Physician-patient discordance / disagreement Archives | Rheumatoid Arthritis Warrior

5 RA Facts Everyone Needs to Know

January 23, 2017October 5, 2019 Kelly O'Neill 18 Comments Communicating about RA, Physician-patient discordance / disagreement, Unrelenting RA - Persistent disease

Driven to uncover RA facts My search for facts about Rheumatoid Arthritis (RA) led me to build this website. So many questions. So much misinformation, blame, and confusion out there. It all contributed to my passion for uncovering RA facts and making them clear. I didn’t feel ready when I started writing this blog in 2009. There...Continue reading 18 Comments » Read more

Remaining Pain with Rheumatoid Arthritis Treatment

November 26, 2013May 14, 2018 Kelly O'Neill 30 Comments Methotrexate, Physician-patient discordance / disagreement, Research on Rheumatoid Arthritis, Unrelenting RA - Persistent disease

A common problem: remaining pain with Rheumatoid Arthritis Remaining pain with Rheumatoid Arthritis (RA) has been a topic on RAW since 2009. We've discussed how people manage the common “leftover” symptoms such pain, fatigue, and stiffness while being treated for rheumatoid disease. Leftover or remaining pain is the subject of an interesting abstract reported at the recent...Continue reading 30 Comments » Read more

Medscape Symposium Reveals Attitudes #Rheum Patients Encounter

November 25, 2013May 14, 2018 Kelly O'Neill 20 Comments Physician-patient discordance / disagreement, Talking to doctors

Recently, we looked at a new report showing machines used to perform musculoskeletal ultrasound (MSUS) vary considerably in ability to detect inflammation, and warning about the use of MSUS in treatment decisions when the machines are not yet accuracy rated. We know that Patient reported outcome measures (PROMs) predict prognosis in Rheumatoid Disease (RD), but...Continue reading 20 Comments » Read more

Could Ultrasound Prevent Rheumatology Patients from Receiving Disease Treatments?

November 13, 2013May 14, 2018 Kelly O'Neill 12 Comments Measuring rheumatoid disease activity, musculoskeletal ultrasound (MSUS), Physician-patient discordance / disagreement

This is the 10th in a series on musculoskeletal ultrasound use in people living with Rheumatoid Disease (PRD). This is a critical topic for PRD that could have enormous impact on clinical care – positively or negatively – in light of results from two recent studies. Musculoskeletal ultrasound can help “see” invisible disease activity Musculoskeletal ultrasound (MSUS)...Continue reading 12 Comments » Read more

Disparity Between Rheumatoid Arthritis Patients & Doctors over Disease Activity

August 3, 2012May 14, 2018 Kelly O'Neill 42 Comments Measuring rheumatoid disease activity, Physician-patient discordance / disagreement, Talking to doctors

Will one more RA disparity study make a difference for patients? Discrepancy & Rheumatoid Arthritis: inseparable as thunder & lightning Discrepancy. A word I probably used three times during the first four decades of my life. And then came Rheumatoid Disease. This word is the shortest explanation for the reason RA Warrior exists. I was stunned by the...Continue reading 42 Comments » Read more

Would Relying on Patient Generated Data Make a Difference?

April 16, 2010May 15, 2018 Kelly O'Neill 10 Comments Patient reported outcome measure, Physician-patient discordance / disagreement, Talking to doctors

Discrepancy between patient generated data and clinician reported data Recently on the blog, I mentioned an oft-quoted study which suggests that the disease course for Rheumatoid Arthritis is becoming milder. Something puzzled me at the end of the report. The researchers noticed that Rheumatoid Arthritis patients’ ratings of their disease activity were opposite to that of...Continue reading 10 Comments » Read more