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Thanks so much for sharing your experiences! You have all encouraged me! Keep on smiling, friends!
I wonder if anyone has come across Dr William Davis? He’s a cardiologist and aims to reverse heart disease through diet and lifestyle. One of the main dietary changes he recommends is to remove wheat from the diet. Many of his patients reported other health improvements including inflammatory diseases such as rheumatoid arthritis. He wrote ‘Wheat Belly’ to help.
His blog is great: http://www.wheatbellyblog.com/2011/12/gretchens-cheat-day/
Nina
My name is Nikki and here is my story.
I remember having pain in my shoulder but i thought it was an old softball injury, slept on it wrong or i caused the pain due to over compensating for the soft ball injury. What finally made me go to the doctor was all the pain rotating through different joints. it was a total of 24 hours of discomfort and 12 of those hours being in severe pain. i went to the doctor and told her i think i have lyme disease ( had a tick bite) which i explained with confidence. i was sent a letter a week later stating my i was tested positive for RA. i immediately looked up on line what RA was and became scared.
I found the only rheumatologist in my area and he put me on hydrochloride and told me i was in the beginning stages. i remember distinctively thinking if this is the begining i hate to see what the middle or end is like.
i have had flare ups at this time in my feet ( constantly), right knee, both shoulders, wrists, hands and hip. The shoulders are the worst pain for me which will make me cry like a baby for hours. it was so bad one night i went down stairs to take some type of pain relief ( never relieved it but it made me feel like i tried) when i thought i was going to throw up or pass out from the amount of pain. i immediately laid on my litchen floor ( thank heavens it was tile and felt cool). i had never experienced a pain like that before but i knew i never wanted to again.
Mithe next day an employee of mine hurt his ankle and we were at the doctors office. the nurse asked on a scale of 1-10 where is your pain. the employee said a 7. once the nurse left, i remember telling him, brian i do not mean this in a bad way, but after last night my rating of pain was significantly changed. i figured last night my rating of the pain was a 9 because i did not pass out or throw up. i thought to myself, this man walked in with a slight limp and he was saying he was at a 7? Are you kidding me?
I had a flare up twhich both ankles and hands were effected. when nature called and woke me up i was faced with a whole new problem, how do i get to the bathroom. i could not stand which meant walking was not the answer. i slid to my knees ( done this before) but how was i going to crawl when my wrists were swollen as well. i walked on my knees across the bedroon (unable to crawl). i know my bedroom is huge but it became even larger in my current predicament, as i thought i was not going to make it. once i got to the restroom a whole new issue arose, how was I going to get onto the seat? i could not use my feet or hand. somehow i managed to make it but it scared me and i was brave enough to tell my best friend Molly. she would text me each day if i was ok and made me promise to call her if this happened again.
how embarrassing is that!
Basically I have learned we (RA victims) are extremely strong people, who adapt to change better then anyone and have enough the strength and courage to wake up each day and fight like heck. No one actually truly understand what we go through except us and that is why it is so important we continue to share our stories.
Ironically I wam sharing my story because I can’t sleep with flare ups, so please excuse the grammar and spelling I just started typing (with one hand).
After reading your story im amazed. For about ten ago i was diagnosed with RA thou the medication had me always sleeping. I decided to eat better & get the lab band done. I felt much better but now after three years of not work i started to work as a baker. For more then two weeks im hurting all over again, my right atm is hurting finger numb having the tingle in my finger mind you im a rightly. Left hand is dping the same head back feet all hurting . What kind of doctor should i truely search for. Have any one been approved for Social Security behind this for at times ir get really bad to even work .
Hi my name is Franklin. And I believe that I have RA, but it doesn’t show up on my blood test. However iv never felt so imobalized in all my life. Pain in every joint. So one day it felt like I broke my wrist. So I took Edgar Cayceies advice and started Rubbing penut oil on every joint 3 times a day. It Worked, amazing. Plus I’m trying to stay on a anti inflammatory diet. Which isn’t so bad once you get used to it. Plus I take 2 heaping table spoons of Tummeric every day. Black cherry concentrate work’s best for pain and inflammation, but I can’t afford it right now. It’s pretty cheap. You need to take a big drink for best results. About 1 shotglass of Black cherry concentrate per day. Keep the inflammation down and use penut oil everyday. Every 3rd day rub your body from head to toe . Sometimes rub down with mustard oil, it kills inflammation. But I now am a believer in penut oil.
I am a sixty eight year old male, who has always been physically active at the gym, as well as hiking and mountain climbing until recently. Back in November of 2017, after having returned from a wonderful hiking and camping trip to Jordan, I started having horrible back and lower, right leg and foot pains. Wen to see an orthopaedic surgeon who prescribed fusing the 4 and 5 lumbar vertebrae, as well as the first and second sacral. I was ready to have surgery on Feb. 10 of 2018. The surgery was cancelled due to having developed a severe neck and scalp pain. I went to pay a visit to my chiropractor but to no avail. In the meantime I developed horrible pain on my right foot with lots of swelling around the ankle bone. My GP thought it was gout, so I was checked for it but the results came back negative. The pain and swelling would travel from the right foot to my left hand and so forth. My GP treated me with Prednisone but as soon as the Prednisone dosing was over I would start showing symptoms again. I went to see a rheumatologist who confirmed that I had RA. Needless to say, I was devastated by the diagnosis.
I was started on Orencia infusions about a couple of weeks ago and I am due for my second dose next Monday. Yes it has helped me some but i still get painful hands, feet and jaw. The difference is that the duration and pain intensity are not as bad as when I was on no medication, except for a low dose of Prednisone (7.5 mg/daily). I guess my main concern and question is to what extent will the disease limit my ability to do the things I enjoy doing the most? In spite of it all, I maintain my spirits high and hope for a better day. I am planning on climbing Volcan Tajumulco, in Guatemala, next November. Am I being stubborn or unrealistic, I don’t know but somehow planning or having goals for the near future keeps me going.
George, there is no way to accurately predict to what degree the disease will inhibit you. Some of us are completely disabled, and others have a flaring & remitting disease pattern. Some have every joint affected (& organs), but others only have a few. Some are greatly helped by meds, and many others not at all. These 3 things make our experiences with the disease unique.
I believe you should always do the most you can safely do, but not do what causes you increased pain or injury. Inflamed joints are like injured joints and should be treated gently.