Health care social media Archives | Page 2 of 9 | Rheumatoid Arthritis Warrior

Fears of Social Media: a Pre-Halloween Boogie Man Post

I’m hoping this happy little post might help anyone who is on the fence about blogging or using other forms of internet 2.0 (meaning “interactive websites”) to communicate about healthcare. This article is part of an Advisory Board essay that I contributed to the Mayo Clinic Center for Social media to be used in a...Continue reading      3 Comments » Read more

Positive Signs for Rheum Patient Activism

Seeing is believing: rheum patient activism Last Friday, a meeting of the Emirates Society for Rheumatology (ESR) in Abu Dhabi heard a presentation from Katrina Thornley who has had Juvenile Rheumatoid Arthritis (JRA) for 27 years (since age 2). Dr. Mustafa Al Maini, President of the ESR, comparable to our ACR (American College of Rheumatology), called...Continue reading      4 Comments » Read more

Rheumatoid Arthritis Swelling, Take Two

Rheumatoid Arthritis Swelling (UPDATED 2016) In honor of the blog’s 2nd birthday, let’s consider some issues that have been significant over the last two years. Today we’ll consider Rheumatoid Arthritis swelling. This may be blunt. More like a frying pan than a sword. Talking turkey on Rheumatoid Arthritis swelling A couple of years ago my kind-but-clueless-what-to-do-next (her word)...Continue reading      152 Comments » Read more

Reliable Sources: Orencia Cough Side Effect & Notions of e-Patients

If I cited a percentage of patients who get a cough from Orencia, then I’d quote a source – probably a clinical trial. However, if I merely say, as a patient, that Orencia gave me a cough, then that is a firsthand experience and that’s another type of credible source for other patients. Diabetes blogger Kelly...Continue reading      62 Comments » Read more

Alice Goes to Jacksonville: Mayo Clinic Center for Social Media

What’s the Mayo Clinic Social Media Health Network? I joked a lot about Alice in Wonderland this week as Katie Beth and I traveled to Jacksonville for the first meeting of the Advisory Board for the Mayo Clinic Center for Social Media (MCCSM). It was combined with a conference for members of Mayo Clinic’s new Social...Continue reading      11 Comments » Read more
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