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I live in a college town in MS. We always offer students of anyone we even remotely know of our assistance with any emergency that might arise while they are away from home, even if that emergency is just a much needed home cooked meal or a quiet place to study or someone to pick up a prescription for them, or a ride home from the auto shop. I have RA, but doing pretty well, and have my high school senior son to assist with errands, etc. If needed. My son will be going away for college, so I understand having a lived one away from home.
Good luck PJ. My oldest is in her 3rd year of college now. It’s hard to be away from her. Do you have another child there to help you when he goes?
I’m looking forward to the travel tips. Since my onset, I find it much harder and painful to travel.
I do too, Amy. I don’t know if it will be easier w/ the tips but at least I think we could be more comfortable.
Dr. Dip Stick…………I am so tired of being told what is my RA and what my RA isn’t, I think I know RA pain by now, and I’m sure you do as well.
“Actually, I spend most of my time in my house so that I can be as comfortable as possible and I don’t have to explain myself.”
You hit the nail on the head with this statement.
Yeah, another RA pt would know exactly what that means. Can walk as funny as I want to or whatever I need to do or not do…
I have a great friend who is a flight attendent, she has given me some great tips.
1. Never use the airline pillows or blankets…unspeakable germs!
2. Never ask for water from the flight attendent unless you know it is from a can or bottle. No water from their tank! It never gets cleaned!
3. When making a reservation, ask to pre-board. It’s free and it helps you avoid a longer wait.
Those are great Bill! Thanks.
We were fortunate enough to find a good used RV really cheap and that is what we use when we are traveling to a location where otherwise we would have to stay in a hotel. I put extra foam padding on my bed, have my own pillows, and it is so much more comfortable than any hotel room that I have been in since RA. It is nice to have a tiny kitchen, too, where we can prepare a simple meal instead of eating out at every meal. Eating healthy when traveling helps, too, and that is hard to do eating all meals out. I couldn’t do this by myself, but do recommend it to those who can afford it and who have a spouse or traveling companion who can do the hook-up, etc. My RA actually isn’t invisible, and I am slower than Christmas, but I decided that if that bothers other people, they can travel with someone else. So far, that has never happened, and even though we don’t do even half as much as we used to and some days nothing but relax, we always have a good time. Just knowing that we can get away now, even when it is only and hour away to spend a couple of days at the lake, has been a huge morale booster for me.
Hi Charlene,
That’s so good to hear. Makes me want to do it too. “Slower than Christmas” – that’s takes me back! It sounds like it helps a lot to have folks that have their expectations at a good level.