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Tears rolling down my face which is weird as my Sjogrens has been bad for months. I know how hard it was to get my diagnosis. It brings back memories and sadness as my son is going thru this also and he is 15
It will be 2 yrs in August since I have been diagnosed with RA. for the last 4-5 yrs I would have shortness of breath and chest pain lying down . My family Dr. ran ekg said I was fine it was stress, she gave me xyanax..I also had ab pain and she sent me for scopes and ct since I showed blood in my urine. and I have had it for yrs.I dont think blood in urine is normal but no Dr. seems alarmed.I don’t know where to go. I am 53.and work full time. one day at work my wrist swelled up like a red hot ball, then the other one. My Boss at work said maybe I have carpal tunnel and sent me to her Dr.He gave me 2 cortisone in my wrists and called me back a week later to say I had a very high RA number. I didnt even know what the heck he was talking about. I got in to a Rheumy and he talked to me..I refused MTX and prendisone. I dont want that in me. He gave me plaquinol and vicodine for pain and I took that for 1.5 yrs. 1st visit back to Rhuemy I told him I was having a cramp in my leg that wont go away..he sent me for a dopller and found I had a DVT in my right leg. few days later I told him I was still having very much shortness of breathe that was scaring me. he sent me for CT scan and found I had several scattered pulmonary embolisms. I took Lovenox injected and warfarin. My family suggested I see a Hemotologist so my gyno sent me to Dr. Foote. He kept me on warfain and lovenox for 6 mo. then took me off for 2 months, ran blood test and found I have Protein S deficiency. RA makes the clotting factor worse. I don’t talk much about the illness to my husband and he never comes to Dr. with me I’m very depressed and tired. I still work full time and will continue to do so. I currently take 15 and 20 mg warfarin daily , no more plaq. and take monthly Orencia infusions that seem to work for a few days possibly a week, them I’m pretty screwed for the rest of the month until next infusion. I worry about Plaquinol and eye damage..thats all I need. I really feel stress has played a major factor in my illness weilding its ugly head. I’ve always been a hard worker and very active. Ride my bike 200 miles , lift weights excercise. I feel it has been robbed from me. :(..depressed and scared…all I think about it prepaying and planning my funeral.
This has helped me a lot reading on these woman who were diagnoised with RA. Some of these stories are simular in which I suffer with everyday. I recently fell, helping a patient were I work. To add to my pain, my ankle and right knee are hurting really bad. With this pain and my RA pain., Its hard to keep up with the pain.
44 yr old man. Worked construction since age 16, lifted heavy weights from 06 to early 11. RA has taken 5 months of my life away from me, out of the last 18 months. A crippleing disease to say the least. Every joint with the exception of any pain in the back and very mild in the shoulders. Everywhere else,..OMG!!! The Dr. is still working on the right prescription programs for me. Steroids at the moment, but I am afraid to get back to work so as not to cause another extreme flair up..Kinda lost at the moment. I am healthy otherwise, have passed for 34, and appear to physically be fit yet that is far from the truth..Glad to see some useful information out there and yes I understand the disease and have tried to simplify it to mean “an allergic response” to overwork, pushing to hard, demanding too much of myself. I will update as I learn more and more. This condition is at times unbareable.. Thank you for reading. E. Man.
I’m a teacher. A few weeks ago I’d a very severe abdomen pain.It just like gastritis. After an endoscopy was done. My stomach seems normal, no Helicobacter Pylori infection. I’d my colonscopy done, untra sound and CT Scan. Everything seems normal. Doctor prescribed as food poisoning and later prescribed as stress. After taking medicine ,the pain attacked me very badly. The pain comes and goes. I could’t sleep nor performed anything during my daily routine.I felt fatigue when the pain persisting and when the pain goes off. It seems that medication had nothing to do with my pain. It really made me suffer . At the end , I asked my doctor to give me some sleeping pils. Its worked. I felt better when woke up another day. My rheumatoid factor was 256 at the beginning but it dropped to 30 in 3 weeks time. Could it because of stress or something to do with my food?