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Kelly, I love, love, love this! Thank you so much for making this available to so many and for the opportunity to contribute. I have so much more reading to do, but that feeling that nobody/not many really get it is slipping away. This is some of the best therapy I have had in a long time. We are not alone…
I “love” the pain issue, when I’m so in pain i can’t think of the things that relieve the pain I’m so imbued in a pain “fog.” It takes, did you take you NSAID? Did you try ice? Pain makes me forget my sensible self.
Thanks to everyone for the blog carnival on pain…..great writers and good insight. I also would like one on the subject of fatigue.
I’m so glad you did this blog carnival and I’m glad to have been a part of it!
Kelly, thanks for putting this together. I know it takes countless hours every week to make rawarrior what it is, thank you for all that you do for the RA community.
Hi, Kelly I to am very glad you did this blog. Pain is the biggest problem with Ra I think. Sometimes I get so lost in my thoughts about the pain and how do I get relief that I can be at work for 8 hours and not even remember what I did all day because in my head Im thinking about the pain and how am I going to make it through the rest of the day with this pain. It controls everything I no longer have control of my life Ra does.
Kelly again, you do amazing things. These are so helpful in so many ways. There are several I wish I could print and take with me to my hearing before a judge on disability. I am going for my second appeal since filing last Nov. It is so hard to put into words(especially when you are starting to cry)that will get the point across. I can work for short periods at a time. Then I have to rest. Employers frown on that, they pay by the hour and want an hour’s worth of work. Plus if I do physical work, I’ll be down the next day, may be two. Unfortunately even though I explained all of this to my Rheum dr, he did not put it in my progress notes, not even that I claimed this is the way it is. Nope, I had a normal gait and was in no acute distress. (Thanks for the advise on getting your records!) So I have decided no sucking it up for the doc, he is going to get the full picture, as embarrassing as it is.
Sorry, I neglected to thank every one that participated. Thank you for sharing, I think we all at some point or another nod our head, been there, or tear up in mutual sympathy. Validation, it is a wonderful thing.
RA, you are not going to beat me, I have friends that know, that understand. And that’s more than half the battle.
Thanks for including my post, Kelly! I really think pain is a major part of our lives and our docs need to KNOW that! I posted in a comment on another blog that we need an “Arthritis Suit” that people could put on and wear for a day that would make them hurt in odd places all day. But, you know what? I’ll bet no one, not even the rheum docs and PCPs would try it out. But I can dream…
Love
Elizabeth
Thanks for this post, Kelly. I’m still working my way through everything…and getting lost in all the other blogs! I thought I wasn’t alone before, when I had rawarrior to run to…but WOW! There are so many more! (I know that on your fb page you have allowed others to post links to their pages, but I’ve never taken the time to wander. Shame on me.) I’m going wandering again…
It’s very late here, but someone on facebook asked me the other day – looking for someone with a name that’s part of your email. So… I have a strange question – did you meet someone on a plane a while back? It might not be you, but just in case I had to ask.
I don’t think it’s me…last time I was on a plane was over a year ago. Good luck helping in the search.
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Thank you for organizing all the posts. I have had RA for 3 years but it was misdiagnosed until a few months ago. Chronic pain is a sore subject with me (pun intended) I am allergic to all of the narcotic pain meds and cannot take Trammadol due to its propensity to increase seizures) I was able to tolerate Darvocet, but thanks to a funny little twist of fate, that has been taken off the market. So I am left taking tylenol – which is a terrible waste of the few dollars I spend on it. I also use aspercream but as I experience pain in so many joints, I practically bathe in the stuff.
Thank you for including me, this was my first blog carnival and I loved it!
I also really love that your compilation reflects SO many view points and ideas. I hope you get a lot of satisfaction knowing what you work on with this site is so worthwhile to so many:)
Interesting presentation of the “carnival” well written author. Thanks.