Living with chronic illness like RA Archives | Page 7 of 14 | Rheumatoid Arthritis Warrior

Norovirus Not a Day at the Beach

June 18, 2012May 14, 2018 Kelly O'Neill 21 Comments Living with chronic illness like RA

I would love to say that couldn’t visit the blog the past two weeks because I’ve been dozing off on the beach. Hopefully someday! Two weeks ago, I was scheduled for another radiofrequency ablation (RFA) procedure on Wednesday and planned to write about it that Tuesday. Instead, Tuesday I was too sick to write. I felt...Continue reading 21 Comments » Read more

Mondini Syndrome Is Just Deafness Like RA Is Just Arthritis. Not.

May 31, 2012May 14, 2018 Kelly O'Neill 21 Comments e-patient, Living with chronic illness like RA, Parenting with RA

I was home for 3 hours today in between doctor appointments for my Tiger and I spent that time reading up on his diagnoses. As I drove him to 3 doctors in 2 days, thoughts swirled around and I decided to share some of it with you. This is not about RA, but there are...Continue reading 21 Comments » Read more

Is Rheumatoid Arthritis a Factor in Divorce?

May 29, 2012May 14, 2018 Kelly O'Neill 77 Comments History of Rheumatoid Arthritis, Living with chronic illness like RA

At a meeting of Rheumatoid patients, we heard one describe how her spouse is leaving her as a result of her Rheumatoid Arthritis diagnosis. Everyone in the room gasped as she recounted how her husband told her that he did not want to be her caretaker. However, I’ve read many sad letters with similar stories....Continue reading 77 Comments » Read more

Leaving It All on the Field: Not the Safest Choice But Maybe Best

May 14, 2012May 14, 2018 Kelly O'Neill 12 Comments Living with chronic illness like RA, Patient advocacy, Professional patient

Sightseeing, small steps, and sleep I’ve spent most of the last 3 weeks lying down with ice on my neck, or taking extra meds for the back spasms. The night before the FDA tofacitinib hearing, my back got so bad that I was about 90% certain that I would not be able to attend. My little...Continue reading 12 Comments » Read more

FDA Arthritis Advisory Committee Hearing for Pfizer’s RA JAK: Tofacitinb

May 9, 2012April 20, 2019 Kelly O'Neill 27 Comments Living with chronic illness like RA, XELJANZ-tofacitinib-JAK

Advisory Committee hearing feed link My daughter Katie Beth and I are in Washington, DC for the final FDA Arthritis Advisory Committee (AAC) hearing about Pfizer’s JAK, tofacitinib. Early in the morning, Katie Beth and I will be en route to the meeting. The AAC meeting will be broadcast online with a live feed. We’ve been told...Continue reading 27 Comments » Read more

We Got Robbed Yesterday

February 26, 2012May 15, 2018 Kelly O'Neill 40 Comments Living with chronic illness like RA

The NBA All-Star games came to the Amway center in Orlando yesterday. And the Daytona 500 events have been going on all week in Central Florida. Plus antique car shows and other things. Saturday morning I was listening to the radio blowing out my hair (a big deal for me even with meds). I heard about...Continue reading 40 Comments » Read more

Letting Fumbles Strengthen the Heart

February 9, 2012May 15, 2018 Kelly O'Neill 28 Comments Inspiration for living with RA, Living with chronic illness like RA, Profiles in courage with RA

Like most people, I was always proud of what I could juggle and how many balls I could keep in the air at once, while making it look easy. Most of us also know that living with Rheumatoid disease changes that. One by one, I’ve had to put down things I’d rather have continued. I remember...Continue reading 28 Comments » Read more