New Rheumatoid Arthritis T-shirt Store

Rebuilding our rheumatoid disease / rheumatoid arthritis t-shirt store The doors are open – the new rawarrior.com t-shirt site is up with many new designs & products! The attitude is uniquely RA Warrior. It’s what I like to call “gentle advocacy” with positive designs that portray hope, gently confront ignorance, and increase awareness of RD / RA...Continue reading      6 Comments » Read more

Sonny’s Disappearing Digits: a Fairy Tale of Rheum Disability

A few weeks ago in the car, Roo and I were talking about how hard it is to explain and understand rheumatoid disease (RD) and rheum disability. Roo is alone among my five children in that he has no memory of the strong, healthy woman I was before full-blown RD onset when he was 6...Continue reading      10 Comments » Read more

Chronic Pain vs. Recurrent Acute Pain in Rheumatoid Disease

An honest examination shows pain related to rheumatoid disease may frequently be better described as recurrent acute pain than classic chronic pain. Is “chronic pain” the right way to describe Rheumatoid Disease pain? According to the National Institutes of Health, chronic pain is “any pain lasting more than 12 weeks. Whereas acute pain is a normal sensation...Continue reading      28 Comments » Read more

Reaching Beyond Limitations: Nike versus Yoda

“Not running sucks” & “Don’t just RUN your mouth” I stopped short when I saw this Nike t-shirt display in a mall recently. I had to get a picture of these t-shirts and ask the salesman, “Do you sell a lot of these? Do people like them?” He said they do. I just smiled and thanked...Continue reading      61 Comments » Read more

Could Divorce Be One More Pain from Rheumatoid Disease?

I’ve received several emails and messages from people living with Rheumatoid Disease (PRD) who have been divorced by a spouse, sometimes in part due to ways Rheumatoid Arthritis / Disease affects them. It’s sad to hear from a woman who can’t figure out how she’ll provide for her kids, or a mother whose kids were...Continue reading      27 Comments » Read more

Juggling Life and a Chronic Disease Like Rheumatoid

Usually when someone hears I have five children, they ask, “How?!” My answer is always the same: “One at a time.” They span about 15 years – it’s not like there were five toddlers at once. Actually, there was never more than one in diapers at a time – so my mom had it much...Continue reading      25 Comments » Read more

Sleepless in San Diego

Each fall, Katie Beth and I travel to wherever the American College of Rheumatology (ACR) holds its annual scientific meeting. Last night, we arrived in San Diego. 1) This is huge. The Rheumatoid Patient Foundation (RPF) is presenting an exhibit in the Exhibit Hall. 2) I’m speaking with two other RPF volunteers in a session on Tuesday...Continue reading      12 Comments » Read more

Wearing Caped Superman Socks! Accepting Limits & Still Trying Hard

Superman socks and the to-do list Am I the only one who tries her heart out and falls far short day to day? Something tells me no. There’s a lot of pressure to get things done right now. And more things to do than time or strength to do them. Every morning I wonder which things on...Continue reading      24 Comments » Read more

20 Tips for Traveling with Rheumatoid Arthritis / Disease

Flying with Rheumatoid Arthritis (RA) is a challenge Today as you read this, I’m doing my don’t-miss-the-plane dance. My close friends and family all know well how I start asking them a week before a trip to “pray I don’t miss the plane.” Really. I have missed the plane. Twice. I literally start preparing to catch a...Continue reading      28 Comments » Read more

Chronic Resilience: Strategies for Living with Chronic Illness

My first glimpse of Chronic Resilience When Danea Horn contacted me last year to be interviewed for her upcoming book, Chronic Resilience I had no idea of her story. Danea was born with VACTERL Association, a rare kidney disorder. She has turned living with illness into a mission to explore redefining “positive” and to bring “creative affirmations”...Continue reading      4 Comments » Read more

Pace Yourself: Guilt-free Pay-to-Play

It’s Roo’s birthday! Already! My goals include making a simple M&M cake with no complicated writing although I used to spend hours with a frosting bag even for Valentine’s cookies. Roo’s doing great with school subjects and Cub Scouts and playmates. He’s funny and smart, with a mind of his own. Other parents may know what...Continue reading      41 Comments » Read more

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