2012 | Page 3 of 16 | Rheumatoid Arthritis Warrior

Happy Thanksgiving! Not Margaritaville, But Still Sunny

I’m thankful for you! I’m always grateful for this community and the difference you’ve made in the lives of so many people searching for support or who just need to know they’re not alone. Many of us have met in person, exchanged hugs and tears, and felt the bond that comes with living with Rheumatoid disease....Continue reading      8 Comments » Read more

Helping the Healthcare World Understand Rheumatoid Disease

The “don’t-miss-the-plane” rush is on. My suitcase is half packed. I have a fever and I’m not washing my hair today because my wrist can’t muster it. Yet, I’m going to get on that plane to D.C.! Why all this bother? I’ve received messages from thousands of precious people telling their stories and how this website...Continue reading      23 Comments » Read more

Rheumatoid Arthritis Drug Approved by US FDA: Pfizer’s Xeljanz Pill (Tofacitinib)

For over two and a half years, we’ve followed Pfizer’s tofacitinib through clinical trials for FDA approval. Today, the U.S. FDA approved the new drug that will be called Xeljanz. Click here to read the full Pfizer press release for Xeljanz.   The first JAK for Rheumatoid Arthritis approved: “Xeljanz” The U.S. Food and Drug Administration (FDA) announced...Continue reading      35 Comments » Read more

Pfizer’s Rheumatoid Arthritis Pill Approved by Food and Drug Administration (FDA)

Note: Click here to read more about Xeljanz, the first new oral medication for Rheumatoid Arthritis in 10 years, and a short list of questions and answers for patients. Sign up for regular blog updates by email to watch for more updates on this new treatment and others. Pfizer press release about Xeljanz NEW YORK--(BUSINESS WIRE)--Pfizer...Continue reading      7 Comments » Read more

Groceries, Guilt, and Feeling Old from Rheumatoid Disease

At our family get-togethers, people tell jokes about how we’ll always be “Young.” I stopped telling those jokes a few years ago. And I think I just figured out why. Rheumatoid disease makes me feel old. It’s not the wrinkled brow from unspoken pain. Or the pale spotty skin in place of my former perpetual tan. Or...Continue reading      70 Comments » Read more

Surgery, Stories, and Feet amid Stubborn Rheumatoid Disease

One thing I wish every day is that everyone in the world could read the priceless emails from other warriors I receive every day. If everyone treating or researching this disease could read them, comprehension of the disease and care for it would improve. Family members could have greater understanding. Employers and friends could begin...Continue reading      35 Comments » Read more

PCORI – Creating a Culture for Patient-Centered Research

Note! For more snapshots including the posters summarizing the PCORI workshop - click here. This weekend I attended a PCORI workshop called Transforming Patient-Centered Research: Building Partnerships and Promising Models. I’ve watched some PCORI meetings in the past since they use live stream webcasts to provide transparency. Here are some of my impressions regarding the weekend...Continue reading      11 Comments » Read more
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