Video or podcast Archives | Rheumatoid Arthritis Warrior

RA Public Service Announcement Video

Announcing a new RA public service announcement Please watch my second-ever RA public service announcement, below! My mom always said to “make it short and sweet”—well this is short and serious. But hopefully you’ll feel the passion of my heart: 1) For people to recognize rheumatoid disease is more than arthritis—it’s a serious disease. 2) For people to recognize early testing...Continue reading      1 Comment » Read more

An Absolutely Vile Disease, the “a” Word, & New RA Animated Video

RA Veterans animated video Last year, I got a call from a woman named Courtney floating a trial balloon on creating an animated video for RA patients. After some discussion, I agreed it could be interesting, but with a few “ifs” like if it’s positive, honest and realistic, and if its not insulting to patients. Courtney’s...Continue reading      17 Comments » Read more

What Drives Patients to Get Engaged in Healthcare?

Did you ever forget what you were about to say? Last year when I testified at an FDA advisory hearing, I couldn’t even remember my name. I swear I could feel my heart leaping six inches in front of me. It was unexpected because I’d recited my five-minute speech dozens of times from memory. How...Continue reading      15 Comments » Read more

Invisible Illness Awareness Video

Positively Real: Keeping the Discussion Real without Sugar Coating Everyone with an “invisible illness” owes such a debt to Lisa Copen, founder of Invisible Illness Awareness Week. She has done so much to provide support to people with “invisible illnesses” like Rheumatoid disease. I don’t know if she coined that term, but she certainly popularized it. This...Continue reading      6 Comments » Read more

Johnson & Johnson RA Warrior YouTube Video

Inside story of a new YouTube video about RA Warrior A few weeks ago, a Johnson & Johnson video team visited our house. See my sons spoofing with the big video camera? The things that captivate teenagers, right? Anyway, it was hard to explain to the Johnson & Johnson folks why it was difficult to have visitors...Continue reading      35 Comments » Read more

7 Atypical Rheumatoid Arthritis Effects Are Actually Typical

What can we say about atypical Rheumatoid Arthritis? (UPDATED) Our similarities & differences with Rheumatoid Arthritis are fascinating! I sure wished I had a dollar for every time a patient told me his / her doctor said he / she has atypical Rheumatoid Arthritis! And some actually have quite common symptoms! Here are 7 things that are often said...Continue reading      78 Comments » Read more

You’re Cordially Invited to Make SWEET MEMORIES with Other Warriors & Friends! [video]

Our friends at Arthritis Introspective (AI) do so much practical work to help people living with diseases like RA (and adult JRA) to connect for in-person support. Many of the groups listed on our own Local Rheumatoid Arthritis Support page are affiliated with AI, who assists local support groups in various ways. It has been...Continue reading      13 Comments » Read more
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