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When I was diagnosed with rheumatoid arthritis I did receive any “positive” RF, which I have also heard referred to as a RA factor. But it was not until about two years later when the nodules started appearing up and down my arms and I had other symptoms that all the doctors went, “oh good, we diagnosed her correctly.”
I felt like you did; I was relieved I had a correct diagnosis, but unfortunately additional symptoms were needed to be able to confirm that.
There is a reason it’s called the “practice of medicine.”
Kelly, I appreciate so many things you do but your attention to this topic brings my greatest gratitude. Periodically over a 12 year span of time doctors would look at me and say this seems like RA. Then the sed rate would come back elevated and they would be even more convinced but as soon as that rf factor came back negative they would decide they were wrong and give me nsaids and a pat on the back. I finally have a great rheumatologist and feel as good as I have felt in a very long time because of treatment. I know there are others out there like me and I would love to have had the information you share here 12 years earlier. I am certain you are helping many with this research. Thanks and keep up your good work.
Thank you for the good words Kay. 😀
It bothers me that some doctors seem to foster a view that there are two types of RA: sero-positive and sero-neg. There are actually several antibodies that can be identified and perhaps one day we will know several classes of RA. As far as the Rf goes, many patients like you will one day see a positive result. I’ve seen those who have a Rf result that is sometimes negative and sometimes positive – that’s not very black and white if you ask me.
I didn’t have time to read all the information, but there is a test call anti-CCP (anti-cyclic cintrullinated peptide antibody). That, when RA is suspected, is a much more precise marker than the RF.
Molly, yep that’s in the information. 😀
I guess my excitement at hearing a diagnosis of RA from my Doctors should be tempered, with all the false positives in the testing of it, although my feelings and description on how the pain was attacking me sure matched the symptoms given, time will tell…
I understand how if one is testing negative, this kind of information might provide some reassurance. But what about those of us who test off the charts for RA factor? Mine is holding steady at 550. Sed rate 48, CRP 1.5. My symptoms were as follows: joint pain, swelling, stiffness and redness at several joints (some symmetrical, others staggered); low grade fevers (below 100F) almost daily; extreme fatigue; extreme pain in hands/wrists/fingers and feet/ankles/toes—to the point that I couldn’t use them, sleep, or do anything else. I thought I’d been screened for all other possible diseases (eg: Hepatitis ABC, TB, Cancer, etc) but after reading this, I’m a little freaked out. One of the things the Rheumy told me was that RA diagnosis can sometimes be determined by how well a patient responds to Prednisone—and I did respond within about a month. But a month after that I was flaring again, and it’s been back and forth for six months now. Is there something else I should be asking to be tested for? What am I missing?
Hi Kelley
Your webpages have been so helpful. I contacted you recently and you replied. If I hadn’t kept reading the information you had given I would have continued to be told I have fibro. I remained persistent. I had a new Dr and this is how It started along the lines of having RA. She did some research and made some phonecalls more that The RA Dr did.
It turns out that as I have hepatitis C a small percent of people are developing what they call hepatitis C arthritis which mimics RA without the swelling. Have you heard or know anything about this please.
I do not know about it – but I have heard it from one other patient – who is now doing well. I hope they sort your yours very soon!
I am happy to finally find such in-depth information about RA. The doctors swore I had it but when both factor tests came back neg they moved on. I tested positive for sjogrens disease and see a rheumatologist on thursday. I have read it is a secondary disease to RA and hope they do more testing on me.
Tomi, Good luck on Thursday! I hope that you have a good rheumatologist who will yes run more tests, but also take a thorough history and do a good examination! There is so much more to RA diagnosis than the Rf test. About 1/3 of RA patients are Rf negative. You can read more about diagnosis of RA using the tab on the menu at the top of the page where it says “Do I have RA?” and all the posts about diagnosis are also found using the tag “RA diagnosis” – here’s the link: http://www.rawarrior.com/tag/rheumatoid-arthritis-diagnosis/
Does Orencia affect the RA factor? CAN it give a false negative? Im so confused about all this crap. Does Orencia help fibromyalgia?
2 years ago, I had an elevated RA factor so my NP sent me to Rheumatologist. He examined me, even did a breast exam on the first visit. He would xray my feet or hands every month, but always insisted that I undress completely.(He meant naked, which I never did? After about 4 months of xrays, no other labs, and no other exams other than holding my hands, he asked me if anything was hurting. I told him my knees, but they always hurt. He told me to undress so he could check them, but I had a surprise for him. I had gym short under my sweat pants. He then told me to take those off too, which I refused. I told him that he could see my knees perfectly without me undressing any further. He glanced at my knees, told me that I had OA and fibromyalgia, that I don’t have RA and told me to follow up with my NP. The report he sent to her was like there is nothing at all going on. I have swollen joints, low grade temps off and on, the fatigue makes me want to cry, and every morning it is like my feet and ankles were placed in a vise while I slept. I am only 48 yrs old, and used to be in great shape, but my muscles are wasting and I feel like I am 90. Some days are worse than others and this is a bad one. I don’t know what to do. I don’t want people to think I am a complainer, so I don’t say anything but now my thumb tips and a few fingers are starting to curve. I just don’t know what to do or how to tell a good dr from a not so good one. Everyone that I asked about the other RA dr said he was great, but they were men. Any advice would be appreciated.
Hi there! So glad I came across your page!
So I have a 5 year old who I believe may have juvenile rheumatoid arthritis, but all blood work comes back fine. I am not really sure where to go at this point and am trying to do my research. My dad had it as a kid and my husband nephew who is 9 now has it. My little guy is in pain just in his knees all the time. We are constantly giving him ibuprofen to no avail and I see it starting to slow him down. My heart aches for him and I wondered if you had any suggestions on what are next step should be! Thanks for your time!
Dear Jordyn, My heart goes out to your son. Please tell him there are a lot of warriors who hope he feels better. My suggestion is to start looking for a pediatric rheumatologist that has good reviews – this might take a while, but you need one whose patients trust her/him. Meanwhile you should watch carefully for any swelling or puffiness & photograph it. Re- test the blood work as often as the ped says – probably at least 1 x per year. Test all these antibodies: ACPA (anti-CCP) 14-3-3eta, rheumatoid factor. If there is swelling or persistent pain, you can try to get a musculoskeletal ultrasound – but they are mainly only in academic centers in the U.S. A couple of my kids have shown signs too, so I know how this is heartbreaking.