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kelly once again a great article, thankyou so much for all your hard work on helping me understand my rheumatoid disease and being able to help educate family and friends have a some understanding of what l go through.
The most important thing to know is that
1) RAD attacks your whole body.
2) most of the damage is not visible
3) there is no cure
4) there is no pain relief that will leave you pain free
5) exhaustion is a major symptom
Hello Kelly, and thank you for your efforts. “Being forewarned is being forearmed,” and your articles help us frame questions for our doctors and more importantly, for ourselves. It’s easy to get into a mindframe of denial over how we feel. We “write off” new or nagging issues as being part of the RD picture. Last year brought hand involvement to the forefront for me. My specialist insists my right wrist pain is osteoarthritis, and recommended a steroid injection. I’m diabetic, and after exploring info and feedback on this option, decided to decline it. Cautious with pain meds, I found a homeopathic remedy that does give me relief from the wrist pain… Ruta Graveolens, common Rue. It’s a well-researched medicinal plant. The version I use is a small pellet you put under your tongue. (Rue can upset your tummy, but taking it sublingually bypasses the stomach.) I’ve found that taking it two or three times daily knock the pain back when my prescription meds wouldn’t touch it. My heart goes out to the folks who shared experiences on here. Gentle cyber hugs going out to all!
Your blood test doesn’t always show a positive RA factor eventhough you in fact do have RD. The outcome of the test can even change from one test to the next.
Also, Sed rate doesn’t reflect inflammation accurately.
1. Laughing is mandatory. Laughing at jokes, laughing at RD, laughing at life is the best thing I do.
2. Playing is essential for laughing.
Sometimes, my hands are in terrible pain- when there is NO swelling. Sometimes, my hands are swollen, look horrible, and I am not in pain.
My ankles are worse than my hands- by FAR.
I wish I could tell these smug Docs that think they know what I am feeling better than I do. I finally gave up on Rheumatologists. Many are jack*****. I have gone through 5 and been warned away from about 10 by other patients whose word I trust.
My GP can order anything I need. She LISTENS. I don’t need much, since I will not take pain pills.
Fatigue….. That’s the hard one for me. I’ve been diagnosed extremely early in the process and an not in the excruciating pain that many speak of, but I’m constantly exhausted. Being an active and involved teacher, parent, wife, this has been hard for me to get use to…..
I’m 11 years in with RA, and still it does not mess with my hands. I thank God all the time for this blessing. I was diagnosed with RA-Lung a year ago (Interstitial Lung Disease/Pulmonary Fibrosis) and they say I have just a few years left. Once RA hits the organs, the game changes, and its all down hill. But I’m keeping my good attitude!!! I won’t go down without a fight. But honestly, I’m getting tired of the fight. Good to see you back Kelly!!!
You should pay attention at the link between gluten intolerance/sensitivity and joint disease. My daughter has some arthritis simptoms, and searching through internet, I found that there is. I found on youtube a woman who cured her RA whith diet. And not just her. This gluten causes so many illnesses. I’ve never guessed…
I completely agree with this post! I remember that my diagnosis with RD was delayed for years because certain criteria were not seen when I visited a variety of doctors. It was so frustrating! I have recently been writing about my experiences with autoimmune diseases at
http://www.autoimmunediseaseliving.com
as a way to reach out to others with similar trials. It is so hard having a disease that is impossible for me to see past, and yet invisible to many of the people around me. I really appreciate the posts on this blog and the community of PRD here. It means so much to know we are not alone.
Hello Kelly,
These are great reminders and also great information to share with our loved ones who are supporting us through RA. I have been newly diagnosed after 5+ months of sudden and severe symptoms. I cannot tell you what a Godsend your website has been and I cannot express my thanks enough to you for what you do. I was feeling very scared and out of control and your website more than any other has helped me feel more ‘in control’ of my situation through education and by reading the experiences of those who share including you.
Thank you for your work and relentless efforts to bring more attention to this – even as you fight your own battle with it.
Jennifer
thank you so much Jennifer.
Thank you so much Kelly, for all of the hard work you do in this battle we must fight daily.
I am still not diagnosed with RD even though I have many signsof it, including horrible joint pain and swelling in my hands.
My last Dr appt I was told that my symptoms are “too vague”!
I am seeing a new Dr in March and I really pray she is up to date.
I’m so happy to have found you and all the great information you provide!
((HUGS))
It’s very hard when family members say things like “it can’t be that bad”. I would never wish RD on anyone but sometimes you think that’s the only way they will ever understand. It hurts!! The pain I feel is very real.
Thanks Kelly for sharing so much information about RD.
Hi Kelly,
Thank you for your blog site! Great info. I have lived with RA as an athlete since 1983. Please visit my new blog site and current blog post, http://www.itsaboutthriving.com/ouch-6-lessons-worth-sharing/.
I would have to add that RA affects each us differently and each person responds uniquely to treatments. In solidarity, priscilla
Number 4, Number 4, Number 4
Unbelievable to me after 17 years of this disease.
Why do the professionals not listen to their patients??? No, my knees and elbows don’t look bad. YET. I am letting you know they are beginning to swell and crackle and pop and hurt.
PAY ATTENTION-I’ve been doing this a while.
Shear exhaustion is bad for me. Then hurting all over, especially back, wrists, hands and ankles. I can do light work and be fatigued.
I want to know more about how
RA affects internal organs