Email a copy of 'Juvenile Arthritis Treatment Guidelines Adopted by ACR' to a friend
Loading ...
E-Mail 'Juvenile Arthritis Treatment Guidelines Adopted by ACR' To A Friend
Loading ... Loading ...9 thoughts on “Juvenile Arthritis Treatment Guidelines Adopted by ACR”
Comments are closed.
Kelly…I have Adutlt Onset Stills Disease (AOSD) whcih closely resembles the systemic form of Juvenile Rheumatoid Arthritis…I am currently taking Actemra with great success after failing 6 other Biologics and many other medications….So I found this information to be very interesting…I also tried Kineret with no success…So I am hoping this is the correct “Miracle Drug” for me and that it will last a long time…
Thank you for all the information you publish!!!
I find it extremely helpful and interesting…
Jewell
Thanks. I thought it was so interesting that they list Kineret. It’s so rarely used. But obviously shows promise with JA.
My doctor said Kineret is used for many patients with Stills disease also with a great sucess rate…Just not for me…
Jewell
Kelly…Are you still taking Actemra too?
Just curious….
Jewell
My insurance would not pay properly for the actemra since it was new last year. I’ve heard that doctors are getting paid for it properly now that it has a proper billing code. My doctor refused to let me go back on it. That was last November. I’m waiting for something new to be approved.
Thank you for providing this information, very useful to know. Jeannine
I’m so impressed with all the choices now. I was dx with JRA at age 10, and there was aspirin. Lots of it. And weekly blood draws. So glad for the treatments available now!
Kelly,
Thank you for such an informative website! We are grateful that there is so much to read and learn from, and that the information on it is very timely. Our 14 year old daughter started Enbrel in January and got her first methotrexate added to it this week. We are hoping for her remission from aggressive sudden onset and a 7 month flare. It is comforting to know that real stories and real time information are always available on your site. Thank you doesn’t begin to say enough about how much we appreciate what you do!
Thanks, Kelly….you always keep us informed, and we appreciate your efforts so much. JRA, as with RA, is so difficult because of the problems with diagnosis and the suggested treatments—and it’s so hard to see these younger patients suffer so much on the path to getting relief for their miscellaneous pains. Someday, JRA and RA will get easier, but now we can only hope that “someday” will come along faster!