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We are so happy to hear about your positive experience at the nurse practitioner conference! It is so nice that you received such support and validation from not only the nurse practitioners but also from other advocates! This type of event seems so uplifting, and the progress shown must help you to know that your tough task as an RA advocate has been worth the difficulties you have gone through! Kudos, kudos, and lots of hugs, Kelly!
Thank you so much Vi. It’s one of the most valuable things we could do – to make health care professionals more aware of our disease. Imagine how the NP’s could help diagnose people earlier or help them manage their disease better – my own pediatrician is an NP and she’s always behind me in trying to get the best care for my kids.
Hi Kelly,
I’ve often told you about how much I love “my” medical team. The NP at my pain specialist and at my rheumy’s office are amazing. They always take the time to talk to me, to listen to me, to get to know me… They are rare gems, indeed. They ask me follow up questions about things we talked abou the previous visit, a month or more later. They can look at me, look me in the the eye and they can tell how I feel from that… I came in to my rheumy’s once in the middle of a terrible flare. I hurt so bad, I could barely move. My NP took a long look at me, and with tears in her eyes she started the conversation I hate having. “this is not good, José. We need to…”… My NP at my pain specialist told me once that it isn’t just about listening what the patients tell you. “for instance, I know you don’t like complaining, but I can see by the way you walked in and sat down… You’re back hurts, it looks like your hips and knees are bothering you by the way you crossed your legs and holding yourself off the seat back and stiffly”… I can honestly say that I love them both. They are like dear llife-long friends. They know me in ways few people in my life do. Me. Not just my symptoms but them too… Wish everyone’s medical team was just like mine…
Be well, Kelly. Keep up the good fight. Thank you for all you do for all of us. I really and truly admire you. I rarely hear you complain about your condition, I strive to do and be likewise…
Would you mind just mentioning what state you live in? I’m sure it’s not mine, but I am curious!
Sure. I live in Scottsdale, Arizona. Part of the beautiful Valley of the Sun.
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