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I am always fascinated to hear these stories. It’s amazing how different everyone’s onset is, and how different the doctors treat it.
The gout thing seems like a common error. I’ve heard many people say thats the first diagnosis they got. I did.
Thanks for posting!
Your symptoms look exactly like gouty arthritis. However, gout is extremely rare in ladies in the premenopausal age group.
Anti CCP antibody is a simple blood test which can help with a definite diagnosis of RA (http://www.arthritissupportboard.com/Anti_CCP_antibody_in_rheumatoid_arthitis.aspx) at such an early stage when a sigle joint in involved. You saw a Rheumatologist quite late after the onset of problems. This is what generally happens & we miss out on the ‘therapeutic window’ in RA.
Early RA is now considered an emergency, is treated agressively & this turns out to be the biggest determinant of long term outcome in most of the patients.
A RA patient’s destiny is generally determined in the first 6 months itself.
Kelly, thank you for starting this series. Thank you Heather and Stephanie for sharing your stories.
And thanks for participating. 😎
I submitted my onset story this morning. I left out the fact that with my first flare up I went to the ER and was told without blood tests,or xrays that it was probably bursitis or traveling arthritis. I was told to go home and ice the area and did I want pain pills……………I am amazed that so MANY people have been misdiagnosed when the symptoms seem so apparent.
Hopefully we can make more healthcare professionals understand RA better as well as the other people in our lives.
Thank you or the forum!
Pamela, Thanks! When I get home & into my email later & I’ll send you the reply. You’ll have a chance to add to it. Just add what ever you want and send it again, I can use whatever version you ask me to. And we love to have a picture, ya’ll – even if it’s of your toe – or your dog! :evilgrin:
You are so right about the misdiagnosis problem. Seems odd when to us it seems so obvious. ?
Can you go on mtx and other ra meds if you are having radiation for melanoma?
Diane, I have no idea how long you’d have to wait. You might to wait some because mtx interferes with cell replacement. What does your doc say? I hope it goes well!
It is really good to hear these other stories! I was diagnosed about a year ago. I was put on Enbrel for 6 months. It worked great and then just shut off. I am not going to start Remicade infusions and wanted to see what info was on your site for that. The one woman had great results and that was what I wanted to hear. I have also researched Remicade and saw similar results. Thanks Kelly for posting all this information. Without a nearby support group you can feel alone! Thanks for being our RA Warrior!
Lynn
These are wonderful and depressing stories. I have full RA as well. Thanks for the site.