#AloneTogether Hashtag

April 17, 2020April 17, 2020 Kelly O'Neill 4 Comments Encouragement for living with RA, Health care social media

Realizing everyone else is #AloneTogether too My eyes filled with tears as I noticed the current hashtags on Instagram a couple weeks ago. Hashtags are the butt of many jokes, but we can’t deny they’re a shortcut to a longer story. After all, I did start the hashtag #rheum back in the hashtag heyday, in order...Continue reading 4 Comments » Read more

Do Not Kiss Me

December 5, 2012May 14, 2018 Kelly O'Neill 81 Comments Health care social media, Physician-patient discordance / disagreement, Talking to doctors

Do not kiss me because I have a suppressed immune system… In “Kiss My…” a physician blog in Rheumatology News, Dr. Larry Greenbaum wrote, “I charged him level 5 for taking so much of my time, for bad-mouthing his previous doctors, and for incessant whining.” Noontime Monday I clicked into the Facebook (FB) feed for the RA...Continue reading 81 Comments » Read more

Sample Size: 1 of Every 100 RA Patients in U.S. Are Members of Our Facebook Page

August 17, 2012May 14, 2018 Kelly O'Neill 20 Comments e-patient, Health care social media, Patient advocacy, Rheumatoid Patient Foundation

Transparent objectives of a patient community As the author of this blog, I’m completely transparent about why I’m here: Stunned at learning what so many RA patients endure, I committed to doing everything possible to change that. The 3 specific goals have been the same for 3.5 years on the About Page, as created during the first...Continue reading 20 Comments » Read more

Mayo Clinic Contest! 5 Ways Patients Can Make a Difference!

July 6, 2012May 14, 2018 Kelly O'Neill 9 Comments Health care social media, Rheumatoid Patient Foundation

1) Rheumatology patients are teaching medical students in Britain! The biggest difference patients can make is to help the medical profession understand their conditions better. Patient instructors in rheumatology are instructing undergraduate and postgraduate medical students are viewed as “an excellent, relatively under-utilised, resource.” “They are especially effective at enhancing students' understanding of the impact of...Continue reading 9 Comments » Read more

Energizing E-patient Engagement – Collaborations that Count

June 26, 2012May 14, 2018 Kelly O'Neill 6 Comments e-patient, Health care social media, Patient advocacy

This blog is not about me because it’s always been much more than a way to share my own journey. This blog tells OUR story – the true story of Rheumatoid disease, the people who live with it, the fight to cure it, and the process that patients have entered to participate in improving our...Continue reading 6 Comments » Read more

Tweeting an EMG: Another Way to Research Pain

January 11, 2012May 15, 2018 Kelly O'Neill 24 Comments Health care social media, Living with chronic illness like RA, Pain Tolerance / RA Stoicism

Really important stuff that I read last week, while researching pain scales, will not be on the blog today. I’ve been thinking a lot about how differently a disease affects us and whether we can honestly communicate about that. When Dana asked for resolutions at the weekly #HCSM (healthcare communications in social media) chat, I said I...Continue reading 24 Comments » Read more

Fears of Social Media: a Pre-Halloween Boogie Man Post

October 19, 2011May 15, 2018 Kelly O'Neill 3 Comments Health care social media, Humor with RA

I’m hoping this happy little post might help anyone who is on the fence about blogging or using other forms of internet 2.0 (meaning “interactive websites”) to communicate about healthcare. This article is part of an Advisory Board essay that I contributed to the Mayo Clinic Center for Social media to be used in a...Continue reading 3 Comments » Read more

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