Rheumatoid Awareness Day 2016

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February 2, 2016 is the fourth annual Rheumatoid Awareness Day.

Rheumatoid Awareness Day 2016

Happy Rheumatoid Awareness Day 2016

The theme for Rheumatoid Awareness Day 2016 is the real rheumatoid disease, abbreviated with the hashtag #TheRealRD. Seven facts illuminate the stark differences between the media version of rheumatoid arthritis and the rheumatoid disease that’s experienced by so many. Sharing these 7 #TheRealRD facts is a positive way to combat the misinformation and minimizing that’s so typical with regard to rheumatoid disease (RD). You can click on the images to enlarge, feel free to save, and share.

Which of the 7 Facts can you comment or blog about?

As you read 7 facts, if you’re a reader of RA Warrior, you might be tempted to shrug, “Oh I know that.” But as you read #TheRealRD facts, which one might have make a difference to you if the world understood it? Which ones do people have difficulty grasping? Thinking back, was there ever a time you misunderstood some of them?

1) Rheumatoid disease is not a type of arthritis; arthritis is just one symptom.
2) Current treatments are not adequate for many people with moderate to severe rheumatoid disease.
3) Rheumatoid disease manifests itself differently in each person and even in the same person over time.
4) RD research is severely underfunded in the U.S. at about 1/12 per patient rate of similar diseases.
5) Rheumatoid disease is often an invisible illness.
6) Early aggressive disease treatment has been shown to produce the best outcomes.
7) Remission is rare. Daily pain is not.

Click an image to enlarge, Pin, save, or pass on.

Rheumatoid Disease Fact 1 Rheumatoid Disease Fact 2 Rheumatoid Disease Fact 3 Rheumatoid Disease Fact 4 Rheumatoid Disease Fact 5 Rheumatoid Disease Fact 6

Which one will you comment or blog about? Here’s mine:

I could write about all of them, and maybe I will. Number 7 strikes close to home. Everyone acts like my RD is an occasional problem. They seem to think the symptoms remit and I just have “bad days.” But that doesn’t relate to my experience at all. We’re not all the same (see Fact #3). I live every day at least 80% disabled and in pain like labor. It takes me hours to do what used to take minutes. When people hold on to a wrong perception of the disease, it affects the expectations they have. The resulting misjudgment and lack of accommodation are devastating.

Rheumatoid Awareness Day blog carnival

Any of the 7 #TheRealRD facts would be a great blog post topic in honor of Rheumatoid Awareness Day. If you have any kind of blog, you can write a post this week using one of #TheRealRD facts. Email me the link and I’ll post it as part of a blog carnival here on RA Warrior, inviting people to visit your blog and helping spread your message.Rheumatoid Disease Fact 7

Live Chat with Mayo Clinic rheumatologist John Davis for Rheumatoid Awareness Day

You are invited to join us at 8:30 pm EST February 2 – that’s TODAY – for a Facebook chat in honor of Rheumatoid Awareness Day.

It’s easy & you don’t need to say anything to be there and enjoy the chat. Just click HERE and refresh the page every few minutes so you can see all the comments.

Get a Rheumatoid Disease ribbon for social media profiles

To add an RD ribbon to your Facebook or Twitter profile, visit the Twibbon site here.

Rheumatoid Awareness Day ripple effect

We have made progress. However there is still mostly nonsense or mixed messages in the media and on medical websites. In Pennsylvania, February 2 was designated as “Rheumatoid Arthritis Awareness Day.” It’s a thorny discussion, but the whole purpose of establishing the day is acknowledging RD as a disease instead of a form of arthritis. That’s the first step to progress on awareness, improving the paltry research funding, or finding a cure.

It’s fantastic how quickly Rheumatoid Awareness Day has taken hold. I’m thrilled to see February 2 listed on many websites, including Wikipedia, as the one day to acknowledge rheumatoid disease. Many websites now say “rheumatoid disease” instead of “arthritis” because they know that minimizing RD is offensive to patients (who they want to click and read their stuff). Meanwhile Glenn Frey’s cause of death put the seriousness of RD on the radar. During that time, half a million people viewed our Facebook Page. Most wanted the world to understand seriousness of RD.

Learn more about the history and purpose of Rheumatoid Awareness Day on RAW, or visit this page at the Rheumatoid Patient Foundation site.

Recommended reading

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Kelly Young. All rights reserved.

This entry was posted on Tuesday, February 2nd, 2016 at 12:06 pm and is filed under Communication and Inspiration, Special Occasion. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.


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