possible replacement for the “familiar” ACR 20 describing treatment response in clinical trials for Rheumatoid Arthritis Special thanks to Jay Sprinkel for assistance with this post. Although he may be more known for the humor he provides to our Facebook group, Jay is a retired marine biologist who specializes in statistics. He is […]

Would You Like Free Email Updates?
Stay in touch with RA Warrior.
We respect your privacy. Your email address will never be shared.