Posts Tagged ‘Rheumatoid Patient Foundation’

  • Rheumatoid Patient Foundation Exhibit at ACR 2012

    Mouse over slideshow to pause. [galleryview id=16 showPanels=true showCaptions=false showFilmstrip=true panelWidth=600 panelHeight=400 panelScale=nocrop transitionSpeed=800 transitionInterval=4000 fadePanels=true frameWidth=60 frameHeight=40 filmstripPosition=bottom pointerSize=8 frameScale=crop frameGap=5 frameOpacity=0.3 easingValue=swing navTheme=dark startFrame=1 pauseOnHover=true] << Back to ALL 2012 << Back to Gallery

  • Happy Thanksgiving! Not Margaritaville, But Still Sunny

    I’m thankful for you! I’m always grateful for this community and the difference you’ve made in the lives of so many people searching for support or who just need to know they’re not alone. Many of us have met in person, exchanged hugs and tears, and felt the bond that comes with living with Rheumatoid […]

  • Helping the Healthcare World Understand Rheumatoid Disease

    The “don’t-miss-the-plane” rush is on. My suitcase is half packed. I have a fever and I’m not washing my hair today because my wrist can’t muster it. Yet, I’m going to get on that plane to D.C.! Why all this bother? I’ve received messages from thousands of precious people telling their stories and how this […]

  • Win a Pentax Camera! While You Spread RA / RD Awareness!

    The PRIZES! FIRST Prize: Pentax Optio RS1500 Digital Camera 2 SECOND prizes: one of 2 $25 iTunes Gift Cards The CONTEST! What’s the contest about? For years, people who live with Rheumatoid Disease (PRD) have suffered because of confusion that RA is just a type of arthritis. Extremely low research dollars for RA Need for […]

  • We’re Warriors So Fighting On Is Just What We Do

    [galleryview id=1 showPanels=true showCaptions=false showFilmstrip=true panelWidth=600 panelHeight=400 panelScale=nocrop transitionSpeed=800 transitionInterval=4000 fadePanels=true frameWidth=60 frameHeight=40 filmstripPosition=bottom pointerSize=8 frameScale=crop frameGap=5 frameOpacity=0.3 easingValue=swing navTheme=dark startFrame=1 pauseOnHover=true] August. We were exhausted and happy after a successful exhibit at the Rheumatology Nurses Society annual meeting. Five minutes later, I realized I was still buried in Rheumatoid Patient Foundation (RPF) projects preparations […]

  • Rheumatology Nurses Meeting

    RA Warrior address and volunteers from Rheumatoid Patient Foundation at the Rheumatology Nurses Society annual meeting in August. Mouse over slideshow to pause. [galleryview id=2 showPanels=true showCaptions=false showFilmstrip=true panelWidth=600 panelHeight=400 panelScale=nocrop transitionSpeed=800 transitionInterval=4000 fadePanels=true frameWidth=60 frameHeight=40 filmstripPosition=bottom pointerSize=8 frameScale=crop frameGap=5 frameOpacity=0.3 easingValue=swing navTheme=dark startFrame=1 pauseOnHover=true] << Back to ALL 2012 << Back to Gallery

  • What If Rheumatoid Disease Were Recognized, Properly Funded & Medically Understood?

    Just think. What if you told people you have RA and they actually knew what that meant instead of dismissing it? What difference would it make if Rheumatoid Disease had comparable NIH research funding to understand what causes RA? What if there were treatments that worked for all RA patients? What if newly diagnosed RA […]

  • Sample Size: 1 of Every 100 RA Patients in U.S. Are Members of Our Facebook Page

    Transparent objectives of a patient community As the author of this blog, I’m completely transparent about why I’m here: Stunned at learning what so many RA patients endure, I committed to doing everything possible to change that. The 3 specific goals have been the same for 3.5 years on the About Page, as created during the […]

  • Mayo Clinic Contest! 5 Ways Patients Can Make a Difference!

    1) Rheumatology patients are teaching medical students in Britain! The biggest difference patients can make is to help the medical profession understand their conditions better. Patient instructors in rheumatology are instructing undergraduate and postgraduate medical students are viewed as “an excellent, relatively under-utilised, resource.” “They are especially effective at enhancing students’ understanding of the impact […]

  • Rheumatoid Arthritis Awareness Is about Medical Care, Not Sympathy

    My Bear had an appointment to see his terrific pediatrician today again about his swollen finger joints. She was home with a cold, but we waited an hour to see an alternate. The fellow didn’t seem to welcome my questions or opinions. I was in the familiar context of my pediatrician’s office – 6 years […]

  • Hoping Really Hard: 2 Battles I Fight to Win

    Two things I’ve been hoping for with all my heart, so I’m doing all I can If you’ve been reading my blog long, you know I talk about hope as a verb – something you do. Hope is not something that some lucky people just have. When you’re actively hoping, you’re probably doing as much […]

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