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Dear Kelly:
I heard about your blog on Ted Talks with E-patient Dave. I have one quick question for you. What is the nuclear bone scan website that converted your scan to inflammation markers?
Thank you!
Sam-Physical Therapist and Program Professor-PT Assistants
Interesting idea to do a lifetime chart. I might give it a run to see if it works out. I know the worst and I know now (better) so it is an interesting idea.
So glad you back with us.! I missed you and was concerned for you. Since turning 65 I had to quick taking Humira (which was an ok med for me) because they won’t pay for the patient to inject self. So now I need to do infusions. I have had 3 different ones and they all affected my liver counts. But now am on rituxin which is a 6 hour long infusion. YOu take it one day wait 2 weeks and do it again. I had my infusion in November. Doctors say 4 – 6 months until next infusion. I havent had to have it yet and am actually enjoying my days with a little spring in my step. Now sometimes I do too much and am tired the next day and hurt from pushing to hard. But I am not so tired each day that I force myself to go.
So so far this is good. Just had shots in my bursae on each hip 2 weeks ago and they did help.
I hope your shot at least lets you have some joy in your life.
Warmly,
Steph
I was diagnosed four years ago this January. All my joints are affected including my jaw and excepting my knees. I have a constant disease activity. My feet are the worst making it difficult to walk. My knuckles are a mess. I am on methotrexate injections, plaquenil, meloxicam, methylprednisolone. I am writing because I read your recent blog on injections. When my RDgets unbearable I use the Medrol dose pack.
I use the Medrol dose pack and I feel like a new person. Wish it would last. Thank you for your blog you are an inspiration to so many.
Thank you, Mary.