Book review: What to Do When the Doctor Says Its Rheumatoid Arthritis

What to Do When the Doctor Says Its Rheumatoid Arthritis

A primer on Rheumatoid Disease by Harry D Fischer, MD and Winnie Yu

Book review - What to Do When the Doctor Says Its Rheumatoid ArthritisA Rheumatoid Arthritis information primer of sorts – What to Do When the Doctor Says Its Rheumatoid Arthritis is the best primer on Rheumatoid Arthritis that I have seen. I wish I’d read it before I was diagnosed. Although I doubt I would have understood RA the way that I do now, it would have been an asset in navigating that first year.

Don’t tell anyone my secret: Since I hate to be negative, I have returned most RA books to the library un-reviewed. I loved them that much.

Included in What to Do When the Doctor Says It’s Rheumatoid Arthritis are mini-primers on all of these juicy topics: anatomy of joints, the disease process of Rheumatoid Arthritis, information about pain relief, disease modifying medicines / DMARD’s, surgeries for RA, alternative treatments for RA, and emotional support needed for living with RA. They are easy to read.

A cool feature: each chapter ends with a profile page. They are like mini-blogs about real patients. The only thing better than those are real patient blogs.

Wisdom from Dr. Fischer about Rheumatoid Arthritis diagnosis

One particular statement in What to Do When the Doctor Says Its Rheumatoid Arthritis would be extremely valuable for rheumatologists to read. He elucidates the purpose of the American College of Rheumatology criteria which are frequently used for clinical Rheumatoid Arthritis diagnosis. ACR criteria can be helpful in making a diagnosis, though some doctors can detect RA even if a patient doesn’t fully meet these guidelines… In fact, the ACR originally created the criteria to provide uniform research standards…”

A couple of useful tips for living with Rheumatoid Arthritis

  • Dr. Fisher suggests various specialists which will probably be needed to facilitate the treatment of Rheumatoid Arthritis such as a good pharmacist and ophthalmologist.
  • He says you should get copies of reports from specialists that you see for RA. (I say get them for all docs, but good for him anyway!) Don’t forget labs and hospitalizations in the RA volume that you are compiling.
  • He includes a few tips for managing life with the chronic pain, fatigue, and disability of Rheumatoid Arthritis. I felt he understood our plight somewhat. However, when you are in too much pain to dress yourself, “Avoid ironing” only goes so far.
  • Eat as well as possible.
  • This is the first RA book I have seen with a section on the importance of rest! On page 103, the doctor explains that patients may need 10 hours of rest while most people need 8 hours. He also recommends naps.

The inevitable topic: Exercise and RA

Of course, the inevitable topic is mentioned. Page 95: “Gradually, medical experts began to experiment with exercise in patients whose RA was under control. Their research found that not only could these patients do strengthening exercises, but they also actually derived a lot of benefits from movement… At the same time, it is important to rest during a flare up and to help your joints stabilize… Every patient is different. Some may be able to do more. Others may require more rest.”

I wish everyone were so reasonable. Did you notice these stipulations: “whose RA is under control,” “rest during flare,” and “every patient is different”? This is the kind of logical thinking which would lead one to say something like this about Rheumatoid Arthritis and exercise: “If you can, you should; if you can’t, you shouldn’t.”

My objection with this book

Too many times, the author’s tone reminded me that the he does not have RA. Too many times, the expression was used “aches and pains” of Rheumatoid Arthritis. There are much more clear descriptions of the sharp and horrific pain and disability of RA than “aches and pains.” That actually sounds more like what I had before RA.

Why write that we might “pass off achy joints as old age” on page 23? Rheumatoid Arthritis does not typically begin during old age; why would a younger person think that the pain is “old age”? Besides, if Rheumatoid Arthritis symptoms amounted to just “achy joints,” it would not be a big enough deal to inject oneself with methotrexate. I could put up with “achy joints.” Again, my complaint is that the author makes it too clear that he does not understand what it is like to live with the severe pain and disability of RA.

What to Do When the Doctor Says Its Rheumatoid Arthritis – Thumbs up

I have very few arguments with the authors. All of the information found in What to Do When the Doctor Says Its Rheumatoid Arthritis is available free online. But you would have to sift through mountains of baloney to find it. And the book is handy, reliable, and well presented. I recommend it.

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Kelly Young

Kelly Young is an advocate providing ways for patients to be better informed and have a greater voice in their healthcare. She is the president of the Rheumatoid Patient Foundation. Kelly received national acknowledgement with the 2011 WebMD Health Hero award. Through her writing, speaking, and use of social media, she is building a more accurate awareness of Rheumatoid disease aka Rheumatoid Arthritis (RA) geared toward the public and medical community; creating ways to empower patients to advocate for improved diagnosis and treatment; and bringing recognition and visibility to the Rheumatoid patient journey. In 2009, Kelly created Rheumatoid Arthritis Warrior, a comprehensive website about RA of about 950 pages and writes periodically for other newsletters and websites. Kelly served on the Mayo Clinic Center for Social Media Advisory Board. There are over 42,000 connections of her highly interactive Facebook Fan page. She created the hashtag: #rheum. Kelly is the mother of five, a home-schooler, Bible teacher, NASA enthusiast, and NFL fan. You can also connect with Kelly by on Twitter or YouTube, or LinkedIn. She has lived over nine years with unrelenting Rheumatoid disease. See also http://www.rawarrior.com/kelly-young-press/

12 thoughts on “Book review: What to Do When the Doctor Says Its Rheumatoid Arthritis

  • October 15, 2009 at 7:43 am
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    Hey Kelly- This was the last of the RA books that I bothered to buy, and you are right- it is much better than many of the others. Dr. Fisher is the Chief of Rheumatology at Beth Israel, where I was treated, though not by him (he didn’t take my insurance). I did run into him a few times in the hallway, though, and he even weighted in on a TB test of mine. He was always very nice and made eye contact and smiled, which earned him points in my book.

    Reply
  • October 15, 2009 at 10:36 am
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    This is one of the two RA books that I felt was worth the purchase price. Great book!

    Reply
  • October 15, 2009 at 10:51 am
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    Sara,that is a cool story. Thanks!
    WS: yes, would be worth it to save time. I wish I’d had it at first. Maybe dr. offices could recommend it to the newly diagnosed as a primer?

    Reply
    • October 15, 2009 at 10:44 pm
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      Thanks for the book review. I love to read and learn as much as I can. Have you read “Living With Rheumatoid Arthritis”, John Hopkins Health Press Book? I bought it the day I was diagnosed. It seems to be a good book, but I’m newly diagnosed and not too experienced yet. Just wanted your opinion. I have learned the best “real life” information from you. I read your blog everyday and have read all archives also. You are doing a tremendous service for people like me. You have helped me cope with this when the people in my life don’t have a clue! Every time I read a new blog entry I don’t feel so alone with this disease. Thank you soooo much Kelly!

      Reply
      • October 15, 2009 at 11:13 pm
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        Ronda,
        Thank you for taking the time. Encouragement like that goes a long way. :heart:

        Yes, I read that book. I was a bit frustrated that my experiences did not always match the author’s descriptions. I much prefer the book in this post by Fischer. However, it has some good information.

        Reply
        • October 16, 2009 at 12:09 am
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          In my previous reply I should have said “You are doing a tremendous service for people like us” I look forward to reading Fischer’s book. I just found you on Facebook and became a fan, another great place! Thanks again.

          Reply
  • October 16, 2009 at 4:07 am
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    I have been reading for the week, being I can not move around too much without having a lot of pain, having a bad episode RA in my knees, shoulder, lower back and right foot, it just never ends — I will get there one way or another, I like coming here to read everything you post Kelly, your blogs are so very helpful. I have a question for you and your readers, if I may, I have a general question for people who have RA? [How many of you along with having rhuematoid arthritis also have asthma and acid reflux? If so, do any of you take Advair or a Proton pump inhibitor… please drop me a line and let me know… thanks]] Viesta

    Reply
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  • November 8, 2012 at 4:35 am
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    Thanks for making me laugh – the line about ironing. I needed that.

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  • February 16, 2016 at 9:59 pm
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    I am relatively knew to my RA diagnosis & found your review very helpful. So if the book is available free online, but we would have to sift through mountains of bologna to find it, why not post a link straight to it? I can only find it available at Amazon, although it is very inexpensive. Thanks – Elizabeth

    Reply
    • February 17, 2016 at 1:00 am
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      I did.
      And your library may have it. That’s what I usually do as I mentioned.

      Reply
  • February 24, 2016 at 9:01 pm
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    Kelly,
    At age 71, I recently received a serum negative RA diagnosis from Florida’s Mayo Clinic. Like you, I too am from central FL & appreciate the RA Warrior Blog & the information that you share…not knowing anyone with RA, your blog is a God sent…. Thank You!!!
    I have ordered the book “What to Do When the Doctor Says Its Rheumatoid Arthritis” looking forward to reading it this week.
    Bonnie

    Reply

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