From My Private Dictionary for Rheumatoid Arthritis

RA words I made up:

To me, it’s fun to coin a new term. So, I have been guilty of making up words for the blog as I go along. I have printed for you here an excerpt from my private dictionary. It’s only fair!
 
  • Appointment disappointment: n. 1: a despairing feeling which often occurs after a medical appointment; 2: often a result of feeling misunderstood or having been treated with skepticism by a doctor or technician
  • Bee sting: n. 1: pet name for injection site reaction; 2: red, itchy, hot , and hardened skin surrounding injection site
  • Courses of RA: n. 1: any of several various patterns which Rheumatoid Arthritis may follow in an individual patient; 2: Although the course of the disease is progressive in most patients, there is much variation in the pace and range of destruction; specifically, patients differ as to how often flares remit or how many joints are involved
  • Delusional response to RA: n. 1: Unreasonable behavior by Non-RA-ers with regard to Rheumatoid Arthritis caused by assessment that Rheumatoid Arthritis is not a painful, crippling, and progressive disease; 2: behaving as if RA-ers are able to do things that they are not able to do; 3: related to denial
  • Dr. Dolittle: n. 1: a physician who does very little to help patients because of a lack of understanding of the impact of Rheumatoid Arthritis; 2: aka Dr. Do Very Little
  • Full blown RA: n. 1: Rheumatoid Arthritis which does not remit; 2: Rheumatoid Arthritis which affects enough joints to make a normal life impossible
  • Hysterical woman diagnosis: n. 1: ludicrous remarks written into a medical record which imply or state that a patient of either gender is crazy and not physically ill ; 2: misdiagnosis of a woman based upon erroneous assumption that she is malingering
  • Leftovers: n. 1: pain, stiffness, and other symptoms experienced by an RA-er after disease fighting medication has been applied; 2: leftovers require additional disease management
  • Preventative first aid: n. actions taken to prevent injury or illness, specifically as it relates to chronic illness or a compromised immune system
  • Patient protection plan: n. similar to witness protection plan; secret identity for patients who do not co-operate with medical establishment
  • Pyramid of Treatment for Rheumatoid Arthritis: n. 1: the use of mild symptom relieving drugs as first-line treatment for Rheumatoid Arthritis, followed by gradual steps toward stronger medicines; 2: saving the most effective and modern medications until Rheumatoid Arthritis has already caused a great deal of damage; synonym: old school
  • RA-er: n. 1: also spelled RA’er; a person diagnosed with Rheumatoid Arthritis; 2: preferred term to Rheumatoid Arthritis sufferer or Rheumatoid Arthritis victim 3: contraction of RA warrior
  • Surge (also: treatment surge): n. the early use of DMARD combination treatments for Rheumatoid Arthritis, especially including Biologic drugs to attempt to slow disease progression and limit or prevent damage caused by RA ; antonym: traditional Rheumatoid Arthritis treatment pyramid
  • Under-diagnosis: n. the tendency of physicians to diagnose Rheumatoid Arthritis as a less serious diagnosis
  • The Wall: n. 1: a barrier which obstructs productive communication about Rheumatoid Arthritis; 2: Non RA-ers may put up the wall because of denial of some aspect of the disease or because of fear of discussing an illness that is mysterious to them.
And that is only an excerpt! We’ll put the whole thing up on the website someday soon. If you’d like to read more Rheumatoid Arthritis Warrior, 
 
Recommended reading:
Corny elephant post on vitamins: Tickles, Trunks, and Nutrition
Copyright © 2009-2010 Kelly Young, All rights reserved.

This entry was posted on Monday, August 3rd, 2009 at 7:00 am and is filed under Don't miss this!. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

9 Responses to “From My Private Dictionary for Rheumatoid Arthritis”

  1. tharr says:

    HA I just used RAer in one of my blog posts a couple of days ago. I just typed it and went with it, I had no idea it really was an accepted term.

    Terry

  2. Kelly says:

    We will make it an accepted term! We are re-writing the dictionary!
    May be sending a motorcyle-riding RA-er your way.

  3. tharr says:

    Excellent! Not many that ride with RA, we are few and far between.

    Terry

  4. lilikindsli says:

    I want to say – thank you for this!

  5. Tara says:

    I am a motorcycle riding Ra’er too Big Smile Rides are getting less though as flares take over. Yeah RA riders Grin

  6. Issadora says:

    hahahaha…

    i got one..

    true story a woman related to me .. she went tosee her rheumatologist and there was a young girl there in a wheelchair. She asked the lady… “are you here to see the RUINOLOGIST”.. The woman said.. well.. yes… im here to see the rheumatolologist…. why do you call it that? The girl replies “Because everytime you see them, they RUIN your life” LOL so new word… ruinologist (aka rheumatologist)

  7. I have a few of my own..

    Break through RA – Similar to break through bleeding while on the pill. I’ve taken all my prescribed meds and will still have a flare. It can be even less fun, and just as messy.

    Dr. Areyousure? – Occasionally the Dr I have been seeing for the last 5 years will ask me if I am sure that I have RA, and who diagnosed me.

    Nurse Pokesalot – You know her, she can’t find a vein to save either of your lives. But she is happy to keep looking. One day, I think once a good vein is found I’m going to have a target tattooed on it that says stick here.

  8. Kelly Young says:

    Issadora & Julie
    Funny ones. Thanks. Chic

  9. kay lefevre says:

    I call hard, too low to go chairs ” Chairzillas

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