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This analogy is SO true. You KNOW to expect the RA flare but even after having it for years, I am astonished by its’ occurrence, and the intensity- just like the love bug attack in Florida! Probably some of the same drugs we use for our RA would put those love bugs in their place!
Funny, Julie.
Great analogy Kelly! Is there no end to your talent? : )
I thank you from the bottom of my heart for what you do and appreciate, and thank God for your faithfulness! You encourage me every day, in many ways.
I find myself gravitating to the website many times a day, the support is phenomenal!
Lately, I’ve been finding that “family frustration” with never knowing what to expect from me—– upsetting. Just when I think they might understand——-I get a zinger. It makes me want to withdraw and stay silent about the entire topic. Anyone else going through that?
Connie, thanks for smiling with me on the lovebug thing. I think I do know what you mean on the other topic. I do the silence thing too would you believe? Doesn’t sound right since I write a public blog… but there a people close to me who don’t get it at all. I have to either avoid them or make sure to avoid discussing RA.
How wonderful! It just gives you a lift that helps you get going, doesn’t it?
Loved your lovebug analogy.
Thanks for stopping by, Lene. It really does put things in perspective.
Thank you, Kelly. I’m in the thick of the swarm at the moment. I laughed out loud at “what the hell is this?”–a verbatim quote of what I said to a friend the other day when he asked how I was feeling. I’ve definitely hit a wall of sorts, and my denial has been falling away. Hopefully it gets easier after that happens.
Kris, I’m sorry you are in a hard spot. I don’t know when it gets easier, but I like it a little better with friends though.
I to am swimming through a swarm and it’s a thick one! E verybody says ” Look at how well Alice is doing she’s amazing”. I’m not “AMAZING” but I am good at faking it. Only one or two people REALLY know how I feel and they keep my secret, come over and make me real food not “Bon Apetit”. We eat and they help me into my P.J.’s and bed, give remote and plenty of H2O lids the lids twisted already :doctor: . Faithful, loving and caring :rainbow:.We all need one or two of these to help us through the swarms. I pray you all have or find at least one. I Love You All! :rose:
Dear Alice, I’m sorry your recovery is so hard. I’ve been thinking about you and wondering if you had the help you need. It is an interesting fact of life how few people can handle how difficult these things can be. I’m so glad you have a couple of those people around you now. :rainbow:
My first trip to FLA in Sept 1990 was love bug season….”pteww pteww” as I spit them out when they came in the windows when we had to pay tolls (before EZ passes). Just returned last night from a quick visit to a friend in FLA and it was again love bug season and they are a pesky bunch. And here you are posting this interesting analogy. Coincidence? maybe.
I’m feeling good too!! Only 2 weeks of MTX shots instead of pills, but I DO feel different. No complaints and I wish the same for everyone on this site. It hurts me to read some posts of serious pain. I was there 10-12 years ago, but have to say I’m really almost “normal” now. Kelly – I’m rooting for you to get there too. Keep tweaking, reading, sharing. It’ll help get the windshield clean.
Thanks for the smile, Leigh. Exactly, you have to literally pick them out of your hair & spit them out! That year was the worst lovebug season I’ve seen – it was 1997. This one is a close second though. LOL. So glad to hear how well you are doing – it sends hope to others. Give me a shout if you are in Central Fla. again.
Perfect analogy! I hit “the swarm” in Nov of last year. Actually I think “the swarm” hit me! I was mis-diagnosed for almost 7 years which allowed the disease time to reach all of my joints before I began any kind of treatment. (That was 7 years ago) It never occurred to my doctor to test me for RA until I specifically asked to be tested at the urging of one of my girlfriends from High School who is now a nurse. I have been on MTX since Nov and had my first Remicade treatment two weeks ago (have my second one this Thursday – wahoo). I used to be able to run 100 miles an hour. Nowadays it’s a good day if I can count to 100 without the need to lie down. And what happened to “power naps” – The only power I’m upping these days is the dial on my heating pad! I am feeling better at times but I still have no stamina, am 45 pound heavier and sometimes feel like I’m the “elephant in the room”.
Kelly – I want you to know that one of your comments on the 1 year anniversary blog touched my heart and changed my life entirely. I am so grateful for you, your wisdom, your insight and your quick wit. This is the first time I have written about or told anyone about my battle with RA and how I feel like an alien in my own skin at times. That’s because I know everyone here gets it! I am living with truth in my life now – and that’s because the good Lord led me to this site and to you. I have more hope now when I look into my tomorrows. Thank you Kelly – and Thank you to everyone for sharing their battle stories!
Mel
Sorry about the swarm. Mel. :heart: Thank you for taking the time to tell me your story. It means a lot in this hard time to know my pressing on helped someone. I had to laugh at the count to 100 part. Yep!
Get those lovebugs off the windshield! Sorry it’s been some rough days for you. We definitely have those ups and downs with RA’s but we keep getting up again!
Great visual example. Even though I’ve had JIA since I was a young child, I’ve only just gotten to where I have moved to active RA as an almost 40 year old. My hands have been bad for the last few months. I am blessed to work with co-workers with their own disabling conditions and we support each other. Just the other week we laughed because I could not open a bottle at lunch due to my hands. Who helped me? My friend who has use of just one hand due to a massive stroke at 18! We laughed at the irony of the situation, but I would have cried if we had not laughed.
Finding a good support system is key to making it through the ‘love bug season.’ What stands out on this site is the education and support. While I won’t visit some sites because they seem to be a pity fest, I love the focus on education, support, and advocacy I see here on RA Warrior. I work for an Independent Living Center and serve people with chronic conditions. I recommend the site to my consumers with inflammatory arthritis in hopes they can be enabled to self advocate by the examples here.
Keep up the good work Kelly.
I thought this would be about RA sufferers and love, not horrible bugs flying all over the place. (we dont get them in England).
But it got me thinking , as im new here and just finding my way around im not sure its been covered but how do you all deal with luuurrvve and the problems in the bedroom.(sorry if this offends but its life).
xx tina.