What difference do you think it would make if it Rheumatoid Disease were recognized for what it is by everyone – the general public, media and marketers, pharmaceutical companies, U.S. National Institutes of Health, the Centers for Disease Control and Prevention, the American College of Rheumatology, all healthcare professionals, your neighbors and your family…?
Rheumatoid Awareness Day, February 2nd, is a day of recognition of the reality that Rheumatoid Disease (RD) is a progressive inflammatory disease in need of greater research and improved treatments. RD causes damage to joint and organ tissues, resulting in severe pain, frequent disability, and increased mortality. Rheumatoid Awareness Day helps combat the misconception that Rheumatoid Disease is a form of arthritis. While joint inflammation is a prominent symptom of this disease for most patients, it’s a disservice to refer to RD as merely a type of arthritis. Patients in our community have often experienced systemic effects of the disease that confirm what research tells us. So…
- More research dollars?
- Earlier medical treatment?
- More appropriate accommodation?
WHAT WOULD RHEUMATOID DISEASE AWARENESS MEAN TO YOU?
Tell the world your answer
- Share your answer in the comments box.
- Share this blog post on social media, along with your answer.
- Email this post to a friend, adding your comment (button below).
- Write a blog post about WHAT RHEUMATOID AWARENESS WOULD MEAN on your own blog.
#Rheum Blog Carnival
If you have a blog of any kind, you are invited to write a brief post to answer the question What Would Rheumatoid Awareness Mean? Put a link to this post in your blog post, and add a comment below to tell others about your blog. Patients and their families, caregivers, as well as industry and healthcare professionals are welcome to participate. I hope we hear a variety of voices in honor of Rheumatoid Awareness Day. On January 31, I’ll post summaries of all the blog posts, with links so you can visit them all.
Participate in Rheumatoid Awareness Day 2014
Click here for a list of 2014 Rheumatoid Awareness Day events on rheum4us.org. In 2013, people held local gatherings and fundraisers. Tens of thousands participated in live online events on social media. Others contacted local media or public officials for proclamations of Rheumatoid Awareness Day – click here for one story. Many donated to the Rheumatoid Patient Foundation (RPF). This year will bring another special matching grant for RPF donations, so you can contribute to that now if you’d like. If you do, I encourage you to share that with others too, since it might inspire them to get involved.
- Help spread awareness with a PBS NewsHour Twitter chat Thursday January 16 at 1pm EDT; I’ll be guest co-hosting. The hashtag to follow is #NewsHourChats.
- Get t-shirts or mugs, etc. to help spread awareness.
- Click to be counted by joining the Facebook event for Rheumatoid Awareness Day.
- Please feel free to save the images and use them in social media or your own website. There are other images available on rheum4us.org – click here.
MORE TO COME!
- 10 Common Rheumatoid Arthritis Myths
- Awareness Ribbon for Rheumatoid Arthritis, Finally
- 1st Rheumatoid Disease Awareness Day – Groundhog Day 2013
- The Invisible World of Rheumatoid Arthritis Speaks