Newsflare: Better Than a News Flash
3 things I can’t wait to tell you!
More RA stories
Four new RA onset stories – click here. We now have at least 75 stories! And several more on the way! These are our stories in our own words. If you don’t have RA, they’ll provide you with a more accurate picture of what it is and what it is like. If you do have RA, they’ll help you know that you’re not alone. The thing people say to me the most when they write me a letter is “Now I know I’m not crazy.” Having RA can make you doubt yourself until you meet others who have similar experiences.
Central Florida RA meet-up
This past Saturday, six brave girls got together for the first local support meeting in Central Florida! Several others said they’d attend next time, including a couple of guys. Watch for announcement about when and where.
And if you have a meet-up planned in your area, let me know so I can help get the word out. If you need help to get started, please also feel free to contact Arthritis Introspective. They are the experts and glad to help.
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Recommended reading
- Patient Stories May Provide Real Help via Social Media
- Which Biologic Treatment Should RA Patients Try Next?
- Onset of Rheumatoid Arthritis Stories
I know this is not the place for my question, but I am not sure where else to post this. Thanks for understanding!
What search terms do people use to find the most relevant RA outlets using social media (Blogs, Facebook, Twitter, etc.)? When I search “Rheumatoid Arthritis,” I often have to review several search pages before finding some great outlets. Is it because the pages don’t start with the word “Rheumatoid?”
Thanks!
The search engines like Google don’t always get it right – putting what’s more “valuable” on top although they say they try to do that. The best thing we can do is avoid clicking on spammy sites or ones that are just commericals and give the good ones more traffic so that Google will “learn” what pages have value.
My advice when searching is to be as specific as possible in your search requests – there are thousands of pages about “Rheumatoid,” so use specific words about what you want to read about.
Hi Kelly,
I’m 32 years old and have had R.A since the birth of my son when I was 28. I had a very bad flare last year that has severely affected both my wrists. I’ve had a partial wrist fusion on my left wrist because I ended up dislocating it. I still wear a brace on my right hand to avoid injuring it and making it worse. Your blog makes it easier for me to accept my diagnosis and move on with my life. I was in denial for a long time. I hoped it was anything but R.A. I still have days where I wish I would wake up and it would all be a dream. 🙂 Keep up the good work. Thank you!
I sometimes wake up thinking like that too Karen. I’m sorry about your wrists. Thanks for commenting. 🙂
Kelly – do you still hold the support meetings I’m central Florida?
Dear Catherine, not in a long while but I’d love to if we could get help.
I live in South Florida and would love to pm you. How do I do that?
I travel to Orlando frequently – would love to be part of a support group.