Transparency & living with RA Archives | Rheumatoid Arthritis Warrior

Juggling Life and a Chronic Disease Like Rheumatoid

Usually when someone hears I have five children, they ask, “How?!” My answer is always the same: “One at a time.” They span about 15 years – it’s not like there were five toddlers at once. Actually, there was never more than one in diapers at a time – so my mom had it much...Continue reading      25 Comments » Read more

Trust and Transparency with Disease Activity, Decisions, and Doctors

I know you’ll love this guest post from Dana as we see the collision of her experience with the disease, the measurement of disease activity by her rheumatologist, and the decision to change treatments. She conveys so well the process of making decisions about disease management.  This is the whole reason we want to be...Continue reading      23 Comments » Read more

The Tug of War of RA Awareness: Privacy of Pain & Agony of Disclosure

This week’s post on Rosalind Russell raised some important questions. A comment by Ronda was highly critical of Russell for the way that she hid from the public the severity of her suffering due to Rheumatoid Arthritis. How can we raise awareness if we hide how bad it is? It’s a good question. Rosalind Russell was...Continue reading      60 Comments » Read more

Easier Said Than Done: Simple Things That Seem Impossible

Does anyone ever make a suggestion that they think sounds so easy? The idea is simple, but the reality is more complicated. Sometimes even I imagine it will be easy, until it’s time to do it. Things people suggest for me to do that I find difficult. My brutally honest list. Call your insurance company. I sit...Continue reading      68 Comments » Read more

The Isolation of RA Pain: Short Poem Video

Most people with RA talk about how difficult it is to explain RA pain to others. It’s frustrating to be repeatedly told that it isn’t or shouldn’t be so bad. Just today, a woman I met couldn’t wait to tell me about her friend with RA who’s able to do so much more than I...Continue reading      12 Comments » Read more
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