Juvenile Rheumatoid Arthritis Archives | Rheumatoid Arthritis Warrior

Rheumatoid Symptoms Persist Despite Treatment: a Study in Juveniles (JRA / JIA)

January 22, 2014October 5, 2019 Kelly O'Neill 5 Comments Juvenile Rheumatoid Arthritis, Rheumatoid Arthritis symptoms, Rheumatoid arthritis treatment, Unrelenting RA - Persistent disease

In spite of treatment advances including biologics, children affected by Rheumatoid Disease still experience pain, stiffness, and fatigue that impacts their ability to function. The disease may not be as “controlled” as many doctors presume. This may not be news to you as a patient or caregiver, but as these researchers point out, it needs...Continue reading 5 Comments » Read more

Inside Story of a Young Person Living with Juvenile Rheumatoid

November 1, 2013May 14, 2018 Kelly O'Neill 53 Comments Juvenile Rheumatoid Arthritis, Talking to doctors

Today’s blog is my response to an email from a reader about an appointment with her daughter’s rheumatologist. This family travels for hours to see an expert pediatric doctor in one of the best hospitals in the country. Hi Kelly! I guess when they say all good things must come to an end, IT'S TRUE :( I can't...Continue reading 53 Comments » Read more

Juvenile Arthritis Treatment Guidelines Adopted by ACR

April 25, 2011May 15, 2018 Kelly O'Neill 9 Comments Actemra, Biologics for RA, Juvenile Rheumatoid Arthritis

Parents of children with juvenile forms of Rheumatoid Arthritis have tough decisions to make. They must consider possible risks of medical treatments like TNF-a without comfortable long-term safety records. Families weigh the risks against almost certain damage, disability, and deformity that the disease can bring. Rheumatologists who advise families with these decisions got some help...Continue reading 9 Comments » Read more

Don’t Take Those Meds for RA or Juvenile Arthritis

February 15, 2011May 15, 2018 Kelly O'Neill 73 Comments Blog carnival, Juvenile Rheumatoid Arthritis, Rheumatoid Arthritis natural cure

There is often pressure upon patients with rheumatological diseases to not use current disease treatments. This type of pressure is less common for patients with other serious diseases such as diabetes or cancer. We all try to laugh about our sister-in-law who insists we’d be better off with cherry juice than a disease modifying drug....Continue reading 73 Comments » Read more

Some Rheumatologists Don’t Understand How Much It Hurts

January 4, 2011May 15, 2018 Kelly O'Neill 55 Comments Juvenile Rheumatoid Arthritis, Pain Tolerance / RA Stoicism, Rheumatoid arthritis pain, Talking to doctors

Some rheumatologists say they don’t believe their patients It is one thing to act like women are catastrophizing when they claim that Rheumatoid Arthritis hurts so much. But it’s another thing when it is done to children. Unfortunately, I’m familiar with being disbelieved by doctors. But I’m still shocked that they do that to children. Over the...Continue reading 55 Comments » Read more

How Can Autoimmune Arthritis Diagnosis Be Improved?

January 3, 2011May 15, 2018 Kelly O'Neill 20 Comments Ankylosing Spondylitis, Autoimmune diseases, Blog carnival, Juvenile Rheumatoid Arthritis, Rheumatoid Arthritis diagnosis, Spondyloarthropathy

Why Rheumatoid Arthritis diagnosis must be improved We have over 60 Rheumatoid Arthritis diagnosis stories here on Rheumatoid Arthritis Warrior. In some ways they’re all unique, but there are common threads. One familiar theme is that Rheumatoid Arthritis diagnosis is often difficult or protracted or confusing. This is not only true for Rheumatoid Arthritis, but for...Continue reading 20 Comments » Read more