7 Rheumatoid Arthritis Bathroom Complications

Rheumatoid arthritis bathroom problems? That’s right. Bathroom. Not a big fan of potty humor. But if you live with active rheumatoid arthritis bathroom visits can create a minefield of problems. As the bathroom became more and more difficult for me, I wondered whether I’m the only one. Today, I’m being bold to ask. Do you have a...Continue reading      48 Comments » Read more

Sonny’s Disappearing Digits: a Fairy Tale of Rheum Disability

A few weeks ago in the car, Roo and I were talking about how hard it is to explain and understand rheumatoid disease (RD) and rheum disability. Roo is alone among my five children in that he has no memory of the strong, healthy woman I was before full-blown RD onset when he was 6...Continue reading      10 Comments » Read more

3 Things That Control How Much #Rheum Can Steal from You

Ever feel like Rheumatoid Disease is eating away at your life? Stealing abilities – even responsibilities – you enjoyed? How much wood would a woodchuck chuck? Roo’s been asking this tongue twister / riddle lately: ”How much wood would a woodchuck chuck if a woodchuck could chuck wood?” He enjoys saying it faster and faster. Boy was...Continue reading      9 Comments » Read more

Groceries, Guilt, and Feeling Old from Rheumatoid Disease

At our family get-togethers, people tell jokes about how we’ll always be “Young.” I stopped telling those jokes a few years ago. And I think I just figured out why. Rheumatoid disease makes me feel old. It’s not the wrinkled brow from unspoken pain. Or the pale spotty skin in place of my former perpetual tan. Or...Continue reading      70 Comments » Read more

When Should People Living with Rheumatoid Disease Use a Wheelchair?

Or give in to using a cane? Or pain medication? Or a handicapped tag? There was an interesting discussion about wheelchairs and canes on my Facebook post yesterday. At the same time, there were a few other discussions going on about pain medicines. There is such a wide range of needs. But there are some things...Continue reading      67 Comments » Read more

Mission Impossible: Crowd Management with RA

Whether you take mass transit, work at a crowded office, or attend conferences like I have recently, managing in a crowd with RA is challenge. This may be one more mission impossible, should we choose to accept it… It’s hard to explain RA to anyone who hasn’t lived it. Have you ever had a sprained ankle...Continue reading      36 Comments » Read more

I Want My Life Back

RA can hurt so bad that even tough guys cry. Lately, I’ve cried for a different reason. I want my life back so much. I want to run on the beach, but I stumble running to the bathroom. I want to hold a tennis racquet, but most days can’t hold a TV remote properly. Want to...Continue reading      65 Comments » Read more

The Now-I-Understand Abbott Suit for Rheumatoid Arthritis

What’s the one thing I’ve said more than anything else over the last five years? “No one understands.” I sigh it quietly. I mutter it under my breath. I exclaim it loudly in frustration. I struggle to say it through tears. But I don’t think I’ve ever blogged it. Who doesn’t understand? The professional people I associate with...Continue reading      33 Comments » Read more

Encouragement: with a Little Help from My Friends

Don’t you want me to help you with that? No. I want to be able to do it myself. I can do that for you. I know you can, I wish I could. Is there anything I can do? No, I want to feel like I can do something. Do you have any problem asking for help? Or...Continue reading      23 Comments » Read more

Easier Said Than Done: Simple Things That Seem Impossible

Does anyone ever make a suggestion that they think sounds so easy? The idea is simple, but the reality is more complicated. Sometimes even I imagine it will be easy, until it’s time to do it. Things people suggest for me to do that I find difficult. My brutally honest list. Call your insurance company. I sit...Continue reading      68 Comments » Read more

Adding RA to the SSD Compassion Allowances List?

Hearings receive testimony on RA & other autoimmune diseases Hearings were held yesterday, March 16th, about adding some autoimmune diseases to a list of conditions deemed disabling enough to be given specific consideration and hopefully quicker Social Security Disability approval. The list, called the Compassionate Allowances List currently includes 88 conditions. This week’s hearing was the 7th...Continue reading      26 Comments » Read more

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