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so good, i had to share on our fb page Kelly.. Sx
Thanks Sara for sharing on Facebook. I am glad to know I’m not the only one bombarding my friends with RA awareness!
Much Love,
Trish (the actress)
Friend me! http://www.facebook.com/snazzyact
Hey Trish! Good luck getting more famous & with your RA. :heart:
The letter from the child brought tears to my eyes. Some days it can just be overwhelming and you often wonder if anyone besides another warrior understands, apparently they do! I hope they all understand when it is a really bad day and we snap at them, it isn’t you! we love you but sometimes it is just to much at the moment. I need you to help me put my shoes on I just don’t want you to have to do it.
Well said, Dee.
I loved the last one- what an encouraging note. I used to dream about being a world class athlete someday and though I won’t say RA has taken that from me it certainly has changed my plans a lot and makes that a far more challenging dream to achieve. It is nice to know some people are aware that even if we don’t show up at a world level competition people with RA are pushing as hard as many an athlete.
the note from the daughter made me burst into tears. I dont have any kids of my own yet, but I did used to be a live in nanny and i have 2 adorable nephews and a niece….i like to think that they also think of me that way as they grow and learn (as my nephews are both under a year and my niece is 3)… and that when/if i do have kids of my own, it wont be a totally negative impact on them in that way. I actaully had an ex-bf of mines mother say to me once I hope to god you never have kids because of your disease … the irony? she was epeleptic and had 3 children of her own. It crushed me. My own family also worries about that too sometimes. Its nice to know that everything could be all right, even though they would have a mom with MCTD.
I cry every time I read it. I wonder if she knows how much it means to us or how unusual it is. I hope it will help others catch that vision.
Of course it could be alright – your future is not dark. Lots of people w/ autoimmune diseases have kids who are healthy & happy.
Really enjoyed today’s blog! It did make me cry however! Before I stopped working prior to all the medications I am now on I can remember my daughter helping me in so many ways, and she was just a young child! I often wonder how having to help me has changed her, how it has affected her life… I see everyday in her generosity and helpfulness, I see it in her non-complaining when I ask her for the help! I wonder if our family members, husbands and children alike, know just how grateful we are for all that help!
Made me cry too, Sonya. I hope more patients have people like these in their lives!
The comment shows that the daughter certainly ‘gets it’. I believe she and her mother are blessed to have each other. Of course, it made me cry. I think I’ll let my son (24) and my husband read it, because although they are helpful, I think this will really put it in perspective for them in a way I can’t. Blessing and hugs to them both and to you, Kelly, for making this sharing possible!! :rose:
Yes, I agree. This would be a good one to use the “email this” button! Cried w/ ya Miriam. :heart:
The comments on your delicious blog are a treat in themselves! If anyone avoids them they are surely missing out on a rich feast of knowledge and touching stories. Perhaps I’m hungry, lol. :cake:
heehee. yum yum 🙂
I look forward to your site Kelly, and when I don’t see it for awhile it becomes so disappointing.
I know it becomes difficult for you because of your pain and schedule.
I have just recently diagnosed and it becomes downright frightening when don’t what to expect next or what type of pain is this I am experiencing and why? Is this suppose to hurt ther too?
Thank you for your encouragement.
Jennifer
If it were bad enough that I have coronary artery disease, w/ 18 angioplastys,15 stents,
2 open heart surgeries, one stroke, diabetes with complications and slow moving RA ( a CAT scan was done to find RA on my spine) frozen shoulder syndrome w/ 2 surgeries on each shoulder, and my hands are curled up like a birds claw and I hurt and sleep all day.
If that were not bad enough…. I had to get into an awful car accident and my foot was smashed. No surgery for me- no one wanted my case. So I live in a cast until the bones heal themselves. I don’t feel sorry for myself, I just hate it.
Since I have all these ugly things wrong with my body, my husband has been turned off by my illnesses. Call him immature or one that cannot cope…I do. But what will that get me? It is now a relationship of live-in companions. I am on disability. I need him to care for me. My family certainly doesn’t want to.
As these diseases are killing me, I am dying from a lack of affection.
And I cannot do a damn thing about it!
Dear Suzanne, My heart goes out to you. It sounds like RA & diabetes have been cruel to you with even more on top of that. Many spouses cannot rise to the occasion of so much “worse” when they expected more of the “better.” I agree that is seems immature. Probably it has been suggested to you already that either or both of you seek support or counseling. There are some times we just endure and hang on and wait for something to change, even tho we look for opportunities that will help it come. I’ll pray that you have the love and support you need – from wherever it comes – hopefully from him one of these days.
I feel numb and not myself. As an artist I can hardly draw or paint at least for now. When I do I pay for it after with swollen joints and pain. They have lowered my dose of Sulfur drugs because of a rash I was getting. I was taken off the Plaquinil it was hurting my eyes. Each day I pray I ask for a gift of healing.
Deb