Communicating about RA Archives | Page 3 of 7 | Rheumatoid Arthritis Warrior

Lipstick & Luck: Feeling Fabulous with Rheumatoid Autoimmune Disease

If we try, will we feel fabulous with Rheumatoid Arthritis? Feeling and looking fabulous with RA sells well, but how much can lipstick help? Most people living with Rheumatoid Arthritis have felt the sting of someone suggesting we don’t need to be as sick if we would only try _____. Hearing this can seem harsh, especially...Continue reading      47 Comments » Read more

When Rheumatology Is Sexy

If medicine can be sexy the way a new car or an iPhone is, what about rheumatology? Is there anything desirable or exciting there? Possibly, according to rheumatologist Ronan Kavanagh who wrote “The sexiness and cool of rheumatology.” Mostly, rheumatologists examine things that healthy people look away from: disability, deformity, and pain. The father of modern...Continue reading      16 Comments » Read more

Is That Your Final Answer? …or Replying to Misconceptions

A day filled with misconceptions about Rheumatoid Arthritis / Disease I wrote this post weeks ago when it had just happened. I imagined responses that to misconceptions about rheumatoid arthritis are usually held back in polite conversation. Am I the only one who does that? What if it were a game show… It was a day filled...Continue reading      98 Comments » Read more

By the Way, I Have RA

I have written about the difficulty of disclosing about RA, especially at events like a Mayo Clinic Center Social Media conference. But we haven’t talked much about the other side: When we explain about RA, do people understand? Not so much. In a recent example, I went through three rounds of explanations about why I could...Continue reading      62 Comments » Read more

Living with (RA) Rheum Disease Is Already Multitasking

Where have you been girl? As this post goes up, I’m in a chair with an IV getting my second Rituxan IV infusion. It’s hard to write about myself, but I really need to keep you informed about what’s going on. Couldn’t someone else report about it for me? None of my kids were willing to...Continue reading      18 Comments » Read more

Can We Find Similarities with Rheumatoid Arthritis?

Very often with Rheumatoid Arthritis, we emphasize our differences. It helps the newly diagnosed to get over the shock of living with a new symptom every day. It helps explain a fickle disease that is quite unreasonable and undemocratic in its attacks. But what about our similarities? Common threads and similarities in Rheumatoid Arthritis As Bob...Continue reading      53 Comments » Read more

Will Venus Williams’ Sjögren’s Syndrome Help RA?

We had an interesting conversation on Facebook yesterday about the Venus Williams' Sjögren’s syndrome diagnosis (actually 5 of them by day’s end). Some were wondering whether the diagnosis of another famous person with an autoimmune (AI) disease will help bring awareness for RA. Probably not. Why not? Celebrities have been diagnosed with RA (and PsA) and...Continue reading      29 Comments » Read more
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