Rheumatoid Arthritis awareness Archives | Page 5 of 13 | Rheumatoid Arthritis Warrior

Rheumatoid Arthritis awareness

The Powerful Health Care Role No One Really Wants: Being a Patient

Kelly O'Neill 17 Comments , ,
The valuable knowledge of patients with diseases like RA Today, Katie Beth and I flew home from San Francisco where I spoke three times this week: There was a presentation about the value of patient input with chronic conditions like rheumatoid disease, a panel discussion about e-patients and e-docs at Digital Pharma West, and an informal address...Continue reading      17 Comments » Read more
KB_Washington_Monument

Mind-boggling! – Aftermath of Tofacitinib FDA Hearing Part 2

Kelly O'Neill 14 Comments , , ,
After the FDA Arthritis Advisory Committee (AAC) hearing earlier this month for Pfizer’s new oral treatment for RA,  tofacitinib, we looked at the four distinct votes of the AAC and some of the ways the media responded to them. They ranged from serious to pitiful to laughable. But there’s more.     3 news bytes that might...Continue reading      14 Comments » Read more
20 Replies to Things Not to Say to an RA Patient

20 Replies to Things Not to Say to an RA Patient

Kelly O'Neill 113 Comments , ,
Replies to things not to say to an RA patient (UPDATED) Every day, I hear from many people living with Rheumatoid Disease. This post about things not to say to an RA patient was a response to a request from a dear reader about one of the most popular posts on the blog, 20 Things Not...Continue reading      113 Comments » Read more

Aftermath of the FDA Vote on Pfizer’s RA JAK Inhibitor, Tofacitinib

Kelly O'Neill 44 Comments , , ,
After the tofacitinib FDA hearing, the votes are in, false perceptions persist, and patients still need relief. Some estimate that tofacitinib could be approved by the US FDA within a few months after mixed votes and mostly inaccurate press reports. It’s fitting this discussion takes place as rawarrior.com begins its fourth year of reporting the patient...Continue reading      44 Comments » Read more

Consumer Reports’ Absurd Best Buy Rheumatoid Arthritis Drug List

Kelly O'Neill 47 Comments , ,
RESPONSE TO Consumer Reports Health Best Buy Drugs; Evaluating Prescription Drugs Used to Treat the Symptoms of Rheumatoid Arthritis: The Biologics Warrior to Washington: Next week, I’m going to D.C. to make an oral presentation to the “Arthritis Advisory Committee” at a hearing about a new Rheumatoid Arthritis treatment, tofacitinib. I want you to know why...Continue reading      47 Comments » Read more

The Confusion of a Smile

Kelly O'Neill 44 Comments , ,
If you have RA, you’ll probably just nod your head as I share this private experience. If not, you may just scratch you head: huh? It’s all good, right? Well, mostly… I mean, a lot of living with RA is actually hard or disagreeable, but we smile anyway. What are you gonna do, right? I smile a...Continue reading      44 Comments » Read more

5 Reasons Rheumatoid Disease Is a Better Term than Rheumatoid Arthritis

Kelly O'Neill 19 Comments , ,
The first blog post of this year told how I’ve come to prefer the term Rheumatoid Disease to Rheumatoid Arthritis. The response?  Within 2 days in Facebook-land, there were 294 Shares, 583 Likes, and 128 comments. There are now 1,000 Likes, 500 re-Tweets, and 80 blog comments. That’s people voting with their mouse: Yes. But as...Continue reading      19 Comments » Read more
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