What a precious thing to do for your mom, Katie Beth! She is blessed to have a warrior like you. Thanks for sharing your heart. Oh, I have a daughter named Katie, too!
This is a really nice thing that your daughter did. Great job Katie Beth….it is a very difficult disease to understand, but it looks like you have some understanding for your mom on her bad days. She is glad you listen…trust me!
Katie, you are a very articulate writer. You are very wise for just 16 years old. That is so wonderful of you to be supportive of your Mom. I was just recently diagnosed, my kids are 5 years old and 4 months old, and my son (the five year old) is already making allowances for my RA (for example, he learned how to buckle his own carseat because it was so painful for me). You kids keep us going.
Shanna, I agree. Katie, you are an excellent writer. And, you are a most thoughtful and compassionate daughter. My children are 30 years old and 32 years old, and they have been such a support (physically and emotionally) through all of the changes I am going through. Please know that you are so appreciated!!
You such an incredible young woman. You have a very strong empathy and understanding for those of us that own RA. Your Mom is truly blessed to have you. You are an excellent advocate for RA families. I can only hope that my 8 year old daughter will some day see things as you do. Stay strong for you and your family. Remember to take time for you. Thank you so much for your blog and letting people with RA know that there are those that really care and do understand what we go through on a daily basis. If only the world had more like you.
Thank you all of you for your wonderful and encouraging comments! They were so sweet. About my age, my sister told me about a 17 year old who recently became the youngest person to circumnavigate the globe by boat alone! Maybe kids are more willing to listen because they know how much you want to be well. It’s helpful to have someone understand when every day is either hard or harder. I wish you all well in the fight. Katie Beth
My children are 30, 28, and 27. I get absolutely no help, unless I BEG or they need $$$ or the use of my truck, understanding is called “Stop crying and relax, you know it get’s worse when you’re upset!” then they promise to call back or come over later. I have yet to see later. Katie Beth you are a remarkable young woman! Kelly, you are truly a blessed Mom! In HIS Love, Alice :rose:
WOW! Your mom is sooo lucky to have such a wonderful daughter! I have a daughter your age and she is wonderful also and I can thank God that I have her to understand, although, I don’t really believe that anyone really understands what we feel like unless they have RA also. I guess the hardest for me is feeling so guilty that I can’t be the mom that I once was. I, too, never made my children do much and I really enjoyed being the mom that did it all. I can’t do that now and it is hard. Your mom is a brave and strong woman. I can see by her posts on facebook and here that she has been a great mom. Thank you for sharing your feelings and thoughts about how this disease has affected your lives from your point of view. We forget sometimes that there are people that love us and are cheering us on in this struggle! BIG HUGS to you!
Thank you very much for this beautiful message. So often, we RA’ers complain about people not understanding, and not helping; it’s a great relief to hear that someone who doesn’t have RA themselves really does care, and empathize with, someone who does. Thank you!
Thanks Samuel. I’m very proud of the writer – my daughter. I do believe that both of my daughters (now grown) and my best friend Leslie really do understand as much as someone can who doesn’t have RA – because they saw it all happen to me with their own eyes – there is not ANY “well, it’s not so bad; maybe you are exaggerating…”
This made me cry in the best way possible.
It’s so nice to know that there are people out there who genuinely care and want to help, even though they don’t have a chronic illness themselves.
I have a few strong fighters on my team, and this reminds me of a few of the things they’ve said – in particular, the idea that I already have to fight just to complete everyday tasks, so it seems unfair that I should have to fight to make myself heard or understood as well.
I’m only a few years older than Katie, but I really hope that I have as much compassion, empathy and fight in me as she does.
No doubt it will be helpful on my road to acceptance.
Thank you for the kind words and, most of all, the hope that people can understand without living with RA.
Beautifully written Katie Beth! This so touched my heart remembering all the things I once enjoyed, landscaping, building fences and all. The toll it has taken financially is astronomical, and taking away the thing I so enjoyed was being able to work too.I am so glad to know your mother has wonderful support from children who have great love and an understanding of her needs. It is difficu;t for some to understand the needs the RD causes, even my daughter and husband have had to learn a different me. Of course my daughter is grown, but there are some aspects she still hasn’t grasped, and her home is only feet away. My husband is older than your dad, and we have been married for a good many years. He is my 3rd husband, but the best ever with real understanding, compassion and kindness. I cannot express the grattitude I have for finding him and all the care he has shown helping me with household and all other chores I used to do, plus work the many hours he does.You don’t have to worry or be concerned with anything written. Just be you and that is so important. God Bless and once again, thank you!
😀 ,luv m
What a precious thing to do for your mom, Katie Beth! She is blessed to have a warrior like you. Thanks for sharing your heart. Oh, I have a daughter named Katie, too!
This is a really nice thing that your daughter did. Great job Katie Beth….it is a very difficult disease to understand, but it looks like you have some understanding for your mom on her bad days. She is glad you listen…trust me!
Oh my word! She is only 17? This was great! she voiced everything perfectly!!
courtney
She is almost 17…
Stay tuned for her replies, guys…
Katie, you are a very articulate writer. You are very wise for just 16 years old. That is so wonderful of you to be supportive of your Mom. I was just recently diagnosed, my kids are 5 years old and 4 months old, and my son (the five year old) is already making allowances for my RA (for example, he learned how to buckle his own carseat because it was so painful for me). You kids keep us going.
Shanna, I agree. Katie, you are an excellent writer. And, you are a most thoughtful and compassionate daughter. My children are 30 years old and 32 years old, and they have been such a support (physically and emotionally) through all of the changes I am going through. Please know that you are so appreciated!!
Katie,
You such an incredible young woman. You have a very strong empathy and understanding for those of us that own RA. Your Mom is truly blessed to have you. You are an excellent advocate for RA families. I can only hope that my 8 year old daughter will some day see things as you do. Stay strong for you and your family. Remember to take time for you. Thank you so much for your blog and letting people with RA know that there are those that really care and do understand what we go through on a daily basis. If only the world had more like you.
Jamie
Thank you all of you for your wonderful and encouraging comments! They were so sweet. About my age, my sister told me about a 17 year old who recently became the youngest person to circumnavigate the globe by boat alone! Maybe kids are more willing to listen because they know how much you want to be well. It’s helpful to have someone understand when every day is either hard or harder. I wish you all well in the fight.
Katie Beth
Again I'm moved to tears. Kelly, you are truely blessed with this girl of yours! Angie
My children are 30, 28, and 27. I get absolutely no help, unless I BEG or they need $$$ or the use of my truck, understanding is called “Stop crying and relax, you know it get’s worse when you’re upset!” then they promise to call back or come over later. I have yet to see later. Katie Beth you are a remarkable young woman! Kelly, you are truly a blessed Mom! In HIS Love, Alice :rose:
Alice,
I’m sorry. That’s terrible.
And I do know I’m blessed. I did show your comment to Katie Beth. She smiled big.
WOW! Your mom is sooo lucky to have such a wonderful daughter! I have a daughter your age and she is wonderful also and I can thank God that I have her to understand, although, I don’t really believe that anyone really understands what we feel like unless they have RA also. I guess the hardest for me is feeling so guilty that I can’t be the mom that I once was. I, too, never made my children do much and I really enjoyed being the mom that did it all. I can’t do that now and it is hard. Your mom is a brave and strong woman. I can see by her posts on facebook and here that she has been a great mom. Thank you for sharing your feelings and thoughts about how this disease has affected your lives from your point of view. We forget sometimes that there are people that love us and are cheering us on in this struggle! BIG HUGS to you!
wise beyond your years young woman!
Hi Katie,
I LOVED your writing, and am touched by your devotion to your mom!!
Sincerely,
Susan Ziliak
Thank you very much for this beautiful message. So often, we RA’ers complain about people not understanding, and not helping; it’s a great relief to hear that someone who doesn’t have RA themselves really does care, and empathize with, someone who does. Thank you!
Thanks Samuel. I’m very proud of the writer – my daughter. I do believe that both of my daughters (now grown) and my best friend Leslie really do understand as much as someone can who doesn’t have RA – because they saw it all happen to me with their own eyes – there is not ANY “well, it’s not so bad; maybe you are exaggerating…”
This made me cry in the best way possible.
It’s so nice to know that there are people out there who genuinely care and want to help, even though they don’t have a chronic illness themselves.
I have a few strong fighters on my team, and this reminds me of a few of the things they’ve said – in particular, the idea that I already have to fight just to complete everyday tasks, so it seems unfair that I should have to fight to make myself heard or understood as well.
I’m only a few years older than Katie, but I really hope that I have as much compassion, empathy and fight in me as she does.
No doubt it will be helpful on my road to acceptance.
Thank you for the kind words and, most of all, the hope that people can understand without living with RA.
Beautifully written Katie Beth! This so touched my heart remembering all the things I once enjoyed, landscaping, building fences and all. The toll it has taken financially is astronomical, and taking away the thing I so enjoyed was being able to work too.I am so glad to know your mother has wonderful support from children who have great love and an understanding of her needs. It is difficu;t for some to understand the needs the RD causes, even my daughter and husband have had to learn a different me. Of course my daughter is grown, but there are some aspects she still hasn’t grasped, and her home is only feet away. My husband is older than your dad, and we have been married for a good many years. He is my 3rd husband, but the best ever with real understanding, compassion and kindness. I cannot express the grattitude I have for finding him and all the care he has shown helping me with household and all other chores I used to do, plus work the many hours he does.You don’t have to worry or be concerned with anything written. Just be you and that is so important. God Bless and once again, thank you!