Email a copy of 'You're Cordially Invited to Make SWEET MEMORIES with Other Warriors & Friends! [video]' to a friend
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E-Mail 'You're Cordially Invited to Make SWEET MEMORIES with Other Warriors & Friends! [video]' To A Friend
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Oh! I would love to come! I am going to try to convince DH that he CAN take off of work and watch the kids for me. That is not an easy task, but maybe…just maybe….
I wish we could go! I don’t think that we’ll even be able to go the the JA Conference this year.
Before we actually went to our first conference, I thought that I needed to know more in order to go. NO. The year that we finally went I thought that I knew too much and may not learn anything. NO again. No matter if you are new to this RA life or been dealing with it for years, you will learn things. As Kelly said, you will make new friends. You may finally feel like I did this past July- like I finally found my peeps. Especially if you feel as though you have gotten to know people through social media- if those people are going and you can meet, it’s amazing!!! If you can go, don’t hesitate!!!
When I first saw notice of this, I realized that although I’m “welcome” to come, the age emphasis leaves out this newly diagnosed 62-year-old.
Dear Linda, there has been a lot of discussion of that – I was not around back then, but I believe it was added as a tagline by AI back before there was an understanding of RA / JRA as a disease – the way we now know that it is. SO, it was to distinguish between a disease and the “regular arthritis” of old age. I know that I CAN speak for them when I say how MUCH you would be welcome and wanted. A couple of others have commented similarly and have been welcomed warmly by AI folks!!
It just occurred to me that my previous post might have come across as if I’m mad. Far from it. I have a 30-something daughter who has been tentatively diagnosed with an autoimmune disorder–maybe RAD?–and her concerns sometimes differ from mine and sometimes mesh. Of course she might benefit from a conference in which people her age meet and discuss their particular concerns, so of course I don’t have a problem with that sort of thing. However, neither am I likely to “horn in” on it. We newly diagnosed boomers have our special challenges and concerns, too. Younger newly diagnosed RAD suffers often write in posts, “But I’m only . . . supply the age.” For us, we might be thinking, “But I spent a lifetime paying my dues with work, childrearing and taking care of parents, too, and this was supposed to be my time, finally, to live out my dreams. I did everything right and now I don’t get that time.” Other concerns include the differences in which medications might be handled by boomer bodies that perhaps have other health challenges; worrying whether we’ll be able to get medications when we advance to Medicare age and maybe dealing with an ailing spouse or parent when you are compromised physically, among others.
No you don’t seem mad to me. We ALL have problems – it is not fair to have your golden years stolen. It is NOT fair that some of my dear friends could not ever have children or learn to do many things because this disease attacked them in their youth. It is NOT fair at all that I had 5 children who then did not have a mommy to care for them properly but had to become caretakers during chlldhood and teen years instead – NOTHING about this disease is fair.Young people have tremendous problems also – a woman in her 20’s or 30’s who can’t work but cannot get disability approved because of her young age wrote me this week for example. We can listen to each other and learn and provide support. That’s how I see the value of the community.
Exactly, Kelly. One of my granddaughters is soon to see a pediatric rheumatologist. I wish it were me instead of that granddaughter and my daughter, instead of along with them. I was thinking that I would tell my daughter about the March gathering, as it’s near her.
I’m going thru it with one of my son’s – nothing in this world I hate more than this disease.
looks like a blast! I’ll be there… well, can’t travel, but 1) will be there in spirit and 2) maybe we should do something like this in Toronto….
I’m there! I just registered! It’s a 10 hour road trip but my DH will be coming with me! I am so looking forward to not only the educational sessions of this gathering, but most importantly, the social interactions with everyone. What a wonderful feeling that will be! I hope you are able to go Kelly. I so look forward to finally meeting you and giving you that big gentle thankful hug! 🙂 Of course, I’ll be wearing my RA Warrior shirt too!
You can’t imagine how much I look forward to that Therese ♥!
I was in the grocery store today and talking with the checker and telling her about my RA and that it is an auto-immune disease when a man waiting in line says “it’s not an auto-immune disease, it’s a nutrition disease, I know because my mother-in-law died from it.” This man is a vitamin pill pusher. Can you believe anyone would say such a thing to a person battling RA? I was floored to say the least and said nothing to him, not wanting to cause a fight.
Some people are so ignorant it’s pathetic.
Thanks for listening.
Bonnie
Hi Bonnie.
Yes you’d think that he would’ve gained a little compassion through losing his mother. I guess it’s because public opinion on this disease is so off-base.
Of course nutrition is a good thing, but I cannot understand how people think that to minize the seriousness of the disease or humiliate patients just to promote their product would that make us “like” their viewpoint.