Email a copy of 'Win a T-shirt Dealing with Rheumatoid Arthritis!' to a friend
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E-Mail 'Win a T-shirt Dealing with Rheumatoid Arthritis!' To A Friend
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I am one of the biggest advocates for Ra and also JRA. My daughter who is 5 now, was diagnosed at the tender young age of 18 months with JRA, a few years after my diagnosis in 2003. We both live with this disabling disease but we fight it day by day. We both are Humira Shooters, Dr dad give us our injections on the same night so we can hold hands and help eachother with the pain. Martina is doing so-so with her swelling and stiffness but as with everyone dealing with RA, she has her good days and bad. I do fairly well, I have since Feb 4, 2010, dropped 57 pounds which is really helping with my pain and stiffness. My family and I take any oportunity we can to tell everyone about our family’s dealings and to collect money for a cure. I have been my area’s walk chairman for 4 years now, I am on our Fall Family Campout committee, have chaired our area’s Bone Bash last fall, and we regularly attend the AJAO conferences. This is such a great group of people, we are all in tune to what eachother may be dealing with every day. We must hold strong and stick together to get our word out there… so many people do not know Kids Get Arthritis Too… this is so under publicised and unfair for the children. But please be happy that my family is out there as much as we possibly can telling the story of our family’s RA. I would love to get some more shirts to wear, we wear all of our walk shirts and other tees we have bought when we go places just as a conversation starter, to get the advocacy out there..like a walking billboard..lol
thanks so much for the page and friendship for all of us to embrace..
Tracey, Thanks for sharing your story and your daughter’s story here. You are doing so much. We can become an army for awareness. A gracious, but tough army. :heart:
Hi, Kelly! I’d LOVE to win a t-shirt! I changed my FB profile pic & posted this link there and on Twitter. Thanks bunches for all you do!
P.S. I haven’t heard anything from Woman’s Day either, and I really don’t expect too. :turtle:
Good luck Jodi!!
I’d like to enter the contest. I’ve signed in as a friend of the site! Love the WW Avatar.
:chic: marked you down Anita for 2 entries.
Changed my profile pic on facebook and twitter- and RT’d Hilary’s link from this morning. I love this- people ALWAYS notice when you change your profile picture! You did really well with this awareness campaign my friend!
Good Luck Jules, I wrote down your entries. Thank you – I have been working on this for days. Means alot to have you aboard. :heart:
Oh- on a side note- no response from WD either. Nice to see they pay attention….
Not a side note at all. I am not going to change my mind (since I can’t)… I guess we need to send more? or write louder? 😛
I would like to enter to win a t-shirt, I would like a ladies size large if I win! I have invited 2 friends and posted the picture as my profile picture! Even if I don’t win, how can I buy one???? I so enjoy you daily posts, I look forward to all the information & occasionally posting my feelings! Thanks for all your hard work! Hope you have a great day, soft hugs! Tell Roo Hello from “Belly Acres” in East Texas!!!!!! (That is the name of our little farm)
oh my gosh you can buy one on the Tshirt site any time! click here. Good luck I wrote down your entries. You can have whatever you want if you win!
Hi Kelly, Thanks for this! It’s something tangible that I can ask friends and family to do to support me. Profile pic, facebook post, blog post (www.lettersfromthebreach.blogspot.com) and signed in as a friend. Check, check, check and check! Hopefully some of my non-RA friends will help us out too! Blessing, Kris.
Great Job Kris, I would want you on my team in any battle!
Great logo! I entered the contest and hope I win. Thanks!
good luck Connie!
Kelly, super cool! I will be changing my profile pic shortly 🙂
Gotcha! :heart:
changed my facebook picture….hope i win..woohooo…love this site..thanks Kelly
Kim
good luck Kim!
I changed my pic to the wonder woman pic. I love it!!!!!!
I love that I found this site! I am so amazed at the information I am finding here!!!! Thank you to everyone for your info!!!!
Welcome! 😀
I posted the wonder woman pic as my profile pic on facebook and am going to change my status as well. I signed in as a friend on the sidebar. I am so excited to have found this site and I can’t wait to read read read!!!!! It is so helpful to know there are others out there who understand what you are living with! Please sign me up for the t shirt contest! Thank you! Aloha
I got you down on the list! I’ll do the drawing 2 weeks from yesterday – that’s July 5. Aloha!
I’ve posted the link and am about to change profile pic. 🙂
Thanks, Angela. I got you on the list.
I tweeted and posted on Facebook, cool giveaway!
I just saw ya. Ok that’s 3 for you.
joined your blog and *Liked* on Facebook too!!
I’m using the facebook pic, posted the blog as my status and also posted on my blog about it!
http://juliannamkh.livejournal.com/324517.html
Wheeee! Fun!
Awesome!
Aha! I joined the blog as well. This is Mary Kathryn from Facebook. 😀
I changed my profile pic for this week 🙂
I saw it Shannon. 😀
Im all in and hope to win a tee or water bottle for my 5 yr old Martina who has been dealing with this since she was 18 months.. she and mommy both have this horrible disease and fight it everyday.. we sure hope to win matching tees.. this would be sooo..cool!!!!!!!! Here is a little something i would like to share with all of u..
Written by me and my 5 yr old …
MARTINA’S HANDS
Some days my elbows hurt,
some days they dont,
Some days my knees work,
Some days they dont,
As for my hands,
Well, they will ALWAYS BE,
Praying for RA people,
Just like you and me.
5 yr old Martina Marie Maurer DX at 18 months… 11 joints affected.
Momma loves ya babe…together we will be surviviors..we Will not let this take our life out of us.
I just read your comment…God bless your family. I am inspired by her words. The Smiley family in Oklahoma will be praying too!
Thank you Tracey. Beautiful. :heart:
I changed my facebook profile pic and became a member 🙂 I was diagnosed in Feb 2010. I have 2 daughters ages 3 and 7. The final straw was when I couldn’t button their shirts before school. I am trying to become a RA Warrior. It’s hard. There is so much information out there. Thanks for your website. I have found it informative and easy to understand. THANK YOU!!!! Sarah Smiley 🙂
Good luck on the contest, Sarah. I’m sure you are a Warrior! Your girls will definitely think so! I’m so blessed by mine who are now 17 and 20. I never knew how much they realized (about what I did for them) until they were older. :heart:
I would love to have the shirt, I am entering the contest!
I finally changed my profile picture, posted the contest on FB and joined the “friends” of ra warrior. Just for the record-I tell everyone I meet about this incredible site. You and your work have totally changed my outlook on life with RA. It is an awful disease but it is wonderful to have all this support. Love ya, girl. Have a great day.
Guess I should have signed the post-it was me Kristi
I know. 😀
Thanks, Kristi!
I would love if you would offer coffee mugs with the Cool Chick, Dreadful Disease saying. 🙂
I will go try Roberta. I think I can!
me too!! i have never looked more beautiful on my profile pic!!
Yes, I said that too! :chic:
Kelly, I have changed my profile picture to the new Warrior Woman. Please add me to your wonderful contest.
You are AWESOME!
Cindy
Good luck, Cindy 😀
I think it’s wonderful! I am so happy to know that this site exists. I already changed my facebook profile pic to the Wonder Woman Warrior logo. Please enter me to win. Thanks!
Good luck, Amber. 😀
I’m changing my Facebook profile picture to the new Wonder Woman Warrior logo for at least three days during the contest and I’m posting this link about the contest as my status on Facebook!
I entered the contest by doing all of the above requirements. Not sure how to email you so I hope this will do.
I got your entries down, Jessamyn. 😀 Good luck.
I’m 38 and suffer from RA and Fibromyalgia and I just found this site. Love it! I will be refering it to my mom who has RA, Fibro, Lupus, and Mixed Connected Tissue Disease and my 17 year old brother who has JRA, Crohn’s Disease and other arthritis related illnesses. I want to let your followers know that The Eastern Pennsylvania Chapter of The Arthritis Foundation is having their annual Juvenile Arthritis conference July 30th, 31st, and August 1st in Philly. You can register now for a discounted rate at http://www.arthritis.org . It’s great for families affected by arthritis. Come join us for 3 days of fun!
Kelly do you think you can add fannypacks to your merchandise? I’m going to spend a day at Camp JRA, The Arthritis Foundations Eastern Pennsylvania Chapter’s camp for kids that suffer from all kinds of arthritis. And I need something to carry my meds in. It’s going to be a long tough day and I don’t want the weight of a back pack slowing me down. It would be very helpful. I could also use it at the JA conference the end of July. Thanks, Jessamyn
Great idea Jessamyn. I’ll try!
Hi Kelly! Hope your feeling well today. My feet and ankles are so swollen, they look and feel horrible. My mom took pictures so when I go to my Rheumatologist next month we can show him. I usually see him in early am before they are bad, so he never seems comcerned. Maybe the pictures will finally get his attention. What do you think? HA HA
I loved the t-shirts I bought so much, I am entering the contest. Hope you don’t think I am being greedy, they are a great advertising tool!
Hope your family is well also, will be seeing you on the posts! XO
Hi Lois, I noticed you and added you to the list! I have been working on a project for a while with some pictures if you want to email me some to include. My addresss is kelly @ rawarrior.com – There will be no names attached to the pictures.
Don’t know if I was supposed to tell you I changed my profile picture to Warrior Woman and posted the contest link on my status.
Pingback: Ashley’s Journey to Wellness – Entry #18 – It Sure Ain’t Pretty! – – Ashley Boynes, Community Development Director, Arthritis Foundation, WPA Chapter « Arthritis Foundation WPA
When do you pick the winner?
July 5th.
Great! Thanks Kelly.
Just one more way that you are making us Warriors feel loved Kelly!! Thank you for all you do!!
Thanks, Veronica. I’ve got your entries on the list!
Changed my pic over a week ago, commented and I always post your blog weekly so people will join!!!! Love you Kelly!
I can’t wait to find out who won!
Kelly, Who won?
We’ve had some technical difficulties getting it posted this a.m. Jessamyn. But it was posted right about the time you wrote this comment!!! See the top post on the website. The winner is Jamie Wood. Her photo is in the fan photos on Facebook. It was a big surprise!