Patient advocacy Archives | Page 4 of 7 | Rheumatoid Arthritis Warrior

Living with (RA) Rheum Disease Is Already Multitasking

Where have you been girl? As this post goes up, I’m in a chair with an IV getting my second Rituxan IV infusion. It’s hard to write about myself, but I really need to keep you informed about what’s going on. Couldn’t someone else report about it for me? None of my kids were willing to...Continue reading 18 Comments » Read more

ACR REF Rheum Research & Courage That Won’t Back Down

June 13, 2011May 15, 2018 Kelly O'Neill 11 Comments American College of Rheumatology, Patient advocacy, Research on Rheumatoid Arthritis

“Hey baby, there ain’t no easy way out… I won’t back down.” We just got back from Miami from the ACR Research Education Foundation (REF) RA Investigators’ Meeting where important research topics were discussed such as Lung disease of RA – our 2nd leading cause of death Rheumatoid heart disease research Porphyromonas gingivalis and the pathogenesis of Rheumatoid Arthritis On...Continue reading 11 Comments » Read more

ACR’s Research Education Foundation Investigators’ Meeting

June 10, 2011May 15, 2018 Kelly O'Neill 4 Comments American College of Rheumatology, Patient advocacy, Research on Rheumatoid Arthritis

REF RA researchers focus on progress The American College of Rheumatology’s Research Education Foundation has gathered over 50 researchers from across the U.S. to present their data from the Within Our Reach RA studies. They’ll be brainstorming ways to collaborate in finding a cure for RA. The meeting will feature a wide range of RA research topics that...Continue reading 4 Comments » Read more

Hear My RA Interview on KISS FM! Plus Updates & Coupons

June 4, 2011May 15, 2018 Kelly O'Neill 41 Comments Patient advocacy, Rheum Disease in the Media, Rheumatoid Arthritis awareness, Video or podcast

Over the last two weeks, I haven’t been able to write very much because of 2 roadblocks: Do you have RA in your shoulder? Lately, I’ve just cried and lay with heat or ice on mine. Some days, I couldn’t lift it forward from my side even an inch, no matter how hard I tried. At least this...Continue reading 41 Comments » Read more

The Tug of War of RA Awareness: Privacy of Pain & Agony of Disclosure

March 23, 2011May 15, 2018 Kelly O'Neill 60 Comments Celebrities and Rheumatoid Arthritis, Pain Tolerance / RA Stoicism, Patient advocacy, Rheumatoid Arthritis awareness, Transparency & living with RA

This week’s post on Rosalind Russell raised some important questions. A comment by Ronda was highly critical of Russell for the way that she hid from the public the severity of her suffering due to Rheumatoid Arthritis. How can we raise awareness if we hide how bad it is? It’s a good question. Rosalind Russell was...Continue reading 60 Comments » Read more

Adding RA to the SSD Compassion Allowances List?

March 18, 2011May 15, 2018 Kelly O'Neill 26 Comments Autoimmune diseases, Patient advocacy, Rheumatoid arthritis disability

Hearings receive testimony on RA & other autoimmune diseases Hearings were held yesterday, March 16th, about adding some autoimmune diseases to a list of conditions deemed disabling enough to be given specific consideration and hopefully quicker Social Security Disability approval. The list, called the Compassionate Allowances List currently includes 88 conditions. This week’s hearing was the 7th...Continue reading 26 Comments » Read more