Email a copy of 'A World Where No One Suffers from Rheumatoid Disease' to a friend
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I have had JRA for 47 years and because of the
Deformities this disease has caused, all the doctors only give me pain medicines
When I do pass away is there anyway I can donate my body to research for Arthritis?
It would make me so happy to help the researchers find a cure or anything helpful to ease pain from this horrible disease.
We have been asked this question at RPF before and our response to this is part of a larger program we are working on. If you like Jane, I can keep your email on a list for when we have more information for you.
i think we need some very vocal celebrities to take this on – they need to come out of the closet so to speak on this illness – Aida Turturro (Sopranos) and Kathleen Turner are 2 that are still alive and known to be suffering from RA. They can garner public sympathy that translates into money!
I just signed-up for individual membership with the Rheumatoid Patient Foundation and wanted to do so before the end of the year. I finally have some income so can afford the $25.00. My challenge is for at least 10 people who read this to sign-up before January 1, 2013. Please post when you’ve signed-up. Membership is $25.00 and can be paid online. I imagine Kelly doesn’t mind if I promote the organization : ) http://rheum4us.org/become-a-member/individual-membership/
I was diagnosed with RA this year 2012. I am a 73 year old woman. Most people do not have a clue about the seriousness
of RA. I was one of those people. Now I know.
I just recently came upon this website. Thank you for all of the honest, informative and caring posts. I have had RA for 6 yrs now. I was very lucky it was found early. I am on my 3rd biologic. So far so good. I am going through a complete hysterectomy next week and have been off the Actemra for 2 months. Needless to say, my body is letting me know. It is true people do not understand and I have lost several friends because they they think I am just a moaner. I keep up my full time job and take care of my family. I began water aerobics over a year ago and it has been a life saver. This is my one thing I selfishly keep doing. I have lost some weight and plenty more to go. I have learned to be my best friend and be with people who I know somewhat understand and yes I keep my complaints to the very minimum and when I am hurting, I cancel plans. When I really hurt I get down. I do my best to pick myself up and keep going. It is not easy sometimes. My rheumy is OK. But, he is one of those physicians who feel patients should not see their blood work results and just trust his judgement. We have reached a middle ground due to some discussions. I would like to say to everyone dealing with RA, take care of yourself, rest when you have to and don’t worry about those who do not understand. You know how you feel and remember this disease is not for the weak. Visit a website such as this to know you are not alone. Bless all of you! Lynn
Kelly, Thanks for the post. I deal with people who have rheumatoid arthritis and have to apply for SSD benefits. Seeing the trouble that these individuals go through, I think more needs to be done to improve the rate of remission of this disease.
Ram
Social Security Disability Help