Mayo Clinic Video Interview: Patients at ACR Scientific Meeting

Some of you may be puzzled about what I’m doing in Chicago. So here’s a brief summary and a video interview with Mayo Clinic News Blog telling why patients are interested in a scientific meeting like the ACR Scientific Meeting.

What happens at the American College of Rheumatology Scientific Meeting?

Kelly on Mayo News Blog“The ACR/ARHP Annual Scientific Meeting will be held November 4 – 9 in Chicago, IL, and is the must-attend event for anyone involved in research or delivery of rheumatologic care or services. Innovative sessions, ground breaking scientific abstracts, education developed based on practice gaps, the return of popular session formats, as well as hands-on skill training sessions are just some of the highlights,” ACR Annual Scientific Meeting page.

Why are patients interested?

In some ways, patients can be compared to a commodity that is traded at an ACR meeting. Without patients, there would not be rheumatology. Without patients, there would not be expensive pharmaceutical medications. Patients are the reason clinical trials and clinical practice training is needed.

Patients are interested in knowing what is being learned about “rheumatologic care or services.” They want to know about the innovations and ground breaking science that can address practice and treatment gaps. For patients, those represent changes in the ways that their needs for adequate diagnosis and treatment may be met.

It’s as simple as that.

I will be glad about any information or hope that I can provide to patients from what I learn here.

Recommended reading

Kelly Young

Kelly Young is an advocate providing ways for patients to be better informed and have a greater voice in their healthcare. She is the president of the Rheumatoid Patient Foundation. Kelly received national acknowledgement with the 2011 WebMD Health Hero award. Through her writing, speaking, and use of social media, she is building a more accurate awareness of Rheumatoid disease aka Rheumatoid Arthritis (RA) geared toward the public and medical community; creating ways to empower patients to advocate for improved diagnosis and treatment; and bringing recognition and visibility to the Rheumatoid patient journey. In 2009, Kelly created Rheumatoid Arthritis Warrior, a comprehensive website about RA of about 950 pages and writes periodically for other newsletters and websites. Kelly served on the Mayo Clinic Center for Social Media Advisory Board. There are over 42,000 connections of her highly interactive Facebook Fan page. She created the hashtag: #rheum. Kelly is the mother of five, a home-schooler, Bible teacher, NASA enthusiast, and NFL fan. You can also connect with Kelly by on Twitter or YouTube, or LinkedIn. She has lived over nine years with unrelenting Rheumatoid disease. See also http://www.rawarrior.com/kelly-young-press/

11 thoughts on “Mayo Clinic Video Interview: Patients at ACR Scientific Meeting

  • November 6, 2011 at 6:22 am
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    AWESOME !! Fantastic Video…. We can do this ! I am with you in spirit this week!

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  • November 6, 2011 at 12:04 pm
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    great video, you go girl! Thank you for being our voice in fighting RA

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  • November 6, 2011 at 12:43 pm
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    Bravo Kelly!!! You are my hero. Thank you for all you do for us. I’m praying for your continued physical and mental strength to see you through this.

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  • November 6, 2011 at 2:01 pm
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    Kelly, I second Susan’s comment – AWESOME! So glad you are there, both to gather updated information and also to help educate those attending about the experience of living with RA. Thanks to you, hope you are feeling physically ok and that you are are enjoying the experience.

    Reply
  • November 6, 2011 at 5:11 pm
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    Kelly…..we with this all-encompassing disease are truly blessed to have you fighting the fight! Thank you!!

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  • November 7, 2011 at 4:26 am
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    Thank you, Kelly, for shining the spotlight on this disease so that more can understand what we deal with on any given day.

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  • November 7, 2011 at 1:16 pm
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    Way to go Kelly!~ Your interview was well understood and to the point. I appreciate you advocacy at the confrence. Keep it going!

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  • November 7, 2011 at 5:20 pm
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    Great video! You bring so much hope–I pray you know that 🙂

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  • November 7, 2011 at 6:03 pm
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    A big “Thank-you” for the great video, taking the time to go, and being a voice for us all. God speed and hope you take a day of rest when you get home.

    Reply
  • November 11, 2011 at 8:57 am
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    Kelly-everyday when I wake up feeling like a 100 uear old woman I think of you and all that you are doing to be our RA Warrior advocate and it gives me the strength to get up and go to work. Thank you so much for being my mentor and spiritual guide in my RA journey.

    Reply
    • November 11, 2011 at 9:31 am
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      Angela, that is precious that you took time to say that. You also give me strength every day – knowing you are there is the reason I do this.
      I’ll think about your comment all day. It’s been a very difficult couple of months, but you make me feel like it was worth it!

      Reply

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