Communication and Inspiration Archives | Page 9 of 20 | Rheumatoid Arthritis Warrior

Communication and Inspiration

Painless Meme for Rheum Mates

Kelly O'Neill 63 Comments ,
Often, I begin a presentation explaining “being an RA patient doesn’t define me.” Then, I share some things that do. Like being a mother of five amazing young people.  Growing up near D.C. and still loving all things Washington, especially the Redskins. Rainbows, rockets, and running on the beach. Bee Gees. Tobymac. Chicago. Margaret Becker. I...Continue reading      63 Comments » Read more

Mondini Syndrome Is Just Deafness Like RA Is Just Arthritis. Not.

Kelly O'Neill 21 Comments , ,
I was home for 3 hours today in between doctor appointments for my Tiger and I spent that time reading up on his diagnoses. As I drove him to 3 doctors in 2 days, thoughts swirled around and I decided to share some of it with you. This is not about RA, but there are...Continue reading      21 Comments » Read more
20 Replies to Things Not to Say to an RA Patient

20 Replies to Things Not to Say to an RA Patient

Kelly O'Neill 113 Comments , ,
Replies to things not to say to an RA patient (UPDATED) Every day, I hear from many people living with Rheumatoid Disease. This post about things not to say to an RA patient was a response to a request from a dear reader about one of the most popular posts on the blog, 20 Things Not...Continue reading      113 Comments » Read more

Aftermath of the FDA Vote on Pfizer’s RA JAK Inhibitor, Tofacitinib

Kelly O'Neill 44 Comments , , ,
After the tofacitinib FDA hearing, the votes are in, false perceptions persist, and patients still need relief. Some estimate that tofacitinib could be approved by the US FDA within a few months after mixed votes and mostly inaccurate press reports. It’s fitting this discussion takes place as rawarrior.com begins its fourth year of reporting the patient...Continue reading      44 Comments » Read more

Consumer Reports’ Absurd Best Buy Rheumatoid Arthritis Drug List

Kelly O'Neill 47 Comments , ,
RESPONSE TO Consumer Reports Health Best Buy Drugs; Evaluating Prescription Drugs Used to Treat the Symptoms of Rheumatoid Arthritis: The Biologics Warrior to Washington: Next week, I’m going to D.C. to make an oral presentation to the “Arthritis Advisory Committee” at a hearing about a new Rheumatoid Arthritis treatment, tofacitinib. I want you to know why...Continue reading      47 Comments » Read more

Hey Superman! Does Accepting Limitations Make Us Weaker?

Kelly O'Neill 17 Comments , ,
Katie Beth and I got in Monday night from a weekend with other warriors in Houston where I was able to speak about being an empowered patient. That immediately followed an e-Patient Boot Camp talk in Orlando with e-Patient Dave. Preparations and traveling drain so much time and energy that I haven’t been able to...Continue reading      17 Comments » Read more

A Doctor-Patient Covenant: Medicine’s Future Found In Its Past

Kelly O'Neill 16 Comments , ,
The following article was written by David Biundo to his friends and fellow patients. The message came from a conversation he had with his doctor. I hope you’ll find it inspiring and enlightening as I do. The challenge of being believed One of the challenges that many patients with chronic illness face, is the treatment they receive...Continue reading      16 Comments » Read more
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