Rheumatoid Patient Foundation Archives | Page 3 of 5 | Rheumatoid Arthritis Warrior

Rheumatoid Patient Foundation

Win a Pentax Camera! While You Spread RA / RD Awareness!

Kelly O'Neill 1 Comment ,
The PRIZES! FIRST Prize: Pentax Optio RS1500 Digital Camera 2 SECOND prizes: one of 2 $25 iTunes Gift Cards The CONTEST! What’s the contest about? For years, people who live with Rheumatoid Disease (PRD) have suffered because of confusion that RA is just a type of arthritis. Extremely low research dollars for RA Need for accommodations in employment situations Lack of understanding...Continue reading      1 Comment » Read more

We’re Warriors So Fighting On Is Just What We Do

Kelly O'Neill 14 Comments , , , ,
August. We were exhausted and happy after a successful exhibit at the Rheumatology Nurses Society annual meeting. Five minutes later, I realized I was still buried in Rheumatoid Patient Foundation (RPF) projects preparations for the RPF’s next exhibit at the American College of Rheumatology Scientific Meeting in Washington, D.C. in November. And, then the hard drive...Continue reading      14 Comments » Read more

Sample Size: 1 of Every 100 RA Patients in U.S. Are Members of Our Facebook Page

Kelly O'Neill 20 Comments , , ,
Transparent objectives of a patient community As the author of this blog, I’m completely transparent about why I’m here: Stunned at learning what so many RA patients endure, I committed to doing everything possible to change that. The 3 specific goals have been the same for 3.5 years on the About Page, as created during the first...Continue reading      20 Comments » Read more

Mayo Clinic Contest! 5 Ways Patients Can Make a Difference!

Kelly O'Neill 9 Comments ,
1) Rheumatology patients are teaching medical students in Britain! The biggest difference patients can make is to help the medical profession understand their conditions better. Patient instructors in rheumatology are instructing undergraduate and postgraduate medical students are viewed as “an excellent, relatively under-utilised, resource.” “They are especially effective at enhancing students' understanding of the impact of...Continue reading      9 Comments » Read more

Rheumatoid Arthritis Awareness Is about Medical Care, Not Sympathy

Kelly O'Neill 18 Comments , ,
My Bear had an appointment to see his terrific pediatrician today again about his swollen finger joints. She was home with a cold, but we waited an hour to see an alternate. The fellow didn’t seem to welcome my questions or opinions. I was in the familiar context of my pediatrician’s office – 6 years with...Continue reading      18 Comments » Read more

We Refuse to Be Mislabeled: Updating Rheumatoid Arthritis (RA) to Rheumatoid Disease (RD)

Kelly O'Neill 100 Comments , ,
Three years ago, I saw Rheumatoid Arthritis (RA) patients insisting that the name of the disease needed to be changed. They argued that until the “a” word is removed from the name, confusion about the disease will continue. When asked, I said that we could not wait around for that to happen; let’s work for...Continue reading      100 Comments » Read more

Hoping Really Hard: 2 Battles I Fight to Win

Kelly O'Neill 20 Comments ,
Two things I’ve been hoping for with all my heart, so I’m doing all I can If you’ve been reading my blog long, you know I talk about hope as a verb – something you do. Hope is not something that some lucky people just have. When you’re actively hoping, you’re probably doing as much as...Continue reading      20 Comments » Read more
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