Published Articles by Kelly
850+ pages on the website Rheumatoid Arthritis Warrior, and the Rheumatoid Patient Foundation.
US opioid epidemic: it’s harder to get the painkillers I legitimately need. British Medical Journal, BMJ 2017;356:j784, Feb 14, 2017. Click here to read.
Patient Survey Regarding Utility Of The Health Assessment Questionnaire Reveals An Unrecognized Aspect Of Disease Activity In Rheumatoid Arthritis: Consequences Of Physical Activity, poster abstract, American College of Rheumatology annual scientific meeting, Oct 29, 2013. Click here to download.
Patient Survey Challenges Conventional Notions Regarding Symptoms and Experiences Of People Living With Rheumatoid Arthritis, poster abstract, American College of Rheumatology annual scientific meeting, Oct 29, 2013. Click here to download.
14-3-3 eta seropositivity marks more severe disease and titres Inform Response to Therapy, also in patients with lower CRP, co-author, poster abstract. Annual European Congress of Rheumatology, June 2013. Click here to view.
Doctors’ understanding of rheumatoid disease does not align with patients’ experiences. British Medical Journal, May 14, 2013. Click here to read.
e-Patients in Twitter Hashtag Communities. Journal of Participatory Medicine. May 29, 2013. Click here to read.
12 Key Facts about Infusion Reactions, Spondylitis Association of America News Magazine Spring 2013 issue. Click here to read.
Policy Issues: PCORI Workshop Post 1: Kelly Young (@RAWARRIOR), 2012 E-Patients.net. Click here to read.
10 Things Every RA Patient Should Know, interview with Mia James in Women Magazine, Fall 2012. Click here to read.
Patient Advocates Attend American Academy of Nurse Practitioners Conference, 2012 WEGO Health. Click here to read.
The Valuable Knowledge of Patients with Diseases Like RA, 2012 Prepared Patient Forum. Click here to read.
The Three-Fold Cord of Rheumatology, 2012 The Rheumatologist – article. Click here to read.
Present, Patient, and Accounted for: How and Why Patients Are Present at Scientific Meetings of the American College of Rheumatology, Journal of Participatory Medicine – Narrative, 2012. Click to read.
Building Your Facebook Community with Keep Calm and Carry On, chapter in Mayo Clinic Center for Social Media book Bringing the Social Media Revolution to Health Care, 2012.
Novelty and Hope Make News at the ACR Scientific Meeting, 2011 Pharmaphorum. Click to read.
Evidenced-based Medicine or Easy-bake Oven: Tension Between Evidence and Reality, 2011 Health Behavior News Service, Prepared Patient Forum
The Unwilling E-Patient: Learning to use my mother-of-a-patient voice 2010, E-Patients.net. Click to read.
Cricoarytenoid Arthritis in Rheumatoid Arthritis Patients, 2009 Healthcare Professionals Live. Click to read.
Early Treatment of Rheumatoid Arthritis Is an Elusive Goal, 2009 Healthcare Professionals Live. Click to read.
Can Doctors and Patients Be Partners? 2010 Howard Luks MD. Click to read.
Healthcare & Social Media: Are e-Patients Crossing the Line? 2010 Howard Luks MD. Click to read.
Healthcare and Social Media: How Rheumatoid Arthritis Patients Began a Movement, 2010 Howard Luks MD. Click to read.
Is That Your Final Answer? …or Replying to Misconceptions, Florida Association for Healthcare Quality – newsletter, 2011
Awareness of Rheumatoid Arthritis (RA) Has a Great Impact on Patients, Florida Association for Healthcare Quality – 2010 Read here.
Response to an Identity Crisis for RA by Dr. R. Franklin Adams, 2011 The Rheumatologist
Four Courses of Rheumatoid Arthritis Disease Progression, Rheumatoid Patient Foundation – poster
Variable Efficacy of Rheumatoid Arthritis Treatments, Rheumatoid Patient Foundation – poster
Why I Chose to Disclose about Rheumatoid Arthritis, WEGO Health
What is Mondini Syndrome? My Two Cases of Mysterious Childhood Deafness, WEGO Health
Pain, Perception, and #Pinkification, (parts 1-3) WEGO Health
December Blog Carnival: Top 10 of 2010! WEGO Health
January Blog Carnival: Fortune Cookies, WEGO Health
How T-shirts Helped Create a Community, Swaglove (Printfection) – guest blog
Surgical Tagging: The Road Less Traveled, Mayo Clinic Center for Social Media
Principles and Strategies for Creating a Valuable Facebook Page, Mayo Clinic Center for Social Media
The Boogie Man Is Not on Social Media! 2011 Mayo Clinic Social Media Health Residency Handbook
How Much Does Patient Testimony Matter? 2010 Mamapedia. Click to read.
Beyond Similarity: Patient Perspectives on Biosimilars. Biosimilar Summit, Lynx Group, 2016 – session
Importance of Patient-Centered Outcomes from the Patients’ Viewpoint. American College of Rheumatology Clinical Research Conference, Nov 2014 – invited talk.
Through the Looking Glass: A World Altered by Rheumatoid. Roche Digital Summit, Mar 2014 – keynote speaker.
Engaging Patients as Partners. American College of Rheumatology annual scientific meeting, Oct 29, 2013 – session speaker.
Supporting Patient Warriors. Pharmacist Society of Wisconsin, Sept 2013 – keynote speaker.
Why RA is Rheumatoid Disease, Speaking of Health with Dr. B., Women’s Radio, radio interview, 2013.
The Extreme Sport of Fighting RA. Arthritis Introspective National Gathering, May 2013 – session speaker.
Dying patients in hospital, e-patients online. British Medical Journal – audio interview, April 2013. Click to listen to interview.
Social Media as a Tool for Change. Institute of Medicine: Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement – session speaker and panelist, 2013. Click to watch presentation. Click to watch discussion.
Doctor, patients: Rheumatoid arthritis is far more than joint pain. OnCentral: Southern California Public Radio interview, February 2013. Click to listen.
Research Done Differently: PCORI’s Approach to Patient-Centered Outcomes Research, Institute for Healthcare improvement 24th Annual National Forum, 2012 – session speaker.
Positively Real: Keeping the Topic of Illness Sweet without Sugar-coating, Invisible Illness Awareness Week Seminar – video interview, 2012. Click here to watch.
Wind Beneath Our Wings, How Awareness of the Patient Experience Improves Care, Rheumatology Nurses Society, 2012 – CME speaker.
The Value of Direct Patient Insights, Digital Pharma West, 2012 – session speaker and panel speaker.
Advocacy and RA, Speaking of Health with Dr. B., Women’s Radio, radio interview, 2012. Click to listen.
Patient Participation Improves Rheumatology Care, 2012 Arthritis Introspective Annual Gathering – session speaker.
Patient Participation in Action, 2012 Dave deBronkart’s E-Patient Bootcamp – speaker.
Being an Equipped Patient, 2012 Arthritis Foundation Tampa chapter – keynote speaker.
National Public Radio Conversations on Healthcare – radio interview, 2011. Click to listen.
Patient Perspectives, Pharmaphorum – video interview, 2011. Click to listen.
Why Patients Are Interested in the ACR, Mayo Clinic Newsblog – video interview, 2011. Click to watch.
Optimizing Clinical Outcomes in Rheumatoid Arthritis: Strategies for Improving Adherence. Reactions from the Patient Perspective, CME Outfitters, 2011. Click to view.
Patient Input Is the Medicine Healthcare Needs, E-Patient Connections – speaker, 2011. Click to listen.
Use of Facebook for Health, Mayo Clinic Social Media Summit – presentation, 2011.
Understanding Rheumatoid Arthritis, KISS FM Seattle – radio interview with Jackie Nation, 2011. Click to listen.
Communications between Patient Communities & Pharma, Johnson & Johnson / WEGO Health panel – presenter and panelist, 2010.
Continuing Health Activism with Chronic Pain, WEGO Health live webinar– panelist, 2010.
Parenting with Chronic Illness, Invisible Illness Week webinar – panelist, 2009.
WebMD Ambassador Program – patient ambassador, 2009-2010.
RA Warrior YouTube channel, Video blogs and Public Service Announcements, 2010-2012. Click to view.