Patient advocacy Archives | Page 3 of 7 | Rheumatoid Arthritis Warrior

Leaving It All on the Field: Not the Safest Choice But Maybe Best

May 14, 2012May 14, 2018 Kelly O'Neill 12 Comments Living with chronic illness like RA, Patient advocacy, Professional patient

Sightseeing, small steps, and sleep I’ve spent most of the last 3 weeks lying down with ice on my neck, or taking extra meds for the back spasms. The night before the FDA tofacitinib hearing, my back got so bad that I was about 90% certain that I would not be able to attend. My little...Continue reading 12 Comments » Read more

Dear Warriors and Friends

April 9, 2012May 15, 2018 Kelly O'Neill 10 Comments Comprehensive RA Care, Humor with RA, Patient advocacy

The past three years are positively beyond anything I could have imagined. Do you have a moment? When I started blogging, I had dreams of this website. But it could take forever to learn enough about “code” to manage it… We’ll save the rest for another day, but do you realize rawarrior.com has at least 630 pages?...Continue reading 10 Comments » Read more

Kelly Young Wins WebMD Health Hero Award

November 13, 2011April 20, 2019 Kelly O'Neill 49 Comments e-patient, Patient advocacy, Rheum Disease in the Media, Rheumatoid Patient Foundation

WebMD magazine chooses Kelly as 1 of 4 “Champions of Care”! Look what I found on my dresser when we got home from Chicago last night! The new WebMD magazine with yours truly in it! You can click on the images to enlarge and read the text or read the story on the WebMD Health Hero honorees...Continue reading 49 Comments » Read more

Mayo Clinic Video Interview: Patients at ACR Scientific Meeting

November 6, 2011April 20, 2019 Kelly O'Neill 11 Comments American College of Rheumatology, Patient advocacy, Video or podcast

Some of you may be puzzled about what I’m doing in Chicago. So here’s a brief summary and a video interview with Mayo Clinic News Blog telling why patients are interested in a scientific meeting like the ACR Scientific Meeting. What happens at the American College of Rheumatology Scientific Meeting? “The ACR/ARHP Annual Scientific Meeting will be...Continue reading 11 Comments » Read more

Video: Rheumatoid Patient Foundation Gives RA Patients a Voice

November 4, 2011May 15, 2018 Kelly O'Neill 1 Comment Patient advocacy, Rheumatoid Patient Foundation, Video or podcast

This week, the Rheumatoid Patient Foundation (RPF) conducts our first exhibit at the American College of Rheumatology (ACR) Annual Scientific Meeting. Beginning tomorrow, we’ll present our video The Faces of Rheumatoid Disease to doctors, researchers, and industry attending the ACR meeting. We’ve also prepared other materials that we’ll be sharing with you in the coming...Continue reading 1 Comment » Read more

Behind the Scenes Video: Patient at a Social Media Conference

October 24, 2011April 20, 2019 Kelly O'Neill 4 Comments Doing Projects with RA, Pain Tolerance / RA Stoicism, Patient advocacy, Video or podcast

Telling it like it is. On camera. It’s uncomfortable. It's very hard to talk about harsh pain. Why does pain seem so embarrassing? I even gave birth in quiet agony a few times because of that. 3 aspects of RA that are difficult to discuss It’s hard to talk about pain, so most of us are pretty private...Continue reading 4 Comments » Read more

The Path of Mercy in Medicine: A Tale of Two Doctors

September 28, 2011May 15, 2018 Kelly O'Neill 12 Comments e-patient, Patient advocacy, Talking to doctors

Physicians enjoy a unique position in our society with unique opportunities to make a difference in others’ lives. With that powerful role, they can choose between a path of mercy and a path of nonchalance. They can be a tool in the hands of God or they can just be a tool. There was the woman...Continue reading 12 Comments » Read more